{"version":"1.0.0","segments":[{"startTime":20.98,"endTime":21.649,"body":"Hello, everyone."},{"startTime":21.82,"endTime":26.199,"body":"I'm Brian Hemmingway, and this"},{"startTime":21.82,"endTime":26.199,"body":"is the first episode of The"},{"startTime":26.266,"endTime":27.25,"body":"Life of Pi."},{"startTime":27.64,"endTime":32.649,"body":"This podcast is curious about"},{"startTime":27.64,"endTime":32.649,"body":"the social, emotional,"},{"startTime":32.716,"endTime":37.509,"body":"spiritual side of living with"},{"startTime":32.716,"endTime":37.509,"body":"primary immune deficiency."},{"startTime":37.899,"endTime":41.35,"body":"One of the reasons I'm"},{"startTime":37.899,"endTime":41.35,"body":"interested in this is because I"},{"startTime":41.469,"endTime":43.579,"body":"myself have"},{"startTime":41.469,"endTime":43.579,"body":"primary immune deficiency."},{"startTime":43.78,"endTime":47.74,"body":"This podcast is going to come"},{"startTime":43.78,"endTime":47.74,"body":"out 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last"},{"startTime":822.2,"endTime":828.87,"body":"12 years, I have been on"},{"startTime":822.2,"endTime":828.87,"body":"subcutaneous I g globulin,"},{"startTime":829.57,"endTime":833.72,"body":"you'll hear that often referred"},{"startTime":829.57,"endTime":833.72,"body":"to as S.A.G. or subcu."},{"startTime":834.62,"endTime":837.799,"body":"And that's just an infusion"},{"startTime":834.62,"endTime":837.799,"body":"that I do at home, just under"},{"startTime":837.866,"endTime":840.32,"body":"the skin often."},{"startTime":840.386,"endTime":841.6,"body":"And it's different"},{"startTime":840.386,"endTime":841.6,"body":"for everyone."},{"startTime":841.666,"endTime":846.769,"body":"I do it in my abdomen and it is"},{"startTime":841.666,"endTime":846.769,"body":"much easier and simpler."},{"startTime":846.836,"endTime":847.336,"body":"It is."},{"startTime":849.08,"endTime":857.72,"body":"I'm not sure I like by the time"},{"startTime":849.08,"endTime":857.72,"body":"I had changed from 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like."},{"startTime":1215.466,"endTime":1219.569,"body":"It is going to"},{"startTime":1215.466,"endTime":1219.569,"body":"be released every other week."},{"startTime":1220.869,"endTime":1223.109,"body":"And I'm looking forward to it."},{"startTime":1224.74,"endTime":1228.25,"body":"So I appreciate that any"},{"startTime":1224.74,"endTime":1228.25,"body":"community has a unique way of"},{"startTime":1228.316,"endTime":1233.41,"body":"talking and jargon that may or"},{"startTime":1228.316,"endTime":1233.41,"body":"may not be accessible, I know"},{"startTime":1233.92,"endTime":1236.829,"body":"and I hope that some people"},{"startTime":1233.92,"endTime":1236.829,"body":"listening to the podcast eight"},{"startTime":1236.98,"endTime":1238.41,"body":"don't have"},{"startTime":1236.98,"endTime":1238.41,"body":"primary immune deficiency."},{"startTime":1238.476,"endTime":1239.41,"body":"I think that's wonderful."},{"startTime":1239.619,"endTime":1244.809,"body":"I am I find it fascinating to"},{"startTime":1239.619,"endTime":1244.809,"body":"explore other lived experiences"},{"startTime":1244.876,"endTime":1245.529,"body":"other than my own."},{"startTime":1246.19,"endTime":1247.72,"body":"And I welcome you"},{"startTime":1246.19,"endTime":1247.72,"body":"to this podcast."},{"startTime":1248.15,"endTime":1254.43,"body":"Um, at the same time, I know"},{"startTime":1248.15,"endTime":1254.43,"body":"that some folks are new."