Heart to Heart with Anna

From Learning Disabled to College Professor

July 02, 2019 Kathy Ware Season 14 Episode 5
Heart to Heart with Anna
From Learning Disabled to College Professor
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Show Notes Transcript

Kathy Ware was born in 1974 with tricuspid atresia and pulmonary stenosis. Her first surgery occurred in her first year of life when she had a Potts shunt. At age 5, she had a central shunt inserted. In 1989 she had a Potts reconstruction and modified Blalock-Taussig shunt and then a classic Glenn procedure. All of these surgeries were done with the plan of having a Fontan Procedure, but she developed pulmonary stenosis and has never had the Fontan.

In this episode of Heart to Heart with Anna, Kathy Ware talks with Anna about what it was like to be diagnosed with a learning disability and how she overcame her issues to become a college professor. She gives advice to other heart families about dealing with congenital heart defects and learning disabilities. She also demonstrates through her own life how perseverance and determination can allow people to overcome seemingly insurmountable obstacles.

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Kathy Ware:

I'm very grateful that I was removed from LD at the end of seventh grade. And that in some ways that label didn't follow me.

Anna Jaworski:

Welcome to "Hear to Heart with Anna." I am An a Jaworski, and the host of yo r program. We are in season 14 a d we are so happy to have you he e with us today. I'd like o announce a new contest th t we'll be conducting for th summer of 2019. We want to he r your stories. We want to kn w how an episode of "Heart to He rt with Anna" has impacted yo r life. Share your 500 to 20 0 word story with us. We'll po t them on our website, and we' l let people vote for the sto y that touches them the most. Th first place winner will get a " eart to Heart with Anna" shir of their choice. The second pl ce winner will get a "Heart to Heart with Anna" totebag. And th third place winner will get a " eart to Heart with Anna" mug. S e heartsunitetheglobe. rg for more information. oday's show features Kathy Ware, and our episode is entitled, "From Learning Dis bled to College Professor." Kath Ware was born in 1974 with Tri uspid Atresia and Pulmonary S enosis. Her first surgery occ rred in her first year of life hen she had a Potts Shunt. t age five, she had a Central S unt inserted. In 1989 she had a Potts reconstruction, a modif ed Blalock Taussig Shunt and hen a classic Glenn pro edure. All of these surgerie were done with the plan f having a Fontan procedure, but she developed Pulmonary Sten sis and has never had the Fontan Kathy Ware is a return gues. During season nine and three quarters, Kathy was intervi wed by her good friend Laura yan. Laura Ryan was "Heart to Heart with Anna's" guest hos. Our ladies, both heart warri rs, participated in an ep sode called "A Heart Warriors Ea ly Onset Menopause." And I rea ly enjoyed that show Kathy for one thing, just knowin that heart warriors could make t to menopause. That was just uch an awesome show. Welcome bac

Kathy Ware:

Thank you very much for having me.

Anna Jaworski:

Today, we're going to be talking about something completely different. But this is something that is so important, and that is the diagnosis of Learning Disability. Let's start by having you tell us what your mother and father told you about growing up with a Congenital Heart Defect as an infant? Like, did they ever tell you if you saw any specialists on a regular basis, that kind of thing?

Kathy Ware:

No, I did not. I think part of it is being born in the 70s. There was no expectation for me to enter kindergarten, there was no expectation for me to see my teens or adulthood. They basically told my parents that there wasn't supposed to survive the Potts. And when I did there was like, "Well, we'll see where she goes." But there wasn't this expectation of longevity and long life. It was "See where she goes." I didn't get any Physical Therapy. I didn't get any Occupational Therapy. And I didn't have feeding tubes either. So I weighed 15 pounds at year one and 17 pounds at year two.

Anna Jaworski:

Oh my goodness, you were teeny tiny.

Kathy Ware:

I didn't really walk or talk much until I was two. So I was delayed. But again, there weren't those services to provide the extra care or the catch up, I guess is what I'm trying to say the catch up for us.

Anna Jaworski:

Right right. Now, Kathy, do you have older brothers or sisters?

Kathy Ware:

I have one older brother. He is six years older than myself. And my mother will tell you that I did my best to keep up with him. But I did get out of breath sooner or quickly. And my parents were told that I would self limit and I did. So they never sat down and told me to stop.

