Living With SMA

10: Family journeys from diagnosis to school

September 24, 2021 Spinal Muscular Atrophy UK (SMA UK)
Living With SMA
10: Family journeys from diagnosis to school
Show Notes

Welcome to the Living With SMA Podcast.  Today SMA UK Host Martyn Sibley talks to Portia Thorman and Mark & Panna Wilson about their family journeys from diagnosis to school and Nusinersen treatment.   Each of our guests today shares their own  personal views and individual stories.

Portia reflects on her family’s SMA journey with Ezra who is now aged 4.5 years and has SMA Type 1.

Mark and Panna reflect on their family’s SMA journey with Adi who is now aged 5.5 years and has SMA Type 2 .

If you prefer to watch this episode, please visit our YouTube channel here.

If you do have any questions for Portia, Panna, Mark and the team at SMA UK please email us at [email protected]

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