100 Episodes of From the Heart: Stories, Lessons and What’s Next

This special 100th episode brings Sammy and Rachel together to revisit the moments, people and insights that have defined From the Heart. They explore the power of shared stories, the evolving experiences of heart parents and heart adults, and how community connection continues to shape the podcast. A warm, open conversation that celebrates the stories that brought us here — and those still to come.

HEARTKIDS

From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.

For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au

COPYRIGHT

All content on this podcast is subject to copyright and may not be reproduced, repurposed, republished, or copied, in any form, without permission.

Repurposing or republishing content from this podcast, even with credit and acknowledgement to the creators, host, and guest, does not provide an exemption to this copyright.

CREDITS
Hosts and Guests: Rachel Knowles & Sami Glastonbury
Producer: Becky Oakley

Transcript

Sami: Hi everyone, it's Sami with just a quick note before we begin, as we reach this milestone of a hundred episodes of our beautiful podcast, I want to acknowledge how much these conversations have meant to so many people. We've had nearly 20,000 listens from parents, teens, heart adults, and healthcare teams right across the globe. Unfortunately, funding for this podcast is coming to an end, and we're seeking your support. Please help us make this continue. If you or your business feel connected to what this series has to offer, we'd love to talk to you about sponsorship and support. You can reach out anytime through, our website, HeartKids.org au or reach out to me direct.

Thank you. Bye.

Before we begin, we would like to acknowledge the traditional owners of the land of which we record. We pay our respects to elders past and present who are part of the world's oldest continuing culture, and the first storytellers. We acknowledge the importance of supporting health for all peoples now and in the future.

Sami: Hi, I'm Sami. I'm joining from Kaurna Country. 

Rach: And I'm Rachel. I'm on Gamaragal Country, and this episode is a really special one. It's our 100th episode of From the Heart, HeartKids Podcast. Woo hoo. So exciting. Over the years, we've shared so many powerful stories from parents and young people and health professionals across Australia, all connected by childhood-onset heart disease, 

Sami: And today it's just the two of us.

So just you and me, Rach, turning the mics around and reflecting on what this journey has meant, what we've learned, who we've spoken to, and I suppose now it's about what's next. 

Rach: That's it. But I think a good place to start, um, our beginnings. 

Sami: I know, so we started, or the podcast was started in December, 2021, and then this December we're turning four.

Rach: Our baby is growing up. I'm so excited, but we wanna, I suppose, take this episode to have a little bit of a reflection of, why it all began, what the purpose was, and kind of the community that we've built from it. So I think taking it back, um, to that, that Action Plan and that team, you know, the, the intention was very much to bring together stories of our community and information direct from, um, our community, from peers, from healthcare professionals, and from Allied Health.

And, and we've done that. I think it's fair to say we've done it quite well. 

Sami: We have, we have Rach considering that you, my friend, are a trained professional as a journalist, me over here as Mum. But also too, like you said, being established by the HeartKids Action Plan team, the foresight in understanding that there was such a need. And I think we've, we've both experienced it. We, we get the feedback around different people hearing our episodes and what it's meant to them. And I think that's a lot too, to the team to recognising who our audience actually wants to hear from. We are just the great, we just get to go along for the ride.

Rach: That's the thing. And I think taking it back, you know. I came on board in 2020, 2021 when it first came up, or, uh, came up as an opportunity. And, um, you know, prior to that I hadn't had much engagement with HeartKids. Obviously I knew the, knew the organisation, I knew the incredible work that they had done and I wanted to be more involved.

And there was a bit of a call out to, to share your story. I did that, and then a little bit later, got the, got the email, got the tap on the shoulder to be like, look, we're thinking about doing a podcast. How would you feel about that? How would you feel about, you know, taking the mic and as you said, I'm a journalist, but I feel like it's very different when you are doing it within your own community and with stories that are so close to your heart.

But you know, I have had no regrets. I've loved every minute of it, but I wanna know your journey. How did you come on board with the podcast and how is it feeling, you know, four years in now? 

Sami: Yeah. Well for me, I'm only three years in. You are in four years. I'm three years. Mm-hmm. And I think probably similar to you.

Um, it was the team reaching out about me sharing my story as a heart mum. And for me, Rach, it had been quite some time since I shared my story. Like obviously now Frank's 11. But at the time, well, obviously three years ago, I was like, oh, I shared my story quite a lot in the beginning, especially as I sat on the board, um, and did a lot of volunteering and those sorts of things.

