From The Heart: The HeartKids Podcast
Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease.
We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us living with CoHD.
Your hosts are Rachael Knowles, a young adult with CoHD, and Sami Glastonbury, a mother of two children with CoHD.
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for all people impacted by CoHD.
From The Heart: The HeartKids Podcast
Fontan Surgery, ANZFAC and Lived Experience with Jonathan Mackley
In this episode of From the Heart, Jonathan Mackley shares his journey from being born with a complex heart condition and undergoing one of the earliest Fontan surgeries, to becoming a strong voice in the HeartKids community.
Jonathan talks about growing up in the 70s and 80s, the shift from limited supports to today’s networks, and how connection with others living with congenital heart disease transformed his perspective.
He reflects on advocacy, co-founding the Australian and New Zealand Fontan Community, and why lived experience is so vital in shaping research, healthcare, and everyday choice.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.
For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
COPYRIGHT
All content on this podcast is subject to copyright and may not be reproduced, repurposed, republished, or copied, in any form, without permission.
Repurposing or republishing content from this podcast, even with credit and acknowledgement to the creators, host, and guest, does not provide an exemption to this copyright.