},{"startTime":1254.65,"endTime":1259.809,"body":"I am lucky enough"},{"startTime":1254.65,"endTime":1259.809,"body":"to be, um, twenty three"},{"startTime":1259.876,"endTime":1261.579,"body":"years post diagnosis."},{"startTime":1263.109,"endTime":1268.45,"body":"And so I have had the"},{"startTime":1263.109,"endTime":1268.45,"body":"opportunity to interact with"},{"startTime":1268.516,"endTime":1272.89,"body":"these topics very often, and I"},{"startTime":1268.516,"endTime":1272.89,"body":"still kind of get confused"},{"startTime":1272.956,"endTime":1275.68,"body":"sometimes and don't know"},{"startTime":1272.956,"endTime":1275.68,"body":"everyone's own"},{"startTime":1275.746,"endTime":1277.47,"body":"individual like terminology."},{"startTime":1277.69,"endTime":1280.509,"body":"So I just want to give you from"},{"startTime":1277.69,"endTime":1280.509,"body":"my perspective, based on"},{"startTime":1280.576,"endTime":1281.259,"body":"what I've learned."},{"startTime":1282.22,"endTime":1286.029,"body":"What are some common terms that"},{"startTime":1282.22,"endTime":1286.029,"body":"you will hear during the"},{"startTime":1286.096,"endTime":1286.599,"body":"podcast?"},{"startTime":1288.099,"endTime":1290.109,"body":"And these are just"},{"startTime":1288.099,"endTime":1290.109,"body":"my own perspective."},{"startTime":1290.799,"endTime":1294.4,"body":"These are my own definitions"},{"startTime":1290.799,"endTime":1294.4,"body":"based on interacting with other"},{"startTime":1294.466,"endTime":1296.859,"body":"people with primary deficiency"},{"startTime":1294.466,"endTime":1296.859,"body":"and also just"},{"startTime":1296.926,"endTime":1297.849,"body":"talking with doctors."},{"startTime":1299.2,"endTime":1302.2,"body":"No doubt some of these"},{"startTime":1299.2,"endTime":1302.2,"body":"might be, um,"},{"startTime":1302.89,"endTime":1304.42,"body":"defined differently elsewhere."},{"startTime":1305.799,"endTime":1309.75,"body":"covid is one of the ones you'll"},{"startTime":1305.799,"endTime":1309.75,"body":"hear quite commonly that is"},{"startTime":1309.816,"endTime":1311.559,"body":"common"},{"startTime":1309.816,"endTime":1311.559,"body":"variable immune deficiency."},{"startTime":1312.64,"endTime":1316.269,"body":"Another one you will hear is"},{"startTime":1312.64,"endTime":1316.269,"body":"hypo chemical Obdulio Nimia."},{"startTime":1316.336,"endTime":1319.69,"body":"Again, a different type"},{"startTime":1316.336,"endTime":1319.69,"body":"of immune deficiency."},{"startTime":1320.529,"endTime":1326.109,"body":"You'll also hear pide primary"},{"startTime":1320.529,"endTime":1326.109,"body":"immune deficiency, which is"},{"startTime":1326.589,"endTime":1328.21,"body":"specifically primary"},{"startTime":1326.589,"endTime":1328.21,"body":"immune deficiency,"},{"startTime":1328.276,"endTime":1329.619,"body":"means something."},{"startTime":1329.686,"endTime":1332.2,"body":"You were typically my"},{"startTime":1329.686,"endTime":1332.2,"body":"understanding is that it's"},{"startTime":1332.266,"endTime":1334.089,"body":"something you're born with"},{"startTime":1332.266,"endTime":1334.089,"body":"rather than acquired"},{"startTime":1334.156,"endTime":1336.309,"body":"immune deficiency, which is"},{"startTime":1334.156,"endTime":1336.309,"body":"something you"},{"startTime":1336.376,"endTime":1338.529,"body":"acquire through life."