Welcome to a new episode of the Special Needs Mom Podcast. Today I am speaking with Madeline Cheney. Madeline has two children, one with some pretty severe birth defects. She also has started a podcast geared towards helping special needs mom find a community.
We talk about the difficulty in the beginning of a diagnosis and how hard and lonely it really can be. Madeline shares that she had to be her sons biggest advocate and shares for others that moms really are a key role in the team surrounding your child. No one can replace that role, what they can see and advocate for.
Madeline and I dive into talking about diagnosis comparison. We will be the first to admit it isn’t logical or realistic to compare anyone’s diagnosis, but we’ve both been guilty of thinking this way. Madeline talks about how when she was pregnant she was first told her son would have Down’s syndrome. She immediately connected in this community and felt more in control. Unfortunately this was short lived. With her son's actual diagnoses, she didn’t know where he fit in or where to turn to for support. This also ties back into her passion to start her podcast, The Rare Life. She wanted to create a community where moms of children with rare diseases and disorders could join together.
Connect with Madeline :
IG: https://instagram.com/the_rare_life
Website: therarelifepodcast.com
Facebook: https://www.facebook.com/The-Rare-Life-Podcast-100145211681157/?view_public_for=100145211681157
Connect with Kara, host of The Special Needs Mom Podcast:
Instagram: https://www.instagram.com/thespecialneedsmompodcast/
Website: https://www.kararyska.com/
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