The Pursuit of Health Podcast

The Pursuit of Health is a weekly podcast dedicated to a thorough exploration of the American Healthcare System at a critical time in our nation’s history. The podcast’s creator and host, Dr. Eric Fethke, is a pediatric cardiologist and educator trained at Columbia University, with over 25 years of experience practicing medicine. Students, professionals, and everyday people alike are invited to learn from guest experts who are pursuing groundbreaking work to improve America's health. Join us on our journey towards a better healthcare!

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The Pursuit of Health Podcast

Ep98: From Tragedy to Innovation: Patient-Led Data Systems and ALS w/ Indu Navar

February 19, 2026 • Dr. Eric Fethke

0:00 | 45:57

A conversation with Indu Navar

We have to care to cure!

Indu Navar is the founder of EverythingALS and a leading voice in patient-driven ALS research.

After losing her husband to ALS following a long and exhausting diagnostic process, Indu turned her background in technology and data systems toward fixing what she saw as a broken approach to ALS care and research.

She takes us through the history of the disease, before highlighting how her company is spearheading a patient-led data revolution - updating decades-old medical research on ALS with information direct from our patients' lived experiences.

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We spoke about what has changed in ALS research in 2026 and why it matters for patients, how a lack of traditional biological biomarkers and a reliance on elimination-based testing has meant both diagnosis efficacy and treatment options have stalled, and how patient-driven research is reshaping discovery, trials, and treatment pathways.

Follow me on Instagram and Facebook @ericfethkemd and checkout my website at www.EricFethkeMD.com.

My brand new book, The Privilege of Caring, is out now on Amazon! https://www.amazon.com/dp/B0CP6H6QN4