},{"startTime":1341.44,"endTime":1345.64,"body":"Then you'll hear PPI"},{"startTime":1341.44,"endTime":1345.64,"body":"or PPI, which is primary"},{"startTime":1345.706,"endTime":1350.109,"body":"immune deficiency, but tends to"},{"startTime":1345.706,"endTime":1350.109,"body":"get shortened because it's fun"},{"startTime":1350.176,"endTime":1351.64,"body":"to say PPI rather than pide."},{"startTime":1351.759,"endTime":1354.16,"body":"But sometimes you hear someone"},{"startTime":1351.759,"endTime":1354.16,"body":"say pide and they mean"},{"startTime":1354.226,"endTime":1355.45,"body":"primary immune deficiency."},{"startTime":1357.619,"endTime":1363.259,"body":"You'll also hear commonly"},{"startTime":1357.619,"endTime":1363.259,"body":"S.A.G. or subcu, and those both"},{"startTime":1363.326,"endTime":1370.91,"body":"refer to infusions"},{"startTime":1363.326,"endTime":1370.91,"body":"of immunoglobulin, and that is"},{"startTime":1370.976,"endTime":1373.519,"body":"something the infusion"},{"startTime":1370.976,"endTime":1373.519,"body":"specifically happening,"},{"startTime":1374.15,"endTime":1378.619,"body":"it's injected into a layer"},{"startTime":1374.15,"endTime":1378.619,"body":"underneath the skin rather than"},{"startTime":1378.686,"endTime":1379.4,"body":"into a vein."},{"startTime":1379.67,"endTime":1384.22,"body":"If it's injected into a vein,"},{"startTime":1379.67,"endTime":1384.22,"body":"it is IV iji,"},{"startTime":1384.5,"endTime":1387.2,"body":"which"},{"startTime":1384.5,"endTime":1387.2,"body":"is intravenous immunoglobulin."},{"startTime":1388.88,"endTime":1393.109,"body":"And those are some of the"},{"startTime":1388.88,"endTime":1393.109,"body":"common words you might hear."},{"startTime":1393.559,"endTime":1398.329,"body":"The other one you will hear"},{"startTime":1393.559,"endTime":1398.329,"body":"regularly is Sepo, the Canadian"},{"startTime":1398.396,"endTime":1401.119,"body":"immunodeficiency"},{"startTime":1398.396,"endTime":1401.119,"body":"patient organization."},{"startTime":1401.569,"endTime":1403.91,"body":"They are the one supporting"},{"startTime":1401.569,"endTime":1403.91,"body":"this podcast and they will"},{"startTime":1403.976,"endTime":1405.73,"body":"probably come up in"},{"startTime":1403.976,"endTime":1405.73,"body":"discussion as well."},{"startTime":1406.46,"endTime":1411.5,"body":"And that's kind of your basic"},{"startTime":1406.46,"endTime":1411.5,"body":"one or one of primary immune"},{"startTime":1411.566,"endTime":1413.72,"body":"deficiency terms that will"},{"startTime":1411.566,"endTime":1413.72,"body":"probably show up."},{"startTime":1413.96,"endTime":1416.96,"body":"But I would like to remind you"},{"startTime":1413.96,"endTime":1416.96,"body":"all to keep in mind that"},{"startTime":1417.14,"endTime":1419.269,"body":"individuals might use these"},{"startTime":1417.14,"endTime":1419.269,"body":"in different ways."},{"startTime":1419.509,"endTime":1420.839,"body":"That's totally OK."},{"startTime":1421.069,"endTime":1422.63,"body":"This is just my"},{"startTime":1421.069,"endTime":1422.63,"body":"own perspective."},{"startTime":1422.96,"endTime":1426.349,"body":"That brings us to one of our"},{"startTime":1422.96,"endTime":1426.349,"body":"concluding segments, which is"},{"startTime":1426.416,"endTime":1431.869,"body":"sweet as pie, where we explore"},{"startTime":1426.416,"endTime":1431.869,"body":"the gifts that primary immune"},{"startTime":1431.936,"endTime":1434.839,"body":"deficiency gives us,"},{"startTime":1431.936,"endTime":1434.839,"body":"the opportunities,"},{"startTime":1434.906,"endTime":1440.839,"body":"the uniqueness, the the kind of"},{"startTime":1434.906,"endTime":1440.839,"body":"moment where we look at it and"},{"startTime":1440.906,"endTime":1442.819,"body":"say thank you for something."