Champions for HD Podcast

A Raw Conversation About Living Gene Positive - with Charlotte Conn

March 27, 2024 Shelby Lentz Season 5 Episode 2
Champions for HD Podcast
A Raw Conversation About Living Gene Positive - with Charlotte Conn
Show Notes Chapter Markers

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.

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In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media and shared advocacy. They discuss managing anxiety, finding support, and coping mechanisms. The conversation covers HD testing, genetic diagnosis, and its impact on family dynamics. Balancing life choices and finances amidst uncertainty is also explored. They emphasize living in the present, gratitude, and the therapeutic value of music and exercise. Shelby and Charlotte highlight the significance of community, self-care, and supportive partners in navigating life with HD. Additionally, they address challenges like infertility, adoption, and the emotional toll of building a family in the context of HD. Overall, their dialogue underscores the importance of connection, resilience, and shared experiences in facing the complexities of HD.

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The Impact of Social Media
Exploring HD Research and Treatments
Coping Mechanisms and Advocacy
Managing Anxiety and Uncertainty
Balancing HD Awareness and Personal Well-being
Finding Support and Distractions
Personal Experiences with HD Testing
Navigating the HD Journey
Concerns and Discussions about HD Testing
Impact of Genetic Diagnosis
Balancing Life Choices
Impact on Siblings
Family History of HD
Mental Health Symptoms
Different HD Experiences
Faith and Coping
Finding Joy in Music
The Role of Exercise in Mental and Physical Health
The Complexity of Relationships with HD
Navigating Relationships with HD
The High Cost of IVF and Adoption
The Importance of Not Being Alone