VAD Society's Podcast

The Voice - Canadian Hard of Hearing Association - Edmonton Branch

September 09, 2022 VAD Society
VAD Society's Podcast
The Voice - Canadian Hard of Hearing Association - Edmonton Branch
Show Notes Transcript

Join VAD as we talk with Cindy Gordon, Program and Executive Director for CHHA- Edmonton Branch.  We learn about the programs and resources that are offered to the community and how to access them.

00:00:00 Teresa

So welcome to the voice of Albertans with Disabilities, AKA Vad Society Podcast for September 2022. I'm Teresa Jackson, your host and VAD's program and service manager. Thanks for joining us today.

00:00:15 Teresa

VAD has started meeting with our Members to learn about local resources that are available to our iVAD Members and within the disability community.

00:00:24 Teresa

In today's podcast, I'll be talking to Cindy Gordon from Canadian hard of Hearing Association Edmonton.

00:00:30 Teresa

Branch, the vision of CHHA is to be a progressive, dynamic organization, working towards full inclusion of persons who are hard of hearing.

00:00:40 Teresa

Cindy's role at the Canadian hard of Hearing Association Edmonton branch is the program director and executive director and I wanted to get Cindy on the show to share her knowledge with you.

00:00:51 Teresa

Together, we hold the power.

00:00:53 Teresa

Please welcome Cindy Gordon.

00:00:55 Cindy

Hello. Hi, how are you?

00:00:58 Teresa

Please take a moment and briefly introduce yourself and tell us about your role with Canadian hard of hearing association Edmonton branch.

00:01:05 Cindy

Alright, well, as you say, my name is Cindy Gordon.

00:01:08 Cindy

I'm the program director and the executive director for the CHHA Edmonton branch.

00:01:14 Cindy

My role is to coordinate all of the programs and services offered by CHHA as well

00:01:20 Cindy

I run most of them.

00:01:22 Cindy

I have worked in the field of disabilities for more than 40 years.

00:01:26 Cindy

And now the last 30 have been primarily focused with the hearing loss association.

00:01:32 Cindy

I have a bilateral sensorineural hearing loss most of my life.

00:01:36 Cindy

I wear kuechler implant as well as a hearing aid in the other ear, so I walked the walk.

00:01:42 Cindy

So to say.

00:01:42 Cindy

When we work with this organization, I know what people are talking about, so that's who I am.

00:01:49 Teresa

That was great.

00:01:50 Teresa

Thank you.

00:01:51 Teresa

I have a few questions about Canadian hard of hearing Association Edmonton branch to gather some information for our listeners.

00:01:58 Teresa

So to start, can you give us a definition of what hard of hearing is?

00:02:03 Cindy

OK, so.

00:02:05 Cindy

There is a difference between and.

00:02:07 Cindy

Thank you for asking this question, because there is actually a difference between being hard of hearing and being deaf.

00:02:13 Cindy

So primarily where we draw the line is those with hearing loss any degree if we lose, if we use our voice.

00:02:26 Cindy

To communicate, then we are considered hard of hearing.

00:02:30 Cindy

No, that doesn't mean that some of us don't use ASL.

00:02:34 Cindy

We don't.

00:02:35 Cindy

We may use captioning.

00:02:38 Cindy

Hearing aids any other mode of communication to be able to get out our message or to hear it.

00:02:44 Cindy

But if we can use our voice and use our voice primarily to communicate, then we are considered to be hard of hearing.

00:02:54 Cindy

Those who are deaf typically use ASL as their first.

00:02:58 Cindy

Mode of communication.

00:03:00 Cindy

And that isn't the case.

00:03:02 Cindy

You know, voice and speech is our first mode of communication.

00:03:06 Teresa

Thank you for that clarification.

00:03:08 Teresa

Your mission is states we increase awareness and remove barriers for persons who are hard of hearing in the greater Edmonton area by providing support programs and advocacy.

00:03:19 Teresa

Can you tell our listeners how your organization does that?

00:03:24 Cindy

Yeah, well, our number one goal is to be the supportive for people who are experiencing hearing loss, having challenges, coping with it either personally or being discriminated at work, at home, at school, wherever.

00:03:38 Cindy

But we do provide programs such as your third ear.

00:03:42 Cindy

Which helps people through these challenges and the expectations of wearing hearing aids and other equipment which most people think is such a natural or easy thing to.

00:03:51 Cindy

do like glasses, and it is not it, is it?

00:03:55 Cindy

It sometimes takes years to get through that.