},{"startTime":1444.259,"endTime":1447.44,"body":"I know it has given me a lot of"},{"startTime":1444.259,"endTime":1447.44,"body":"gifts throughout the years."},{"startTime":1447.589,"endTime":1452.059,"body":"Not that I'm saying it is easy"},{"startTime":1447.589,"endTime":1452.059,"body":"to live with, but for example,"},{"startTime":1452.126,"endTime":1456.38,"body":"it has made me have"},{"startTime":1452.126,"endTime":1456.38,"body":"to sit still and think and"},{"startTime":1456.446,"endTime":1457.94,"body":"reflect and adapt."},{"startTime":1458.089,"endTime":1463.22,"body":"And I think that has made me a"},{"startTime":1458.089,"endTime":1463.22,"body":"more robust and and dynamic"},{"startTime":1463.339,"endTime":1466.19,"body":"human and also give me just"},{"startTime":1463.339,"endTime":1466.19,"body":"some really wonderful insights"},{"startTime":1466.43,"endTime":1468.799,"body":"into the world and"},{"startTime":1466.43,"endTime":1468.799,"body":"to other experiences."},{"startTime":1469.49,"endTime":1472.16,"body":"And for that, I'm deeply"},{"startTime":1469.49,"endTime":1472.16,"body":"thankful and I'm looking"},{"startTime":1472.226,"endTime":1476.99,"body":"forward to hearing what each of"},{"startTime":1472.226,"endTime":1476.99,"body":"our guests kind of identify as"},{"startTime":1477.589,"endTime":1480.509,"body":"a moment that is"},{"startTime":1477.589,"endTime":1480.509,"body":"for them, sweet as pie."},{"startTime":1480.92,"endTime":1484.789,"body":"So I think that brings"},{"startTime":1480.92,"endTime":1484.789,"body":"us to the conclusion of"},{"startTime":1484.856,"endTime":1486.019,"body":"this first episode."},{"startTime":1486.829,"endTime":1488.359,"body":"I'm excited moving forward."},{"startTime":1488.426,"endTime":1489.95,"body":"We will have a"},{"startTime":1488.426,"endTime":1489.95,"body":"guest each episode."},{"startTime":1490.73,"endTime":1494.45,"body":"But for this one, I just wanted"},{"startTime":1490.73,"endTime":1494.45,"body":"to make sure to introduce"},{"startTime":1494.516,"endTime":1498.319,"body":"myself in in a fair"},{"startTime":1494.516,"endTime":1498.319,"body":"and complex way."},{"startTime":1498.47,"endTime":1501.859,"body":"Again, this is my"},{"startTime":1498.47,"endTime":1501.859,"body":"own perspective, and this is"},{"startTime":1501.926,"endTime":1505.759,"body":"going to be you joining"},{"startTime":1501.926,"endTime":1505.759,"body":"me on on my journey."},{"startTime":1506.599,"endTime":1510.68,"body":"And as a result, it'll be our"},{"startTime":1506.599,"endTime":1510.68,"body":"journey as we kind of learn"},{"startTime":1510.746,"endTime":1512.599,"body":"more about"},{"startTime":1510.746,"endTime":1512.599,"body":"primary immune deficiency."},{"startTime":1513.109,"endTime":1517.88,"body":"If anything resonates with you,"},{"startTime":1513.109,"endTime":1517.88,"body":"please feel free to"},{"startTime":1517.946,"endTime":1520.73,"body":"reach out and share"},{"startTime":1517.946,"endTime":1520.73,"body":"any stories."