Anna Jaworski:

Yeah, right. Well, the Education of All Handicapped Children's Act was not passed until 1975, which was a year after you were born. Do you know if you participated in any Early Childhood Education program as a youngster? I'm not even sure that they had any Early Childhood Education programs back then. But

Kathy Ware:

No, none that I know of. I was put in a preschool for a year or so before I went to kindergarten, but it was your run of the mill local preschool. It wasn't a specialty type to do anything other than socialize and

Anna Jaworski:

Mm hmm

Kathy Ware:

Learn your alphabet and those sorts of things.

Anna Jaworski:

Mm hmm. Yeah, kids today have so much more available to them than what they did in the seventies. I mean, it's a totally different world now.

Kathy Ware:

My husband and I both attended the same Mrs. Guards preschool.

Anna Jaworski:

Ah. So you've known your husband since preschool?

Kathy Ware:

No, but he's actually eight years older than me. So no.

Anna Jaworski:

Okay. Yeah. He shouldn't have been there when you were there. If he's eight years older than you.

Kathy Ware:

No.

Anna Jaworski:

But how cute is that? That both of you attended the same preschool. I think that's sweet. Okay, so let's talk about your elementary school years, because by the time you were born, they had the act the legislation that handicapped children would be allowed to attend public schools. You know, I remember being in elementary school. And the first time I saw a kid come into school in a wheelchair, and everybody was like," Oh", you know. I didn't know that there was legislation passed to allow that kid to be there. But before 1975, if you had a handicapped child, they just stayed home.

Kathy Ware:

Mm hmm.

Anna Jaworski:

So tell me about your early years.

Kathy Ware:

I had my first surgery while I was in kindergarten, I was removed for three months. And then I had separation anxiety when I went back. Until basically my mom laid down the law and said,"We'll stay there, you're not coming home anymore". So I finished up the year in kindergarten was moved on to first grade.

Anna Jaworski:

That in and of itself is remarkable. You miss three months of school. In kindergarten, you had an open heart procedure, and yet you still passed to first grade. They didn't hold you back. That's pretty remarkable.

Kathy Ware:

No, they did not. They tried their best to catch me up when I returned. Working with numbers and the alphabet. Again, this was 79-80 school year, and kindergarten wasn't as intense in making sure you could read when you left or things like that. It was much

Anna Jaworski:

Right. Right.

Kathy Ware:

Numbers, your alphabet. socializing, playing.

Anna Jaworski:

Right.

Kathy Ware:

Coloring within the lines.

Anna Jaworski:

Mm hmm. Yep.

Kathy Ware:

Those things.

Anna Jaworski:

Yeah. There are actually different expectations for kindergarten children today, compared to when we were kids growing up.

Kathy Ware:

Yes, yes. But I went on to first grade and in first grade is when I first noticed that I'm struggling. And

Anna Jaworski:

Wow! You noticed?

Kathy Ware:

I never said anything to anybody that I even noticed it. But my Learning Disability wasn't finally picked up on until fourth grade. When my fourth grade teacher finally said, "No, she's not keeping up", and sent a letter home and started the process of getting tested.

Heart to Heart with Michael:

Texas Heart Institute were offering us a mechanical heart. And he said"No Dad, I've had enough to give it to someone who's worthy". My father promised me a golden dress tutorial, and he held my hand and asked me where I wanted to go. Whatever strife or conflict that we experienced in our long career together was always healed by humor."Heart to heart with Michael, please join us every Thursday t noon, Eastern as we talk wi h people from around the world w o have experienced those mo t difficult moment

Anna Jaworski:

"Home Tonight Forever" by the Baby Blues Sound Collective. I think what I love so much about this CD is that some of the songs were inspired by the patients.

HomeTonightForever:

Many listeners will understand many of the different songs and what they've been inspired by. Our new album will be available on iTunes, amazon.com, Spotify. I love the fact that the proceeds from this CD are actually going to help those with Congenital Heart Defects. Enjoy the music.