00:03:57 Cindy

Learning to to wear a hearing aid.

00:04:00 Cindy

We provide  a 9 week speech reading class for those who have lost their hearing and want to learn how to understand speech better, as well as coping strategies for everyday living.

00:04:12 Cindy

We provide an 8 week ASL class for those who learn an alternative form of communication.

00:04:20 Cindy

We offer guest speakers on technology, support, etc.

00:04:26 Cindy

We always advocate when a person feels they have been discriminated by.

00:04:31 Cindy

Because of their hearing loss, we provide one-on-one advice and mentoring. On the other side of the coin, we also provide sensitivity training to the community to help them understand hearing loss. So we work with the hearing community as well because really if they don't understand hearing loss.

00:04:51 Cindy

It makes it more challenging, you know, if they have a coworker for example, and they just don't understand it at all.

00:04:59 Cindy

Don't know why the hearing aid isn't just the answer or helping them, you know?

00:05:04 Cindy

So we try to help the general public as well.

00:05:08 Cindy

So most Of our our.

00:05:10 Cindy

Mandate most of our our mission is covered under those programs.

00:05:15 Cindy

And we certainly are open to just about doing anything and it's open to all the public as well.

00:05:22 Teresa

So just to follow up on that, your ASL course, is that open to anyone in the public?

00:05:28 Cindy

Anyone in public, and we offer it every quarter.

00:05:31 Cindy

We offer three, three to four sessions every quarter.

00:05:37 Cindy

Four times a year it's offered to the general public, anyone can take it, and right now we're offering three of those classes online.

00:05:46 Teresa

OK, good to know. One of the goals with CHHA Edmonton is through education, barriers of communicating with people around us can be removed. What common kind of barriers are there when communicating with someone who is hard of hearing?

00:06:01 Teresa

And do you have tips for our listeners to avoid these communication barriers?

00:06:05 Cindy

I do.

00:06:07 Cindy

So because hearing loss is actually the invisible disability, it's one of those invisible ones.

00:06:13 Cindy

People don't really know we have hearing loss.

00:06:17 Cindy

And they don't exactly know how to communicate effectively.

00:06:20 Cindy

When they even.

00:06:20 Cindy

Find out someone has hearing loss, so communication is often different.

00:06:26 Cindy

Than those people who are deaf but.

00:06:30 Cindy

We have some tips, of course. To be effective. The number one rule is you always have to face us #1 pretty much if we don't see you.

00:06:41 Cindy

We don't hear you.

00:06:43 Cindy

So anyone who thinks they can start and it looks like somebody is hearing you and you're communicating, then you start walking away and you're still talking or doing something.

00:06:52 Cindy

We're likely missing half of what's being said, so number one is face us. Saying our name or touching us usually helps because it kind of clicks us in to pay attention, signals our brain that someone is speaking to us. So if you know the person's name, it's always great to start a sentence.

00:07:11 Cindy

Would that slow the speech down somewhat for easier speech reading those who are trained?

00:07:17 Cindy

Or typically when you do lose your hearing, you do pick up some speech reading quite naturally.

00:07:23 Cindy

That's why we need to see you.

00:07:26 Cindy

But like I said, we do teach that program.

00:07:29 Cindy

There's some real skills involved, so if you slow the speech down somewhat, it becomes easier to speech read.

00:07:36 Cindy

We you may have.

00:07:37 Cindy

To speak louder, we ask that you don't shout.

00:07:40 Cindy

Not only is it embarrassing, but it distorts the sound and makes it harder to hear.

00:07:47 Cindy

Actually people, when they shout, it also changes the the mouth, so it makes it more challenging to figure the word out too 'cause it changes.

00:07:55 Cindy

The look the nearer you are.

00:07:57 Cindy

The clearer.

00:07:58 Cindy

So the closer you come, within six feet, it's easier to hear you if all out spells, pen and paper do work, if you really can't get the message, and particularly people with hearing us tend to not understand numbers well because they can sound the same 13.

00:08:19 Cindy

Then 30 sound the same, look the same.

00:08:22 Cindy

So sometimes just writing those things out a phone number or something you need to give to someone is is really helpful too.

00:08:30 Cindy

And there are some great apps now.

00:08:34 Cindy

Technology is finally catching up and helping us.

00:08:38 Cindy

But there are some great apps just like this we're using on our zoom call right now.

00:08:44 Cindy

We see the captioning at the bottom.

00:08:46 Cindy

It's artificial intelligence, but some of our apps do translate.

