SPARK Conversations

The Long View: Building Lifetime Pathways for Kids of All Abilities

Children's Healthcare Canada Season 6

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0:00 | 46:05

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 Families navigate fragmented healthcare and education systems while managing invisible labour that systems and professionals often don't recognize: coordinating care, translating information across sectors, and advocating for their children's needs. In this episode, researchers, a clinician, and parent partners discuss how lived experience must become integrated expertise driving system change, not just testimony, and how meaningful family participation in co-design creates solutions that actually work. The conversation highlights that building continuity across sectors and empowering families is essential to creating systems that serve children and youth with disabilities across their lifetimes. 

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