From The Heart: The HeartKids Podcast
Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease.
We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us living with CoHD.
Your hosts are Rachael Knowles, a young adult with CoHD, and Sami Glastonbury, a mother of two children with CoHD.
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for all people impacted by CoHD.
From The Heart: The HeartKids Podcast
RHD and Better Community Care with Tanika Parker and Genavie Tabuai
In this special episode for Reconciliation Week, Angela Webb, HeartKids’ Aboriginal and Torres Strait Islander Community Engagement Manager, has a yarn with Tanika Parker, RHD Nurse Navigator, and Genavie Tabuai, Health Worker Coordinator for Maternal, Child and Family Health Programs, both from Torres and Cape Hospital and Health Service.
Tanika and Genavie speak about the realities of delivering care across remote communities in Far North Queensland, with a strong focus on preventing and managing rheumatic heart disease (RHD). They discuss the importance of culturally safe care, early intervention, and empowering health workers to lead conversations in their own communities.
They share what’s working, like one-on-one health promotion, outreach programs, and practical support for women who need to travel off Country to access care. They also speak openly about the gaps that still exist, including limited access to dental care under travel policies, and the need for better coordination across services.
This episode offers an honest look at the day-to-day work of responding to RHD and other health issues in community. It shows how real change comes from listening, working alongside mob, and making space for community-led solutions.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.
For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
COPYRIGHT
All content on this podcast is subject to copyright and may not be reproduced, repurposed, republished, or copied, in any form, without permission.
Repurposing or republishing content from this podcast, even with credit and acknowledgement to the creators, host, and guest, does not provide an exemption to this copyright.
CREDITS
Host: Angela Webb
Guests: Tanika Parker and Genavie Tabuai
Producer: Becky Oakley