Anna Jaworski:

"Home Tonight Forever"

Announcer:

You're listening to"Heart to Heart with Anna." If you have a question or comment that you would like to address on our show, please send an email to Anna Jaworski at Anna at heattoheartwithanna.com. That's Anna, at hearttoheartwithanna.com. Now, back to "Heart to Heart with Anna."

Anna Jaworski:

Kathy, before the break, we were talking about your infancy and your early childhood. But you said right before we left that you were in fourth grade before they realized something was wrong. Can you talk to us about the testing that they did and what your parents were told?

Kathy Ware:

They did the typical psychological test, learning test. The WHISK, I think it's called tests and And I enjoyed some of the tests I really did. I enjoyed the spatial test, I did quite well with it, and picking out the order of sequence of the story and so forth. But it all came down to I could not spell. And I was taught phonics, I was in a school in the early 80s where tracking was the thing. And so I had been placed with the higher level students, probably because my older brother was gifted and talented and my father was in the educational system. So there was an expectation that I would have that high outcome, is my guess. Phonics never made sense to me. And I think the problem is, and even though it has never been described, or told to me exactly what was wrong, I think the problem is, I can't hear, or I struggle to hear the difference between certain letter sounds. Although short vowels sound the same, my /a/, my /e/, my /i/, my/ o/, /u/, sound very, very similar to me./C/s and /s/s sound similar /j/s and /g/s sound similar /d/s and/t/s sound similar. And so that was my struggle. And I was placed in Learning Disability program in fifth grade. I was tested in fourth. And I was tested again in seventh grade. Somewhere in those middle school years. I don't know what happened. But something clicked. And I finally started figuring out how to read. And so I tell people, my best guess, is that I had to memorize enough words and how they looked and how they were spelled, and how they were pronounced in order to read and write decently. I am forever grateful for whoever came up with spell checker. I think it's a great invention ever made.

Anna Jaworski:

Oh, my gosh, absolutely. Well, it sounds to me like you had an auditory processing problem. And that over time, you learn to compensate for that auditory processing problem. And it just took you years. And it sounds to me like you were a people pleaser. You wanted your parents to be proud of you. You wanted to work hard to be like your big brother. And you knew he was talented and gifted. So you just found a way to compensate.

Kathy Ware:

I don't know what clicked but I will tell you that my mother did not take the diagnosis laying down.

Announcer:

Hahaha ha

Kathy Ware:

My father was a middle school principal at this point in time, he knew what that diagnosis meant. And he did not have high expectations of me going to college. My brother was second in his class. Granted, we graduated in a very small high school. I graduated with ninety-two other people.

Anna Jaworski:

Oh, that's neat.

Kathy Ware:

He was second in his class, probably a class of maybe 100 or less. But he was very, very smart. He was gifted and talented and all those things. But my mother was a preschool teacher. And beyond high school had no formal education. But I can tell you, my summers were filled with workbooks, and spelling and reading and all those things. I remember playing boggle and to try to work on my spelling. And

Anna Jaworski:

Mm Hmm

Kathy Ware:

She did everything she could to make sure that I could learn to read and write and spell.

Anna Jaworski:

She was your special education teacher.

Kathy Ware:

In some ways. Yes, she was.

Anna Jaworski:

Is she still alive?

Kathy Ware:

Yes.

Anna Jaworski:

We need to say"Thanks, Mom."

Kathy Ware:

She'll be eighty next month. So

Anna Jaworski:

Oh, my goodness. Wow. She'll be eighty next month. She was ahead of her time.

Kathy Ware:

Yes. I don't know how she did it. But she raised me to be very independent, stubborn, and, and to not take"No" laying down.

Anna Jaworski:

Good for her. Wow. Well, you were raised really at the beginning era of Public Education for all handicapped students. Do you think there was an advantage or a disadvantage for you?

Kathy Ware:

I don't know because my parents never let me think of myself as handicapped. So I don't know that they thought of me as handicapped. So in that regard, I think it was an advantage for me. And the other advantage is, I think that having been in a very small rural community school, even though I was in tracking and starting in fifth grade, I was put back with the slower learners. And fifth through seventh was middle school for me eighth grade started high school for me.

Anna Jaworski:

Oh, wow.

Kathy Ware:

At the end of seventh grade, I was kicked out of LD.

Anna Jaworski:

Really?