So to actually sit down and, like with you, and actually share my story - like you interviewed me. Um, so it is a full circle moment for us. And then I just remember the phone ringing. I don't even think it was that long. I think it was a couple of weeks later saying, Hey, um, we're just wondering, would you like to co-host with Rachel?

And I was like, what? She's a trained professional. I'm not. And you know, I joke all the time about how, you know, I feel like we don't get to do this together. You are recording in different blocks to when I'm recording, but obviously we see the plan and what it looks like over the year and I can't wait.

Some of your episodes I'm like, oh, I can't wait to listen to that one. And then there's other times where I'm like, hang on a minute guys. I feel like imposter syndrome comes in and I have to like, can someone give me a pep talk? So it's interesting just to hear you share, that even though you're a journalist - so you, you’re telling me that you get nervous too? 

Rach: Oh yeah. 

Sami: Is that what's going on here?

Rach: Yeah, totally. Totally. Every time. And I think it's, um, you know, I think something that I have learned a lot in doing this work is that, you know, we have so much of a spectrum of lived experience in every experience. 

Sami: So true.

Rach: So different, you know. I'm very aware talking to people how different our situations are and, you know, making space for the differences and guiding people on their story and making them feel comfortable to tell their story. But also, and I imagine you'll find this as well, when they're sharing, finding so much of myself and my story in theirs and having those moments together in the podcast where they're sharing and being like, that's a really specific thing you've said, but I know exactly what that feels like and it must feel like this, and it's been a really beautiful journey. But yeah, every time I get an episode plan, every time I, you know, shame on me. I'll always be a journalist, but whenever I Google people's names and do my little research, I 100% always get imposter syndrome.

Always get nervous, but I think the nerves are always a sign of how serious we take the work 

Sami: Well, that's, yeah, it's refreshing to hear you say that as a professional. 'cause sometimes you wonder like, do you flick a switch? But I don't think you can in this, and I know that I very much, um, I hear what you're saying, when people are sharing and we hold that space, I think also too, like I was saying, we're on the ride, but, we are a passenger too. We are like, this is about sharing and leaning into their experience because we know, like you've just said, it's gonna connect with someone. There's someone else feeling really alone or feeling like, oh, I've been wanting to ask that question. Or, you know, they're interviewing such and such, I've always wanted, if I was in front of a speech pathologist or a cardiologist or a researcher, I've always wanted to ask this question. 

So I suppose that's a really good lead in to go, what is one of those episodes that really sticks out in your mind? That was a really defining moment of wow.

Rach: Yeah, there has been so many. I think, I have tried to think knowing this episode was coming and kind of filing through all the stories and all the people that I've met, there has been so many learnings for me and like I've learned so much about, I suppose the resilience of our community. I think that we are chronic overachievers and I love that.

Like we are, every person that I've met has just this insane story. Um, I've learned so much and I have been able to apply so much of the learning to my own family, like talking to heart parents like yourself, and understanding that journey as a parent and taking that into my relationship with my parents and understanding them more on the journey they went on.

Uh, also very much selfishly taking any opportunity to ask a health professional questions. I've learned so much about my body that I didn't know before, but yeah. 

Sami: Really? 

Rach: Yeah, it's been massive and I think, you know, I could never pick out one person and I could never pick out one story because I find myself leaving the booth every time we do this.

I get nervous beforehand and I feel a little bit like, oh, okay, I know that we're gonna talk about stuff that is heavy and hard and is very close to me, but I always leave the booth feeling really like revitalized and feeling really proud and really connected and very like, comfortable in who I am and my identity.

And it's because of that connection. Um, but someone who I think, I met through HeartKids Podcast and who has like, been in my life since and just been such a beautiful, like heart mum for me as a heart adult herself is Deb McKellan. I love Deb so much. 

Sami: Yeah. 

Rach: I adore her. I went to Melbourne and we had dinner together and um, we catch up whenever we can schedule.

Yeah, and she's just been, you know, going through it. When she did in the time that she grew, like taking her learnings and understanding that, you know, if I wanna be an advocate for our community, I have to acknowledge the people that came before me and all the work that they did. And Deb's just very much a leader for me and somebody that I really admire.