00:08:51 Cindy

A spoken word, and it can be fairly accurate.

00:08:56 Cindy

So if all else fails, ask them if they have the app or use one yourself.

00:09:00 Cindy

They're really easy to download and they're easy to have on your phone, and they're always handy then.

00:09:07 Teresa

That's great.

00:09:07 Teresa

I like the technology is starting to become more helpful.

00:09:10 Teresa

Is the CHHA large organization with lots of branches?

00:09:16 Cindy

So the Canadian heart of Hearing Association is a national organization based in Ottawa.

00:09:22 Cindy

That's where our parent company is and we have variety of different organisations across Canada.

00:09:28 Cindy

I believe we only have though, I think about 10.

00:09:33 Cindy

Branches or chapters of the organization.

00:09:37 Cindy

And not all of our branches have offices like we do here in Edmonton, where we have a full office and staff that you can come into and offer programs.

00:09:49 Cindy

Some are voluntarily run out of people homes still out of just meeting once a month or but in Alberta we are the only branch.

00:09:58 Cindy

It does have an office.

00:10:00 Cindy

Sadly, so we do service up to red deer and north.

00:10:04 Cindy

There is a Calgary branch as.

00:10:06 Cindy

Well, but they.

00:10:07 Cindy

Do not have an office, but they do have an A board that you can contact and whatnot.

00:10:11 Cindy

But yes, there's branches all over Canada.

00:10:13 Teresa

What is an interesting fact about Canadian hard of hearing association Edmonton branch that everyone should know.

00:10:21 Cindy

Well, I think.

00:10:24 Cindy

Everyone should know that CHHA Edmonton or CHHA is the number one disability.

00:10:32 Cindy

Hearing loss is the number one disability in Canada, and I don't think a lot of people recognize those numbers.

00:10:40 Cindy

We have more than 3,000,000 Canadians with hearing loss and in Edmonton alone we have over 100,000 people who are hard of hearing.

00:10:51 Cindy

And I think.

00:10:52 Cindy

People don't recognize that that number is so large.

00:10:55 Cindy

And another thing people should know is that our service is really open to everybody, is open to all those who have hearing loss as well as their communication partners.

00:11:09 Cindy

Whoever in their life is having just as much trouble dealing or living with someone with a hearing loss 'cause it really isn't easy when you can't communicate easily.

00:11:20 Cindy

So we're open to everybody, to the public.

00:11:23 Cindy

You don't actually have to become a member too.

00:11:26 Cindy

To take any of our courses.

00:11:29 Cindy

Or to come to.

00:11:30 Cindy

Any of our workshops, but something people really don't.

00:11:32 Cindy

Know, you know.

00:11:33 Cindy

You think you have to be a closed member or you have to join.

00:11:35 Cindy

You do not.

00:11:36 Cindy

We're open to the public here and there's no cost.

00:11:40 Cindy

There's a cost to some of the programs we do offer, but there's no cost to just come to a workshop or just to see what we're about or to ask for advice.

00:11:51 Cindy

I think a really another.

00:11:52 Cindy

Interesting fact about us is that we are not funded by any government source.

00:11:59 Cindy

So we really only exist here by our fundraising and donations.

00:12:06 Cindy

And some of the project grants that.

00:12:08 Cindy

We do receive, but we we.

00:12:09 Cindy

Don't get an annual or, you know we're not funded by any.

00:12:13 Cindy

Kind of government body that.

00:12:15 Cindy

Keeps us here.

00:12:16 Cindy

This is all driven by people who want it to exist.

00:12:21 Teresa

Wow, that's fascinating.

00:12:22 Teresa

I'm kind of floored by that, actually.

00:12:25 Cindy

We- probably.

00:12:27 Cindy

Are one of the only few little organisations that.

00:12:29 Cindy

Do run like that, but.

00:12:31 Cindy

We we don't have any regular funding body.

00:12:34 Teresa

you mentioned membership.

00:12:35 Teresa

Is there a membership fee and what type of membership can people look at joining?

00:12:40 Cindy

So there is a membership fee. It's very cheap. It's $15 a year.

00:12:47 Cindy

And that gets you all the information newsletters.

00:12:52 Cindy

Now we recommend people pay $45.00 a year and become part of the national - national dues are $30 a year and you get weekly.

00:13:02 Cindy

Information sent out to you about new technology, what's happening across Canada, what's happening in advocacy?

00:13:08 Cindy

Just a whole support system that way on a weekly basis.