Kathy Ware:

Yes. They basically said, "We can no longer do anything to help you". "You basically accomplished everything we could've dreamed for you."

Anna Jaworski:

Oh my gosh, how awesome is that? Wow,

Kathy Ware:

High school, even though I had been tracked with the slower learners through middle school. In high school, I was given, again, free range to pick whatever accelerated classes I wanted to take. But my mom will tell you that my brother would come home and study for the same sort of class for 15 minutes and go ace the test. And I would come home and study for three, four hours and go ace it.

Anna Jaworski:

Oh, Wow! Wow. So you still had the same ability? But it didn't come as easily for you?

Kathy Ware:

No, no. And I will tell people, I was very prepared for college, because I just got kept doing what I'd been doing.

Anna Jaworski:

Right. Right.

Kathy Ware:

My brother was like,"Oh, my gosh, what happened?"

Anna Jaworski:

It's kind of a rude awakening to him. And he was actually gonna have to apply himself a little bit harder.

Kathy Ware:

Yes.

Anna Jaworski:

So it sounds to me like you had no special services. No, note takers.

Kathy Ware:

No

Anna Jaworski:

No extra time for taking tests, you know, some of the current modifications that we hear kids have in school today. You didn't have any of that?

Kathy Ware:

No, I may have been allowed more time or possibly a separate room to take my test. But there was, no, I never had a note taker. I never had someone read the test to me. None of that. Now, I personally, looking back, I wish I would have had someone to read the test to me for my SAT's. Just because there were probably words on there that I knew, but I had never seen before. And again, going back to my issue with words. I had no idea what that word was.

Anna Jaworski:

Right. Right. You couldn't fall back on Phonics to help you figure it out. Because you were using a whole word reading technique.

Kathy Ware:

Yes, that would be my guess. And that's what I think today. And I even tell people today, if you give me a word that I've never seen before, you're going to get some letters in there, and probably a strange order of letters that you've never seen in that word before.

Anna Jaworski:

Are you telling me you're a creative speller, Kathy?

Kathy Ware:

Oh, yes. And I will do my best to sound it out. And I'm better at doing that than I was in first grade. Because I kind of had enough experience with words to kind of understand how they're structured, and stuff like that. But you will get some funky letters in there. If I've never seen or heard of the word before.

Anna Jaworski:

That's so interesting. So what you're saying is that you have a greater understanding of meta linguistics, but it's still something that you struggle with.

Kathy Ware:

Yes.

Anna Jaworski:

And yet, we know from the title, and I know for you personally, that you've gone on to become a professor yourself. And we'll talk more about that in just a minute.

Heart to Heart with Michael:

Hi, my name is Jamie Alcroft. And I just published my new book, "The Tinman Diaries." It's an amazing story of my sudden change of heart as I went through a heart liver transplant. I can think of no better way to read the "Tin Man Diaries" than to cuddle up in your favorite hearts unite the globe sweatshirt, and your favorite hot beverage, of course, in your heart unite the globe mug. Both of which are available the hug Podcast Network online store, or visit heartsunitetheglobe.org

Announcer:

"Heart to Heart with Anna" is a presentation of"Hearts Unite the Globe." And as part of the HUG Podcast Network. Hearts unite the globe is a nonprofit organization devoted to providing resources to the Congenital Heart Defect community to uplift empower, and enrich the lives of our community members. If you would like access to free resources pertaining to the CHD community, please visit our website at www.congenitalheartdefects.com for information about CHD, the hospitals that treat children with CHD, summer camps for CHD survivors and much, much more.

Anna Jaworski:

Kathy, In this segment I really want to talk to you about your decision to become a college professor. That's a lofty goal. When did you decide that you wanted to pursue that profession?

Kathy Ware:

I can't say that there was a decision made.

Anna Jaworski:

Really? But you come from an educational family, Mom and Dad were both teachers. And what did your brother do to become a teacher too?

Kathy Ware:

My brother's a Mechanical Engineer for the government?

Anna Jaworski:

Oh, okay. So they're totally different. Okay.

Kathy Ware:

And I swore because of my father and my mother, that I would never go into education. I started my college career as a nursing major, because that was my dream all my life.

Anna Jaworski:

Okay.