},{"startTime":1520.796,"endTime":1525.349,"body":"Like I said, if you"},{"startTime":1520.796,"endTime":1525.349,"body":"do send email to podcast at"},{"startTime":1525.416,"endTime":1528.95,"body":"Sepo Gutsier, it may be shared"},{"startTime":1525.416,"endTime":1528.95,"body":"in the final episode."},{"startTime":1529.099,"endTime":1530.359,"body":"So keep that in mind."},{"startTime":1530.426,"endTime":1533.45,"body":"If you want to share"},{"startTime":1530.426,"endTime":1533.45,"body":"something publicly, I will not"},{"startTime":1533.516,"endTime":1534.529,"body":"be using last names."},{"startTime":1534.596,"endTime":1535.94,"body":"I will just be"},{"startTime":1534.596,"endTime":1535.94,"body":"using first names."},{"startTime":1536.18,"endTime":1538.91,"body":"But I would love"},{"startTime":1536.18,"endTime":1538.91,"body":"to hear from you guys."},{"startTime":1539.0,"endTime":1542.75,"body":"If you like this episode and"},{"startTime":1539.0,"endTime":1542.75,"body":"are as excited about the season"},{"startTime":1542.816,"endTime":1548.66,"body":"as me, you can feel free to"},{"startTime":1542.816,"endTime":1548.66,"body":"subscribe on whatever platform"},{"startTime":1548.726,"endTime":1552.619,"body":"you're using to be notified of"},{"startTime":1548.726,"endTime":1552.619,"body":"the next episode that"},{"startTime":1552.686,"endTime":1553.186,"body":"comes out."},{"startTime":1553.253,"endTime":1556.25,"body":"Like I said, every two weeks is"},{"startTime":1553.253,"endTime":1556.25,"body":"the go to the end of"},{"startTime":1556.316,"endTime":1556.94,"body":"the first season."},{"startTime":1557.119,"endTime":1560.99,"body":"I also want to take this moment"},{"startTime":1557.119,"endTime":1560.99,"body":"to thank Sepo, the Canadian"},{"startTime":1561.056,"endTime":1563.48,"body":"immunodeficiency"},{"startTime":1561.056,"endTime":1563.48,"body":"patient organization."},{"startTime":1563.75,"endTime":1565.64,"body":"Quite, quite literally."},{"startTime":1565.91,"endTime":1570.589,"body":"This podcast is only possible"},{"startTime":1565.91,"endTime":1570.589,"body":"thanks to see both support and"},{"startTime":1570.656,"endTime":1573.829,"body":"I'm incredibly thankful to them"},{"startTime":1570.656,"endTime":1573.829,"body":"for giving me"},{"startTime":1573.896,"endTime":1574.67,"body":"this opportunity."},{"startTime":1574.736,"endTime":1580.16,"body":"I love I love"},{"startTime":1574.736,"endTime":1580.16,"body":"stories and I love learning"},{"startTime":1580.226,"endTime":1581.18,"body":"about other people."},{"startTime":1581.246,"endTime":1583.369,"body":"I think it always"},{"startTime":1581.246,"endTime":1583.369,"body":"helps me to understand myself."},{"startTime":1583.436,"endTime":1586.519,"body":"And so I'm very thankful for"},{"startTime":1583.436,"endTime":1586.519,"body":"them allowing me to host"},{"startTime":1586.586,"endTime":1587.24,"body":"the first season."},{"startTime":1589.029,"endTime":1592.42,"body":"And with that, I think that"},{"startTime":1589.029,"endTime":1592.42,"body":"that brings us to the end of"},{"startTime":1592.486,"endTime":1593.41,"body":"the first episode."},{"startTime":1593.476,"endTime":1597.759,"body":"I'm looking forward to seeing"},{"startTime":1593.476,"endTime":1597.759,"body":"you in two weeks time when we"},{"startTime":1597.826,"endTime":1602.559,"body":"both get to learn more about"},{"startTime":1597.826,"endTime":1602.559,"body":"the complexities of being a"},{"startTime":1602.626,"endTime":1605.14,"body":"person with"},{"startTime":1602.626,"endTime":1605.14,"body":"primary deficiency."}]}