So it's been a been a lot. Yeah. How about you? How have you felt about it?

Sami: Yeah, well said. Before you skip over to me. I just wanna, I love the fact that it's been on a, it's been a real journey and learning experience for you too. Because I think it is, we're, we're constantly learning. Like you said, every time we share or we hear people sharing their stories, I think it just opens up another piece inside of us.

But I really like how you referred to how we're overachievers and I think I'm gonna kind of bring the parents into this too. Um, because definitely you guys are marvels. Like I look at so many little Heart Kids and I just think, oh no, you're gonna change the world. You already have, like, here you are stomping around, like it's beautiful, just like this little baby of ours turning four.

Um, and I think also too, I need to make sure that we have a shout out that obviously a part of this journey we had Sam Olberg and Tahnee Jash, who hosted some of other brilliant episodes. And sorry, we haven't got them into the studio tonight, but there's so many things that they shared and different journeys along the way.

But yeah, I love the fact that it's always a journey and a learning experience for you. Um, so for me, I think from favourite episodes, I'm like you, where do I start? There's so many that I go ... You know, speaking to a bereaved dad was really insightful because seeing it from a different lens.

But in saying that, now I have that lens. So now when I think about things I now think about from a dad's lens. I think Laura Yates, geneticist, that blew my mind. I thought to myself, this is the coolest. I'm talking to someone who is not only dedicating her life to a medical profession that, you know, not everyone goes into, it's not the common sort of trajectory that you see with people, but then the fact that she's taken a specific keen interest into our community, I'm sure Rach you look at that and you're like, yeah. 

Rach: Mm-hmm. 

Sami: And then there's the episodes that you're in awe of. I was saying to the team here, I did the episode with Dr. Prem, so paediatric cardiothoracic surgeon in Brisbane. And he was in his scrubs and we're chatting and he's just had this full-blown day.

He's operated on two babies. He's saved lives. He's done his ICU rounds, and he's taking the time and he is sitting and he's chatting with me when he could be home with his kids and his wife, but he was just so, you know, he was just so happy for the opportunity to connect on a different level. And that was just, I remember I was so pumped.

I like to text one of my girlfriends, it was 9:30 at night when I finished the recording and was like, oh my God, are you up? This was phenomenal. This guy's amazing. So it's almost like they become sort of little superstars, but in our community, they are. And I'm sure there's a broader community there outside of our little world going, sorry, like that's cool for you. 

But then there's also too the episodes that like you are saying, Rach, and I'd love to know which ones have really moved you. Mine was talking to Danielle Green. Yeah. Um. And with losing her two little ones and talk about that level of resilience and game changers, she's a game changer.

We're probably gonna see laws and legislations change across Australia because of the absolute fight and love within her. To make sure that no one else feels that pain. And, you know, sitting here talking, even just mentioning it to you, I'm covered in goosebumps. Like, it just, it takes you on a whole, like a cellular level.

Rach: Yeah, 

Sami: So what's, what's one that really got to you? 

Rach: Oh gosh. There've been, there've been a lot. I think ones that have … probably the ones that have gotten me the most I think have been the ones, um, where I think, you know, growing up for me, like I've always had a very strong strength mindset.

And haven't necessarily … as I said in my own podcast, like had a very strong strength mindset, haven't necessarily had the capacity or the space to talk about the grief that came with the experiences. And unpacking that now in, you know, my late twenties has been a really difficult journey, but I have, am very, very privileged to interview a lot of like young people, a lot of young people who are starting university or finishing university who, uh, so many of which are going into medicine despite the trauma that may have, they've experienced in a system like that. And something that I'm so aware of in every young person that I speak to from our community, is that that kind of mindset that I grew up with, where it's like, look, this is the plate that you get served.

You do the best that you can with what you got is still there. And it's developed in such a way in the next generation where they are really able to balance it better than I ever did with the grief. There's like this holistic kind of attitude to who we are that I didn't experience as a kid.

And I can see it's like so healing for me to talk to kids and be like, well, you know, like that was really, transitioning to adult care was really hard for you. How did you go through that? And, you know, almost everyone that I talked to who is under the age of, you know, 25, has had a really pleasant experience transitioning across and who has taken up that opportunity for themselves and has felt, you know, really empowered in their identity.

Sami: Empowered. Yeah. 