Kathy Ware:

But I began to realize that I couldn't physically be a nurse because of my heart defect.

Anna Jaworski:

Mm Hmm. It's a very physically demanding profession.

Kathy Ware:

Yes.

Anna Jaworski:

But so is teaching sometimes. I was a teacher, I was on my feet all day long.

Kathy Ware:

I sit and lecture.

Anna Jaworski:

Okay.

Kathy Ware:

That's how I accomplish it. So I graduated with a degree in Psychology and left college not knowing what I wanted to be when I grew up.

Anna Jaworski:

I think there are a lot of people in that situation.

Kathy Ware:

I got married, we moved away, we moved back. And shortly, like three weeks after we moved back, my dad died.

Anna Jaworski:

I'm so sorry.

Kathy Ware:

I knew that I needed a position or a job that will allow me the flexibility to be there for my mother. And so I started looking at medical coding and billing.

Anna Jaworski:

Okay.

Kathy Ware:

I went back to school and learned how to be a medical coder and biller. And I worked in that in a doctor's office for two years, and became a Certified Professional coder.

Anna Jaworski:

I'm sorry, that just kind of amazes me you had problems with reading and spelling and you became a professional coder. Isn't that amazing?

Kathy Ware:

Yes, that was what I did. And I passed the national, very difficult certification exam for it.

Anna Jaworski:

Wow.

Kathy Ware:

So I went and worked in that field for two years. And once I became certified, I wanted to find another job a little bit higher pay, and I began to look. And without sounding too religious, God hit me in the head with a brick, basically, and said, "Go teach". And so I finally said, "Okay, I'll go teach." So I started at a Business College, Junior College, you could say, and I was there for six years. And while I was there, I was teaching there because all you had to have was a bachelor's degree. I was teaching coding, medical coding and billing.

Anna Jaworski:

Oh, okay. Wow, that's perfect.

Kathy Ware:

I was teaching Anatomy and Phys, Medical Terminology, Psychology, because that's my undergrad. Human Relations, Ecology, or Environmental Science, Microbiology.

Anna Jaworski:

Wow. These are a lot of different classes.

Kathy Ware:

Yes.

Anna Jaworski:

Wow, you did all of this with a degree in Psychology?

Kathy Ware:

Yes.

Anna Jaworski:

Impressive.

Kathy Ware:

Because I had a lot of those nursing classes behind me the pre-nursing classes. That's why I was allowed to teach the medical terms in a in Anatomy and Phys all of those things. While I was there, they came out and my boss stood up in a meeting and basically said, "I need people to get more Masters." So I'd been looking online, and I found from the University of Maryland, that you could get a Master's in Chemistry and Life Science, all on line, except for one class. And so that's how I got my Master's in Chemistry and Life Science.

Anna Jaworski:

Wow! You could do that all online?

Kathy Ware:

All but one class, I had to do a Lab class in person.

Anna Jaworski:

Uh huh. Well, that makes sense. That's impressive, though.

Kathy Ware:

So I did that locally. It was three years of running about as hard as I can run. To do it. And my Master's is in Chemistry and Life Science. And I took classes focused on Human Anatomy and Physiology, Genetics, those sorts of things.

Anna Jaworski:

So were you working full time while you were going to school?

Kathy Ware:

They would not classify me as full-time or part-time at National College at the business college. But I was carrying a heavy load. Yes.

Anna Jaworski:

Wow. That's really surprising.

Kathy Ware:

That's why it took...

Anna Jaworski:

Okay

Kathy Ware:

three years.

Anna Jaworski:

But that's not uncommon nowadays, for it to take two-to-three years to get a master's degree, especially if you're getting a degree in a different field than what you got your bachelor's?

Kathy Ware:

Yes.

Anna Jaworski:

That's not uncommon at all. Wow! Well, as a Special Education teacher myself, I know that there are times when parents are afraid to have their children be part of this Special Education system because they don't want their children to have that label forever. Do you think this is something our parents should be concerned about or that your parents were concerned about?

Kathy Ware:

I think they were concerned, particularly my father. He knew what that meant, that label. Like I said, my mom didn't take it laying down. The concern I have, the way kids are structured today is that, I want kids to still have that flexibility to get out from under that label or out of these programs, if they accomplish what they need to accomplish to show that they are going to overcome it.

