Jonathan Agin's hero, his daughter Alexis, passed away from DIPG after a 33 month battle with this most deadly form of Pediatric Brain Cancer. Since that day in January of 2011, Jonathan has become one of the foremost and best known advocates for kids who are diagnosed with this almost always terminal disease.
Jonathan will talk about the many aspects of advocacy work that he is doing in the hope that some day there will be real progress and real hope for this type of brain cancer, which has seen few real advances in treatment over the past too many years.
Jonathan is now the Director of the PREP for Gold Childhood Cancer Organization which stands for Preparation , Research, Education, and Programs and this organization will make a real impact for these kids and their families in the coming years.