Rach: And I think that's something that for me, I, when I think about sharing stories and building community and advocating, like you said, you know, being change makers in this space is, sharing stories actually enables that kind of shame to lift and for young people to have both of those parts of who they are.

So for me, like I was trying to think about all the people and I just, for the life of me, the thing that stays with me most is how, yeah, the next generation on from me is already so different and is already so like tapped into, you know, this is something that affects us and our families, but we are proud at the same time as being sad about it.

Like it's, it's a really beautiful kind of resilience that I haven't, I haven't seen before. You know, I am not familiar with for myself. 

Sami: Yeah, it's interesting actually that you touch on that because it is, um, you speak to someone who's a heart adult and you know, they're older, they're older than yourself, like they might be in their late forties or fifties.

It's really interesting that you say that because it's so true what you're saying. You speak to them and their experience and it's almost like it didn't happen. And then you speak to, like you said, you know, sort of people have gone through the system and you think of now and you only just have to look at how far we've come with, um, you know, with patient-centred care, with information like … I know I sit here, I'm so proud. Like here we are on a podcast, being able to talk about this and communicate this with a broader community and anyone can tap in at any time. And there's a website and there's a helpline. Like that's phenomenal. That wasn't around for your mum. And dad. It wasn't around for me.

Yeah. And you see how far we've come, and I suppose that also too is a testament to what you're saying is. They're not defined by it anymore. 

Rach: Yeah. 

Sami: They, they, they have their grieving process, but it doesn't define them and their future. 

Rach: I would be, I'd be really interested - not to put you on the spot - but I think this has really made me think so differently about the relationship that I have with my parents and what they went through.

How, I suppose on the, on the other side, how has it made you feel about, you know, your bub Frank and the journey that you went through and the reflections that, that you've had through the podcast on your own experience and what have you've learned? 

Sami: I think the thing that I probably take away is there's other ways that you can be supported.

And I think at the time, I know I felt really alone and there would've been, there'll be lots of people listening saying, yeah, that diagnosis is just so heavy. And you start the grieving processes as a mum, you know, for the good majority of us that are diagnosed in utero. The grieving process starts immediately, but then it lifts when your baby comes because here's this joy and this thing that you'll do anything for, the love and the bond is just beyond measure.

But then you have to kind of limp through this phase of leaning into other people on guidance and support around that clinical side of things. That, the thing that I look back now, Rach, is there were other ways that I could have supported myself or there are other ways now that I can see that our community can be supported.

And one episode that kind of was that little moment for me was interviewing a grandmother. And just what she did for her daughter. And it was just the really simple things. And even just having a conversation with Curtis McGrath about putting the kettle on, giving everyone a job.

And it doesn't matter what that job looks like. People wanna help, but they don't know how. And I think we are so into it, and because we are little bravehearts or brave mums and dads with our braveheart babies, we put that armour on and shrug through that. We don't also ask for support or we don't know what that support looks like because it's beyond even our thinking.

So I think at sometimes the thing that I take away, Rach now is it's the little things. It's all just the little things. It's you know, it could be a meal. It could be saying, hey, I'm just gonna wheel your bins in. Like, you've got enough on your plate. I'm just gonna wheel your bins in, and not even probably even saying it, you know, that they're going back and forth to hospital and it's all those kind of little things that I took away from that episode and went, yeah, you're right. Yeah, you, you're right. It's the pieces you can't put a value on. 

Rach: Yeah. That's it. Because you know, how do you delegate when you're in survival mode, when you've just gotta put your head down and get through? So it's, yeah, it's the like making you a meal, put your washing on, put the washing out, drive you here if you need to.

Sami: Yeah. Pick up another kid. 

Rach: Yeah. 

Sami: God, that's, I can tell you now wrangling two other ones and you know, and now a subsequent heart kid. I suppose if we then think about, hmm, the community side and reflect around that, like is there, I think the feedback that we are getting around this podcast too, Rach, is um, people are just feeling heard.

They're feeling heard. They're feeling seen. Not every episode’s for everyone, but I feel like you just said there's a little piece in it somewhere in the episode that you just kind of pop under your hat or pop in your pocket. And think to yourself, oh yeah, that will come in handy. That will come in handy sometime.

Rach: Mm-hmm. I think that's it. And I think what's been super valuable, you know, like there's just like an onslaught of information about what is and isn't, right. And it's been, it's so difficult to navigate that whether you, you know, you're a heart parent or a heart kid, or wherever you may be.

