Stargardt Disease with Erin - Australia and New Zealand

The Sunflower Conversations

The Sunflower Conversations
Stargardt Disease with Erin - Australia and New Zealand
May 28, 2025 Season 2 Episode 3
Hidden Disabilities Sunflower

Erin Philpott shares her journey with Stargardt disease, revealing how she navigated diagnosis as a teenager and now balances motherhood while advocating for invisible disabilities in the workplace and beyond.
• Erin faces significant daily challenges with transportation as a legally blind mother to a five-year-old
• Often encounters misconceptions as she doesn't "look blind" without using a cane or guide dog
• Erin chairs an employee-led committee advocating for disability, accessibility and inclusion
• Erin emphasises that accessibility benefits everyone, not just people with disabilities
• Advocates for building accessibility into initial designs rather than adding as afterthoughts
• Challenges the stigma that disability means limitation: "Make it accessible and we'll come in droves"

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