Ep. 98: From the Inside Out- My husband's journey with a neuroimmune condition

The Baffling Behavior Show {Parenting after Trauma}

The Baffling Behavior Show {Parenting after Trauma}
Ep. 98: From the Inside Out- My husband's journey with a neuroimmune condition
Oct 18, 2022 Episode 98
Robyn Gobbel

I invited an adult with a neuroimmune condition onto the podcast to discuss his experience and provide listeners with some insight on what children with PANS/PANDAS and other neuroimmune conditions may not have the words to describe. This special guest happens to be my husband, Ed. This episode is part 2 in a 3 part series. Next week, you'll hear me discuss my experience as a caregiver.

In this episode, you’ll learn:

  • What a child with a vulnerable nervous system may long for you to know, but doesn't have the ability to tell you verbally
  • What kind of caregiver response really helps (sometimes) 
  • How the Dysregulation - Shame Cycle feels

Read a summary or the full transcript on my website: https://robyngobbel.com/neuroimmuneinsideout

Resources
PANDAS physician network https://www.pandasppn.org/
Neuroimmune Foundation https://neuroimmune.org/
ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies https://aspire.care/
Monster in Me Documentary: https://www.themonsterinsideme.com/

Calling all professionals who work with the families of kids with dysregulated and big, baffling behaviors!

I'm hosting my annual, FREE audio-training the week of May 4th!

Head to RobynGobbel.com/BafflingBehaviors NOW to register so the moment the audios go live on May 4th, you'll have access right here in your podcast app!

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Let's hang out this summer at two different trainings for professionals!

Therapy with Kids with Big, Baffling Behaviors- June 1 & 2 in Syracuse, NY RobynGobbel.com/NY

Presence in Practice- July 15, 16, & 17 in Rockford, MI (outside Grand Rapids) RobynGobbel.com/Michigan2026

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The All-About-Me workbook will help your child grow their owl brain and develop ways to calm their watchdog and possum brain. 24 page, full-color, instant download at RobynGobbel.com/store

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Grab a copy of USA Today Best Selling book Raising Kids with Big, Baffling Behaviors robyngobbel.com/book

Join us in The Club for more support! robyngobbel.com/TheClub

Sign up on the waiting list for the 2027 Cohorts of the Baffling Behavior Training Institute's Immersion Program for Professionals robyngobbel.com/Immersion

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Over on my website you can find:
Webinar and eBook on Focus on the Nervous System to Change Behavior (FREE)
eBook on The Brilliance of Attachment (FREE)
LOTS & LOTS of FREE Resources
Ongoing support, connection, and co-regulation for struggling parents: The Club
Year-Long Immersive & Holistic Training Program for Parenting Professionals: The Baffling Behavior Training Institute’s (BBTI) Professional Immersion Program (formerly Being With)