CdLS Connections

Ep.#17 💜 Family Series: Marci Dunning - Freya's Mother

• Canadian CdLS Foundation • Episode 17

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0:00 | 1:49:36

In this episode of the CdLS Connections Podcast, we sit down with Marci Dunning—mom to Freya and creator of Freya’s Lucky Arm—for an honest and heartfelt conversation about parenting, resilience, and showing up authentically.
Marci shares her journey raising Freya, the power of confidence and advocacy, and what it means to live openly and unapologetically in the rare disease community. Her story is a reminder of the strength, love, and connection that brings families together.


This episode also available on YouTube: https://youtu.be/2xhz_t-zj0A

Follow Marci & Freya: Instagram, TikTok & Facebook: @freyasluckyarm
YouTube: Freya’s Lucky Arm

#CdLS #RareDisease #ParentingJourney #Advocacy #FreyaLuckyArm

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Thanks for listening to CdLS Connections brought to you by the Canadian CdLS Foundation.

Stay connected with our community at www.canadiancdlsfoundation.com and follow us on social media for more stories, support and updates. Together, we're building awareness and connection for everyone affected by Cornelia de Lange Syndrome.

(c) Canadian CdLS Foundation. All Rights Reserved.

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