Real Kidney Living

Welcome to the Show!

July 01, 2020 Northeast Kidney Foundation Season 1 Episode 1
Real Kidney Living
Welcome to the Show!
Chapters
Real Kidney Living
Welcome to the Show!
Jul 01, 2020 Season 1 Episode 1
Northeast Kidney Foundation

Greetings, my name is Douglas Brown and I am a two-time kidney transplant recipient. Today, I hope to inspire you all to tell your own story. Mine is one of incredible diversity, necessary medical intervention and the ability to overcome adversity with the help of my support system and the Northeast Kidney Foundation. If you are looking to learn to be empowered and begin to share your own story – listen in!

SHOW NOTES: 

·       “You must fail to succeed” – This mantra, taught to me by my father enlighten the many different types of adversity that I would have to overcome to live a normal life. 

·      Expand your horizons - I lived in Palo Alto, California, Boston, MA and Albany, NY. Each presented an opportunity for growth and development with peer interactions, medical regimens and academic prowess with continued professional endeavors. 

·       Appreciate the journey – There is never a linear path to obtain one’s ultimate goal. It takes courage to say that it’s okay to find an alternative. 

·       Use your support system – My friends, family, girlfriend and the Foundation have been the ultimate sources of support  It’s important to find the right words and utilize the appropriate resources to help all of those individuals achieve at a high level.  

·       Become Involved – The Northeast Kidney Foundation empowers all community members to support their mission of reducing the effects of kidney disease and empowering voices for advocacy at the local, state and federal levels. 

Meryl’s Questions – 

1.)   What ran through your head when you knew you were going to have a child with a chronic disease for the rest of their life?

Appropriate resources were necessary. We definitely needed to gain perspective based on the transplant teams's opinion which taught us to “expect the unexpected”

2.)   How has this disease influenced your parenting style?

 Overprotective measures were definitely taken. It became necessary for me to organize medical regimens in order for you to learn the same skills and become independent. Though it’s a hard pill to swallow at times, we value that.  

3.)   If you could pick, what do you believe has been the most special part of this journey?

Advocacy and the sense of responsibility that you have developed encourages your self-awareness. My personal experiences such as my performing of your peritoneal dialysis allowed me to feel engaged in your care. 

4.)   What would you list as the top 3 characteristics that you have incorporated into your personal life as a result of CKD and the subsequent transplantation process?

Positivity – treatment alternatives, an optimal care team and overcoming any adversity will always be our driving forces.

Assertive and Inquisitive Attitude- ensuring comfort while asking questions in order to understand various maintenance regimens became a necessary balance to run.

Selective Social Interaction – close and personal relationships allowed for the sharing of sensitive information.

5.)   How has the Northeast Kidney Foundation and its partner organizations helped you achieve our mission of lessening the effects of kidney disease in our local community or even on a national level?

Our founding of “Doug’s Team” and participation in various events along with volunteer work for partner organizations has allowed me to feel fulfilled while helping further their mission.        

Please be sure to tell you friends and family about the show! Look out for our pilot and future episodes on Apple Podcasts and Spotify. Please be sure to look out for our next episode on the Renal Diet! 

Show Notes

Greetings, my name is Douglas Brown and I am a two-time kidney transplant recipient. Today, I hope to inspire you all to tell your own story. Mine is one of incredible diversity, necessary medical intervention and the ability to overcome adversity with the help of my support system and the Northeast Kidney Foundation. If you are looking to learn to be empowered and begin to share your own story – listen in!

SHOW NOTES: 

·       “You must fail to succeed” – This mantra, taught to me by my father enlighten the many different types of adversity that I would have to overcome to live a normal life. 

·      Expand your horizons - I lived in Palo Alto, California, Boston, MA and Albany, NY. Each presented an opportunity for growth and development with peer interactions, medical regimens and academic prowess with continued professional endeavors. 

·       Appreciate the journey – There is never a linear path to obtain one’s ultimate goal. It takes courage to say that it’s okay to find an alternative. 

·       Use your support system – My friends, family, girlfriend and the Foundation have been the ultimate sources of support  It’s important to find the right words and utilize the appropriate resources to help all of those individuals achieve at a high level.  

·       Become Involved – The Northeast Kidney Foundation empowers all community members to support their mission of reducing the effects of kidney disease and empowering voices for advocacy at the local, state and federal levels. 

Meryl’s Questions – 

1.)   What ran through your head when you knew you were going to have a child with a chronic disease for the rest of their life?

Appropriate resources were necessary. We definitely needed to gain perspective based on the transplant teams's opinion which taught us to “expect the unexpected”

2.)   How has this disease influenced your parenting style?

 Overprotective measures were definitely taken. It became necessary for me to organize medical regimens in order for you to learn the same skills and become independent. Though it’s a hard pill to swallow at times, we value that.  

3.)   If you could pick, what do you believe has been the most special part of this journey?

Advocacy and the sense of responsibility that you have developed encourages your self-awareness. My personal experiences such as my performing of your peritoneal dialysis allowed me to feel engaged in your care. 

4.)   What would you list as the top 3 characteristics that you have incorporated into your personal life as a result of CKD and the subsequent transplantation process?

Positivity – treatment alternatives, an optimal care team and overcoming any adversity will always be our driving forces.

Assertive and Inquisitive Attitude- ensuring comfort while asking questions in order to understand various maintenance regimens became a necessary balance to run.

Selective Social Interaction – close and personal relationships allowed for the sharing of sensitive information.

5.)   How has the Northeast Kidney Foundation and its partner organizations helped you achieve our mission of lessening the effects of kidney disease in our local community or even on a national level?

Our founding of “Doug’s Team” and participation in various events along with volunteer work for partner organizations has allowed me to feel fulfilled while helping further their mission.        

Please be sure to tell you friends and family about the show! Look out for our pilot and future episodes on Apple Podcasts and Spotify. Please be sure to look out for our next episode on the Renal Diet!