00:13:14 Cindy

And just being able to know what's going on.

00:13:17 Cindy

We have national conferences, so it's really worth the money plus that.

00:13:22 Cindy

$45.00 really helps again support our organization and lends your support to us.

00:13:31 Cindy

The more people that are fighting for needs and change out there, the.

00:13:36 Cindy

The the easier the job becomes.

00:13:39 Teresa

Can you tell our listeners how to get ahold of you if they want more information?

00:13:44 Cindy

Absolutely. There's several ways. Actually you can reach us at our phone number, which is 780-428-6622.

00:13:58 Cindy

Or our e-mail. info@chha-ed.com 

00:14:03 Cindy

 or our website which is almost the same.

00:14:13 Cindy

www.chha-ed.com 

00:14:22 Teresa

Is there anything else you want our listeners to know about your organization?

00:14:26 Cindy

You know, I just would like.

00:14:28 Cindy

The listeners to really know.

00:14:29 Cindy

That we are here for you.

00:14:32 Cindy

As I said, I've been doing this a long time.

00:14:35 Cindy

I've been involved with many different cases.

00:14:38 Cindy

Lots of changes happened, but there is still lots of change that needs to happen.

00:14:45 Cindy

We need people to want to help us, to want to make change so it's easier for them to live 'cause we know it's not easy.

00:14:53 Cindy

Really, in society, when you can't hear well, participation becomes a challenge, isolation and depression becomes a reality, and we really don't want that to happen.

00:15:05 Cindy

But we really know when we work together and make some change that we can get over those issues.

00:15:10 Cindy

So if you're feeling like that to.

00:15:12 Cindy

You if you feel like.

00:15:13 Cindy

You know, I just don't want to participate anymore.

00:15:16 Cindy

I can't hear it anymore.

00:15:18 Cindy

Then you need to reach out and we need to find solutions because there are some and we need to let our government know that this is a real issue.

00:15:28 Cindy

And with our senior population.

00:15:30 Cindy

Increasing and every second person over the age of 60 experiencing some degree of hearing loss.

00:15:39 Cindy

They need to take this very seriously.

00:15:42 Cindy

You know, we need to make some changes.

00:15:44 Cindy

There's still a lot of changes out in society that need to.

00:15:46 Cindy

Happen for us to be able to.

00:15:48 Cindy

Participate and live fully.

00:15:50 Cindy

So we need them, we need the the Members, we need the people who want to make some change or those who need some help.

00:15:58 Cindy

We're here for you.

00:15:59 Teresa

If you could ask for anything from VAD to help you out, what would that be?

00:16:04 Cindy

I guess just the promotion that we are here, that we exist.

00:16:09 Cindy

That you know.

00:16:10 Cindy

This is where you should go.

00:16:12 Cindy

This is what.

00:16:13 Cindy

Who can help you?

00:16:15 Cindy

We just need our name to be out there for some reason.

00:16:19 Cindy

You know, we just.

00:16:21 Cindy

People don't know we exist.

00:16:22 Cindy

They find us by chance.

00:16:24 Cindy

And they're just like, how come?

00:16:25 Cindy

I didn't know.

00:16:26 Cindy

But we need.

00:16:27 Cindy

All the the agencies around to know that we're here too.

00:16:31 Cindy

So I appreciate you being able to, you know, do this and and give us a little bit of promotion to.

00:16:36 Cindy

Know that we're out there for people.

00:16:38 Teresa

And we really like being able to tell our individuals that phone what resources are available.

00:16:44 Teresa

So this is great opportunity.

00:16:46 Teresa

For us as well.

00:16:48 Teresa

So thank you for your time and energy today.

00:16:50 Teresa

Cindy, you're supportive of the community is a value to all.

00:16:54 Teresa

A Canadian hard of hearing association Edmonton branch is an organizational member of VAD and their link to their website can be accessed on our membership list online vadsociety.ca/resources/  

00:17:10 Teresa

Thank you again for joining VAD's podcast.

00:17:13 Teresa

Voice of Albertans with disabilities is across disability nonprofit organization, of and for people with disabilities.

00:17:21 Teresa

We are guided by the principles of accessibility, equity and inclusion, learning about VAD services on our website at vadsociety.ca.

00:17:31 Teresa

Or call 780-488-9088 For more information.

00:17:37 Teresa

If you have a topic you would like to hear more about in a podcast, please e-mail Teresa at vad@vadsociety.ca with your topic ideas, speaker suggestions, or general feedback. Signing off for the day. Together, we hold the power.