CEConversations
CEConversations
Webcast: Rare, Complex, and Under-Recognized: Supporting Oncology Nurses in the Care of Patients with NF1
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Neurofibromatosis type 1 (NF1) is a rare, complex, and often under-recognized condition that presents significant diagnostic and management challenges, particularly for oncology nurses who play a central role in longitudinal patient care. Despite recent advances, including updated diagnostic criteria and expanded use of mitogen-activated protein kinase kinases (MEK) inhibitors for both pediatric and adult patients, oncology nurses often demonstrate gaps in knowledge, confidence, and competence in recognizing NF1-associated plexiform neurofibromas (PNs), monitoring for malignant transformation, and supporting treatment decision-making. The heterogeneity of NF1 manifestations, the risk of serious complications such as malignant peripheral nerve sheath tumors (MPNST), and the need for coordinated, multidisciplinary care further underscore the importance of specialized, evidence-based education.
In this enduring Creative Educational Concepts (CEC) Oncology Nursing Society (ONS) chapter installment, expert faculty will assist learners to combine NF1 diagnostic and treatment guidelines for early recognition of NF-PNs, incorporate MEK inhibitors using evidence-based safety and management strategies in adult and pediatric patients, and develop interprofessional, patient-centered care plans that support individualized, longitudinal management.