#356 -🚶‍➡️[Life Course Series] - Are We Saying the Right Words in the NICU?

In this episode, Dr. Daphna Barbeau speaks with Dr. Paige Terrien Church and Dr. Ashwini Lakshmanan about one of the most delicate yet essential aspects of neonatal care: communication. Drawing on their recent articles, the discussion highlights how the words we choose in the NICU profoundly shape families’ experiences, hopes, and perceptions of their child’s future.

Dr. Church addresses the discomfort many clinicians feel when discussing disability, emphasizing how entrenched medical training and ableism can unintentionally bias conversations. She introduces the concepts of microethics—the subtle, everyday interactions between families and providers—and how language choices like “risk” versus “possibility” can dramatically shift tone and meaning. The group explores how framing outcomes around abilities and opportunities, rather than limitations, helps families make sense of uncertainty with dignity and clarity.

Dr. Lakshmanan’s qualitative work brings in the voices of parents, revealing how uncertainty permeates the NICU journey and affects bonding, mental health, and confidence. Together, the guests highlight strategies for building trust, addressing parental guilt, and creating systems of support during the transition from hospital to home.

This episode challenges clinicians to pause, examine their own biases, and recognize language as a tool as powerful as any intervention delivered in the NICU.