Um, and I've really have loved being able to have health professionals on the podcast and having all of that stuff that, you know, cardiologists appointments are so expensive and I might not be at the point where I need to know about this particular thing. But having that introduction of information is so like, it's just makes me, it makes me feel very safe.

It makes me feel very empowered. It's been really great looking at, you know. Ever since I was little, like conversations about family planning have really been around me, but being able to have a podcast where we've sat down and been like, okay, what are the things you need to think about? What does it look like?

Yeah, what, what does that practically look like for somebody who, what questions do we need to have? What are the ways? And even if it's the top level, which 95% of the time in the podcast it is, it's very top level. This is kind of the guidelines, but it's obviously subjective as to what your condition may be.

That has been really empowering for me to understand, okay, it's not this. Big cloud question mark around my health anymore. Like I actually, I know names of specialists now. I know information. I can find this information. It kind of opens that door that is just so big in your brain when you have to take on looking after yourself.

Sami: Yeah. It's almost like you're on the path, but someone switches the light on. You can actually see. You're navigating now you're actually navigating instead of flying blind. Pardon all the puns. But, um, I know that's what it almost feels like to me, even just having the conversations now.

Uh, like I look back and I reflect and I go, it's, it's hard because I go back and I go. Geez, I wish that I had that, or I wish I knew that, or I wish I knew. But then at the same time, it's really quickly overridden by me thinking I'm so proud. I'm so proud that this is available. I'm so proud that you know, my heart kid can grow up and listen to podcasts from you as a heart adult, you know what I mean? Like I'm, now, it's very much flipped in my mind, but there are like, there is a little moment sometimes where I'm like, oh, that lightbulb going on then would've been really handy. But also too, we don't know what we don't know. And I think that's the thing is the other reason for this podcast is, you know, we get people who call the helpline and they've just got a diagnosis.

And this I think is a really nice subtle introduction to pick and choose, almost go through a catalogue or go onto our website, go through our fact sheets, pick out the ones you like, or you're ready to dive into the ones you're not. And I think, like you said, we're so mindful, you and I are of, of that.

We're so mindful then we're in the moment and we're sharing and holding that space for that person. We're so mindful that it's so deep for them, and because we've been there, we know that depth. It's hard to sort of, um, it's, it's funny just reflecting on this now with you. But again, that's where we are, aren't we?

We're a hundred in. Who would've thought? Like it's, it's crazy. And I suppose now we just need to look ahead and go, well, what are the next hundred gonna look like? Do you, do you have any thoughts on what's next? 

Rach: Ah. I think that's the thing, isn't it? Where I'm like, I'm so aware though that like, there are like so many of our community, so the stories are kind of endless, which are, they're so -

Sami: They're, they're endless. 

Rach: Yeah. And I just love, like, I've been really, really lucky to do like some webinars with HeartKids, with like young people and the questions that they ask, I'm like, well, you could, you could write podcasts for like seven years just off the questions they have and the appetite they have for information.

Like, I think for me, I'm really, really excited about listening to like, yeah, that next generation, like what are the questions that they have? How do they, how do we like answer those questions? What does, you know, what does mental health look like or mental health care look like and trauma informed care look like for our community?

How do we better support? You know, I'm really interested in, in how do we better support, regional rural healthcare and communities and families that live out there, and what are the ways that we can link people into services that are there to support them, make them feel comfortable. And, you know, as you said before, there's always a little bit of grief when you do this stuff.

But I think for me, whenever I do the interview, I always think of, you know, the first time that I got to tell my story and the person that I told it to, and I always think whenever I'm interviewing someone, I might be the only person that they've told this story to. I might be the only person who's able to sit with them and say, yeah, that's really big and that's massive and I'm really proud of you. And how did you feel about that? And that's like, I'm just so excited to keep doing that for as many of us as we can get. 

Sami: I couldn't agree more Rach. And I think that's a thing. And I'm just gonna actually hold on that is when they are sharing, sometimes it is the first, or sometimes it's a first and a long time.

I know when I shared my story with you, as I said, it had been such a long time being, years since I sort of took myself back there and really relived those moments. And I think that's a thing for our, like the audience to understand is, We've got an idea of the, you know, the story that's gonna be shared. But when we actually sit. We genuinely just talk. 

