Parenting Differently When You Expect a Shorter Life with Daniel DeFabio Artwork

The Special Needs Mom Podcast

Think of this podcast as your very own special needs mom support group--except it's helpful and fun! You will leave with the hope that you can have a super happy life even when your life includes parenting a medically complex child or a child with something like autism and ADHD.

You likely didn't ask to be the parent of a disabled child or to live portions of your life in the hospital NICU or PICU. Your story is unique; it’s hard to find a place where you belong or where you don't feel so isolated and alone. Your child might have a rare disease, be undiagnosed or experience something that almost everybody has heard of like Downs syndrome yet the weird thing is that whether your child has an intellectual disability or physical disability, the experience as a mother is so similar. So regardless of your child’s disability, we can all find a home in this community.

You find yourself managing everybody else's needs; your child, their siblings, and all the guilt that you have about that. All this has you feeling overwhelmed, anxious, and dizzy---not knowing who to turn to or what to do next for help. This podcast is your lifeline, you’ll find encouragement and inspiration as we connect to other moms’ journeys. We’ll get practical and look at what it takes to stop feeling so stuck in your life.

You know this podcast is for you if you find yourself googling:

Overwhelmed special needs mom help

How to do self care as a special needs mom?

Dealing with anger as a special needs mom

How to manage special needs mom burnout and stress?

How do I deal with mom's guilt?

Help for myself as a special needs mom

How do I cope with a disabled child?

How do I manage the grief of my medically complex child?

How to keep from drowning as a caregiver

Support group for special needs mom or community for caregivers

I'm tired of taking care of my special needs child

Finding balance between my child’s needs and my own mamas needs

Respite and rest for special needs moms

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The Special Needs Mom Podcast

Parenting Differently When You Expect a Shorter Life with Daniel DeFabio

February 10, 2022 • Kara Ryska • Episode 75

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075: Welcome back to the Special Needs Mom podcast. Today I’m doing something totally different and I have a dad on the show with us. Daniel comes to us with the unique circumstances of losing his special needs son 18 months ago. Daniel is very involved in the film industry and has started a channel (to download on streaming devices) to raise awareness for rare disorders!

In this episode, we talk about how to cope with internal conflicts and personal relationships after receiving such a tough diagnosis and a short life expectancy. Daniel explains that it’s often hard to decide how much information to share about their circumstances but he never wants to do a disservice to his son's memory.

We also talk about role models in the special needs parent community. He emphasizes that you can use whatever gifts you have to serve the community or your own family. You don’t have to do what someone else is doing. Daniel wants to encourage you to do whatever you can.

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Connect with Daniel
IG: https://www.instagram.com/disorderrarediseasefilms/
LinkedIn: https://www.linkedin.com/company/disorder-the-rare-disease-film-festival/
Facebook: https://www.facebook.com/rarediseasefilmfestival
Channel: http://thedisorderchannel.com/

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Connect with Kara, host of The Special Needs Mom Podcast:
Instagram: https://www.instagram.com/thespecialneedsmompodcast/
Website: https://www.kararyska.com/