Hello listeners and welcome back to the podcast. This week, I have Rachel Alves as a guest. Rachel is mom to a daughter, Audrey, who has a rare gene mutation called CASK. Rachel is involved in her daughter’s diagnosis and that community, she’s fond of therapy and is working on who she can become now.
Her daughters diagnosis is very rare and they quickly volunteered to be part of research study on her daughters cask mutation. That really set things into motion for Rachel to dig into her role as a special needs mom. She started a blog to share with the world and document the study and beyond.
Rachel and I discuss a popular topic of isolation. She says it can be lonely to spend all day caring for a child who is non-verbal. She also doesn’t fit into the typical child/mom activities either. She’s turned to the internet for those mom relationships that she doesn’t have in person.
Rachel is currently working toward finding herself, outside of being Audrey’s mother, and finding new passions and a purpose for her life. I can’t wait to check back in on her in the future!
Connect with Rachel:
IG:https://www.instagram.com/alvesmomkickingcask
Blog: www.audreyjokickingcask.com
Email: Rach.m.alves@gmail.com
Connect with Kara, host of The Special Needs Mom Podcast:
Instagram: https://www.instagram.com/thespecialneedsmompodcast/
Website: https://www.kararyska.com/
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