Ep. 98: From the Inside Out- My husband's journey with a neuroimmune condition

The Baffling Behavior Show {Parenting after Trauma}

The Baffling Behavior Show {Parenting after Trauma}
Ep. 98: From the Inside Out- My husband's journey with a neuroimmune condition
Oct 18, 2022 Episode 98
Robyn Gobbel

I invited an adult with a neuroimmune condition onto the podcast to discuss his experience and provide listeners with some insight on what children with PANS/PANDAS and other neuroimmune conditions may not have the words to describe. This special guest happens to be my husband, Ed. This episode is part 2 in a 3 part series. Next week, you'll hear me discuss my experience as a caregiver.

In this episode, you’ll learn:

  • What a child with a vulnerable nervous system may long for you to know, but doesn't have the ability to tell you verbally
  • What kind of caregiver response really helps (sometimes) 
  • How the Dysregulation - Shame Cycle feels

Read a summary or the full transcript on my website: https://robyngobbel.com/neuroimmuneinsideout

Resources
PANDAS physician network https://www.pandasppn.org/
Neuroimmune Foundation https://neuroimmune.org/
ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies https://aspire.care/
Monster in Me Documentary: https://www.themonsterinsideme.com/

Over on my website you can find:
Masterclass and eBook on What Behavior Really Is (FREE)
eBook on The Brilliance of Attachment (FREE)
Ongoing support, connection, and co-regulation for struggling parents: The Club
Year Long Immersive & Holistic Training Program for Parenting Professionals: Being With

Making Sense of Baffling Behaviors: A FREE audio-only training for professionals who work with the families of kids with big, baffling behaviors!

Yes! FREE! You'll listen on your own time, right in your podcast app.

RobynGobbel.com/BafflingBehaviors for all the details and to sign up!

It starts May 5 and will be available to listen to until May 12. But don't wait to sign up!

Check Out All Robyn's Free Resources!
You can download all sorts of free resources, including webinars, eBook, and infographics about topics such as lying, boundaries, and co-regulation!

RobynGobbel.com/FreeResources

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The All-About-Me workbook will help your child grow their owl brain and develop ways to calm their watchdog and possum brain. 24 page, full-color, instant download at RobynGobbel.com/store

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Buy Raising Kids with Big, Baffling Behaviors at RobynGobbel.com/BafflingBook

Join The Club (or get on the waiting list!) over at RobynGobbel.com/TheClub

Hop on the waiting list for Being With- an immersive professional training program exploring the neurobiology of big, baffling behaviors at RobynGobbel.com/BeingWith