In this seventh episode of our Learn About M.E. podcast series, M.E. Specialist Physiotherapists, Gina and Melanie discuss what Physiotherapists need to consider when working with someone with M.E. They share that anyone providing care needs to be fully aware of the condition and the latest guidance on ME/CFS (NICE Guideline Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management [NG206]). Gina and Melanie both completed the free online CPD module on ME/CFS. They found it useful as each question has further information that can deepen understanding of the condition. It was also an easy way to get access to current knowledge of M.E. and to find information, resources and an evidence base.
This podcast highlights that being person-centred and led by the person is even more important with this group of people as they can all present very differently and have completely different personal circumstances. The person is always the expert and physiotherapy can work alongside them. Melanie and Gina both thought this led to an emphasis on listening to each person as support really needs to be personalised to each individual and this may take time to get it right. This may mean being more open and flexible to different approaches than you would normally use as a Physiotherapist. Due to the fluctuations and unpredictability in the condition there may be a need to accept that things may not work and so you need to be able to adapt around the person and their M.E.
Physiotherapists can offer clarification and reassurance to help the person work with their M.E. and identify their own baseline and how they can work with this and not doubt themselves or their condition. They can also extend this support to the important people in the person’s life who may be able to offer insights when the person doesn’t have the energy to engage. These important family and supporters can aid a person to manage their daily activities and priorities more effectively.