Elijah's Journey: Embracing Identity, Culture, and Confidence as a Young Adult with CHD
From The Heart: The HeartKids Podcast
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From The Heart: The HeartKids Podcast
Elijah's Journey: Embracing Identity, Culture, and Confidence as a Young Adult with CHD
May 15, 2024 Season 3 Episode 12
HeartKids

In this episode of From the Heart, Elijah, a proud Kamilaroi/Wiradjuri man, shares his remarkable journey living with childhood-onset heart disease (CoHD) with our host, Tahnee Jash.

Elijah, now 24, works as an Indigenous Liaison Officer for the Department of Infrastructure in Meanjin (Brisbane). Diagnosed with pulmonary atresia with VSD at birth, Elijah has faced numerous challenges and undergone several surgeries, including a significant operation two years ago to replace three leaking valves.

Join us as Elijah discusses the physical and emotional aspects of growing up with a heart condition, his experiences transitioning from pediatric to adult healthcare, and the critical support systems that helped him along the way. He also shares his unique perspective on health, his strong connection to his Aboriginal heritage, and his aspirations to be a leader and advocate for Aboriginal people.

This episode showcases resilience, the importance of self-care and the power of family support.

Episode Artwork Elijah's Journey: Embracing Identity, Culture, and Confidence as a Young Adult with CHD 30:38 Episode Artwork Better Care for RHD: Insights from Erin Ferguson at Happy Heart Clinic 37:38 Episode Artwork Resilience & Discovery: Sarah's heart journey 26:58 Episode Artwork Creativity, optimism, and community: CJ's journey with bicuspid aortic valve 15:39 Episode Artwork Amber Adamson - Ask a nurse anything! 38:31 Episode Artwork My heart kid dad journey: From childhood to adulthood - Matt's Story 26:07 Episode Artwork Missing School, and the impact of critical health on education, and social experiences - Megan Gilmour 39:52 Episode Artwork What is Childhood-onset Heart Disease? HeartKids CEO Lesley Jordan takes us through this term 22:41 Episode Artwork 2023 Encore #3: What is Genetic Counselling? Laura Yeates 29:53 Episode Artwork 2023 Encore #2: How Cardiomyopathy Impacted My Family... Matt Nelson's Story 25:56 Episode Artwork 2023 Encore #1: Growing Up With A Heart Condition... Eve's Story 31:10 Episode Artwork Life, footy and supporting the HeartKids community with Jaidyn Stephenson, HeartKids Ambassador 12:11 Episode Artwork High school and life beyond as a HeartKid - Monica's Story 29:05 Episode Artwork Navigating the financial aspects of Childhood Heart Disease with Elle Pendrick 28:25 Episode Artwork My Adult Congenital Heart Disease Diagnosis Journey: Tess' Story 31:38 Episode Artwork Deadly Heart Trek, and Rheumatic Heart Disease: Dr Gavin Wheaton 33:56 Episode Artwork CHD Community and Me: Ellen Mitchell's Story 35:13 Episode Artwork Exercise Physiology and CHD - Fitness for Life: Dr Derek Tran 25:30 Episode Artwork Empowering Health: A Conversation with RN Jayhrani Nicholls on supporting young people with Rheumatic Heart Disease 22:20 Episode Artwork From Heart Transplant to Wheelchair Sport: Ahmad's Incredible Journey 20:51 Episode Artwork Cardiac Surgery Care: May Chan and Bambang Kurnia 27:47 Episode Artwork HeartKid Sibling and Health Care Advocate: Syeda's Story 33:02 Episode Artwork 1800 Helpline: How Can I Be the Support You Need? ... Mel Clarke's Story 26:24 Episode Artwork Paediatric CHD Surgery: Dr Prem Venugopal 42:50 Episode Artwork What is Genetic Counselling? Laura Yeates 29:53