Rach: Yeah. 

Sami: And I think it's really beautiful that we can, and it's lovely that our guests come on and they genuinely feel that it is a safe space. And I think they do all leave, every single one that I know of has left and gone, yeah, I was really nervous, but that actually was really a really beautiful experience and I'm actually so glad because if someone hears this or it connects with someone, and I think that kind of again, just, you know, just amplifies how important this podcast is. It's more than just talking to different people, different stories, different backgrounds.

It's the fact, like you said earlier, it's that community and making sure people feel seen and heard. 

Rach: And I think, I dunno if you've gotten this feedback where I feel like every single person after they do the podcast, they go, there was so much more I could have said, or there was so much more. 

Sami: Yes.

Rach: And it's like we've gone from like, not sure, bit nervous, unsure to them being like, I could talk for ages. And I love that 'cause I'm like. There you go. Like you've got something to say, you know? 

Sami: You've got something to say and we're here. 

Rach: Exactly. And like we've, yeah. We've started the conversation that actually you're really passionate about.

And I hope they keep talking beyond the podcast. Like I hope that, yeah, we find more ways to get into the media and we get our stories heard a lot more because, yeah. I'm just in awe of it so much. 

Sami: Yeah. And it's so, and I think it's so prevalent. It's so prevalent. And I think there's a lot of heart babies and heart families going around in a little invisible cape.

Some just get through. 

Rach: Yeah. 

Sami: And then they wanna come back and they don't wanna think about it. Yeah. And they wanna flick the switch and start life again. It's like they reset. But it's nice to know that. Either way, if when they're ready, we are here. 

Rach: Yeah. 

Sami: We are here for them to tune into. We are here for them to reach out.

You know, we've got events across Australia where you can come together as a community. You know, we've got Heroes for HeartKids. We've got Two Feet and A Heartbeat. We've got Sweethearts. There's so many ways. Like the teen camps. There's so many things that need to be elevated. So that we, we drive for more. Action and support. 

Rach: I think that's a like massive point that you said, you know, I think there's, there can sometimes be a lot of guilt if you are not engaging all the time with a community that supported you, you know? But this is a very kind of interesting experience and you don't owe engagement all the time. You know, it's a heavy thing to live with. So you can come in and out whenever you feel like you can or engage when you want to or when you need something. And we're always gonna be here. The stories will always be here. HeartKids will always be there, with the door open whenever somebody is able to.

Sami: Absolutely, absolutely. So I suppose now it's around looking ahead and getting anyone who's listening in this hundredth - you know, we need, we needed a few streamers and a few like party poppers. 

Rach: Yeah, we should've worn hats. 

Sami: Yeah, we should've worn hats. Like, something's wrong. Come on Rach. We should have coordinated. But you've worked today. I've worked, you know what I mean? We haven't quite coordinated. 

Rach: Busy girls. Busy girls. 

Sami: We are busy girls changing the world. But I think now it's, you know, if anyone's listening, you know, drop us an email, comment, you know, send us a DM on our socials.

Do whatever you can. Reach out to us. We'd love to hear feedback. We wanna know if there's something that you want us to do. If, you know, we wanna evolve with the community, as Rachel's pointed out, clearly today it's all around, you know, my experience is different to the next mum's experience.

Rachel, your experience as an adult, like you said, is different than what you're seeing you know, are coming through the ranks. And we just want people to know that, you know, this is your community. We wanna hear from you. We want ideas and topics that you want us to cover off. And have those really raw and open conversations.

That's it. Well, they have it. I hope everyone's subscribing, sharing this little podcast, getting their friends and family involved because there's something for everyone. So what are your parting thoughts Rach? What do you wanna leave us with on number 100? 

Rach: Number 100. I think if I have learned anything, it's that, pretty tough bunch or to be pretty proud and there is a lot more to come.

A hell of a lot more. 

Sami: I love it. On that, more to come, more to come. Gonna leave with more to come.

Sometimes this podcast talks about some heavy things.

If this brings up anything for you or someone you love, it is important to reach out for support. The HeartKids Helpline provides support and guidance for anyone impacted by CoHD. You can call the helpline on 1800 432 785. To access more information as well as support from HeartKids, visit the website at heartkids.org au.

The information on this podcast is not a substitute for medical advice from your doctor or healthcare team. Always talk to your doctor about matters that affect you or your family's health.