Anna Jaworski:

Right?

Kathy Ware:

If that makes sense. As a college professor, now that I'm at a community college, I see accommodations come across all the time for students. And I know this isn't proper to say but I struggle with some of them.

Anna Jaworski:

Do you?

Kathy Ware:

Not because I don't think that accommodations are something we shouldn't give. But if I have a nursing student who's requesting more time to take tests, I am concerned. Not for the tests that I'm giving them, but for their future. Can they be a good nurse? If they need more time? Hmm. Do I want that person to be an ER nurse? Do I want to be in charge of resuscitating me?

Anna Jaworski:

That might be self-limiting, though, just like you are self-limiting with your heart defect. That amazing thing about nursing is there are so many different kinds of nurses OR nurses have totally different responsibilities compared to a school nurse compared to a nurse who works with cancer patients compared to a nurse who works in a cardiac unit where, man, things are happening fast. You're right, you don't have extra time, when you're in that kind of situation.

Kathy Ware:

There are those concerns that I do have with accommodations. Because I know they can limit you in the type of jobs you're going to be able to achieve.

Anna Jaworski:

So do you talk to your students about that?

Kathy Ware:

No, depending on who they are, and depending on how they approach me with it. For the most part, now I teach health information management. And so time limits aren't quite as important. As when I was teaching Anatomy and Phys, so they can have more time they can do those things. However, I do stress to my Coders that time is going to be of essence, even on the job field, they're going to want you to be able to code so many records so quickly. And you're not going to have necessarily all the time you want even for someone who isn't learning disabled, you might not have all the time you want.

Anna Jaworski:

Right, that's true

Kathy Ware:

To investigate it.

Anna Jaworski:

Yeah, I agree with you. And I think that's one thing that we see, too, generationally, it seems like there are differences in the way people behave. And I wonder if some of it is because of some of the accommodations that they were given. And the real world doesn't always give you those kinds of accommodations.

Kathy Ware:

No, no. And I'm very grateful that I was removed from LD at the end of seventh grade. And that, in some ways, that label didn't follow me.

Anna Jaworski:

Right.

Kathy Ware:

So what it does mean is that I work incredibly hard for all my degrees.

Anna Jaworski:

Right. But you're still able to achieve and to me, that's what's so inspiring about your story, Kathy. You were able to progress to the point where now you're the teacher, I just love that story. It's amazing. So tell us what advice you have for parents of heart warriors today whose children might need those special services.

Kathy Ware:

I would say take them - but also push them as best you can - to explore the areas that they're really interested in. I know sports can be very, very desiring to put children in. I couldn't run, I couldn't keep up with anybody. But for me, my passion has always been science. And I'm very grateful that my parents did what they could to allow me to enjoy that. I grew up on a farm. So when we butchered I was out there with my hands in the animal trying, "What's this organ? What's that? What's this do?"

Anna Jaworski:

Wow.

Kathy Ware:

And I think that helped me to continue to push forward in my education, because there was that love of something that I could do. And that was science.

Anna Jaworski:

I love that. That's perfect advice. Thank you so much for coming on the program today. Kathy.

Kathy Ware:

You're very welcome. Thank you.

Anna Jaworski:

This was a lot of fun. And it's always inspiring to me to hear other people's stories and see how they deal with problems and turn those problems into opportunities. And I think a lot of times that's the difference between an optimist and a pessimist is the way they attack problems. And your parents, Wow, I'd love to give your mom a hug. She just sounds amazing.

Kathy Ware:

Well, thank you.

Anna Jaworski:

That does conclude this episode of "Heart to Heart with Anna." Thanks for listening today, please check out our Patreon page. We'd love for you to become a patron of our program. You could check out our HUG Podcast Network page, or you can check out our website. Go to heartsunitetheglobe.org or patreon.com/hearttoheart. That's all for today's episode. Please remember my friends, you are not alone.

Announcer:

Thank you again for joining us this week. We hope you have been inspired and empowered to become an advocate for the Congenital Heart Defect community. "Heart to Heart with Anna" with your host Anna Jaworski can be heard every Tuesday at 12 noon, Eastern Time.

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