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SuperSurvivor: Beating the Odds with Judy Cage

bindwaves podcast Season 7 Episode 4

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0:00 | 25:42

After a massive stroke left her fighting to walk, talk, and think clearly, Judy Cage refused to accept the limits placed on her recovery. In this inspiring episode, she shares how determination, resilience, and a little “stubbornness” helped her defy the odds—returning to work, writing her book Super Survivor, and mentoring others along the way.
From invisible challenges to powerful breakthroughs, Judy reminds us that recovery doesn’t stop at six months—it’s just the beginning.



Guest Social Media info - @judykimcagetheauthorpage

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judy-cage

that all stroke survivors? you know, You know, I mean, generally they're told that you have you have six months after, after the stroke,

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stroke, um, that you can.

judy-cage

you know,

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know, recovered, or that you have the most neuroplasticity,

judy-cage

after 6 months. Um,

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um, that may be the case, although,

judy-cage

that

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um, that doesn't mean that healing or recovery stops.

judy-cage

Um, I, Things

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things have come back Hi, I'm Brittany and a member of BIND and Brain Injury Survivor. And hi, I'm Carrie, a stroke survivor, and a member of BIND as well, and today we are excited to welcome Judy Cage. Judy is also a stroke survivor and an author and an advocate who has defied staggering medical odds and now helps others after navigate life after trauma. So welcome, Judy.

Bernard

Opinions shared by the guests of the show are their own and do not necessarily represent the views of the hosts bindwaves or the Brain Injury Network. This podcast is for informational purposes only, and it's not a substitute for professional medical advice, the diagnosis or treatment. Always seek the advice of a healthcare provider with any questions you may have regarding a medical condition. Thank you.

judy-cage

Thank you thank you so much.

bindwaves-host

Okay. And, um, if you would just kind of provide a brief overview of your stroke and your recovery journey so far.

judy-cage

Absolutely. Uh, well in, January of of 2019, I

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I had a

judy-cage

a massive hemorrhagic stroke.

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Um,

judy-cage

blood flooded my, the right side of my brain and so it took out the left the left side of my body. Um, I I had, uh, and I'll just go head to toe basically. Um, I I had, uh, double vision. Uh, my left arm fell out of my shoulder socket. Um, I had dropped foot and, uh, left side, entirely. Um, so, and then I and then I had, you know, cognitive issues, speech issues, um, you know, you know, I've lost some. Um, bodily functions, but, but um, I actually, a with the combination of. um, uh, you know, um, um, working massively at the therapy and, um, spontaneous recovery. was I was able to get most of it. Um, great. yeah. Yeah. Um, and, and a pretty, uh, Quick quick amount of time. Um, I was actually to to walk out of. acute rehab, um, and, uh, I, I basically had spent eight weeks total in the hospital. Um, but able I was able to walk out and then, um, after one one round of occupational therapy, actually actually returned to work. So I, I, um, uh, uh, some people might call it crazy. Um, I was just stubborn. That, stubborn. you know, after a stroke or brain injury, I think stubborn is a good quality to have. Mm-hmm. Yes. am I have valued it a lot now. Yeah. Yeah. So what do you think was your biggest improvement, um, since your stroke? Um, Um, you know, I'd say that it, it, um, It was probably the, that that recovery, the gaining that fallback, but then. um, uh, also I think the things that I've regained that I that I never thought I would like, um, my, um, uh, Reactions and my and my instincts and like my reflexes, have those have actually come back better than they were before. not I'm not entirely sure why, I'm not going to but I'm not gonna question it. Um, you Um, you know, now I. catch catch things, but as I drop 'em, instead of, you know, letting something fall and crash. Um, that, I mean, I mean, I was clumsy before, so I never expected that sort of back. back. Um. But but yeah, it, it's really just, oh oh gosh, the, yeah, the walking, um was, probably the best best I had felt. in a while, That's good. Yeah, I know. I tell everyone, I think for me, 'cause my stroke, I had a hemorrhagic as well. It was very similar. Mine was on the right side, affected the left side. I tell everyone, I think for me, my real independence was when I got rid of the cane because then I could carry my own coffee. I could actually open the bathroom door on my own. I didn't have to have someone go with me, you know, everywhere I went to open the door for me. So to me I was like, yeah, independence. Finally I'm there. Um, Um, I mean on a, on a more, know, know, it, um.

bindwaves-host

um,

judy-cage

On a on a higher level where you're impacting more people, um, I would say driving and getting that back was also pretty key. Yeah, that's, yeah. That was mine. And they're putting others on the road at risks. Yeah. Right. So, um. What was your career before your injury? um, Um, before my my injury I was a, um, A compliance

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officer for

judy-cage

commercial commercial warranty. Um,

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I had started

judy-cage

of in the and it's kind of in the field of accounting, audit, then then risk and controls. Okay. And, um. No, go ahead.

bindwaves-host

I'm sorry. I was just gonna say, and were you able to go back? You were able, I mean, I, from, we talked, I think you were able to go back into that and, um, I was, you were, they were very accommodating, if I remember correctly. So, Very much so, um, I, they, the company is great in terms of,

judy-cage

you know,

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you know, they had, um,

judy-cage

uh, you know,

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you know, they followed the rules of long term disability. Um,

judy-cage

of of that company and, um, the company itself, um, was a

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was a bit more stringent and unpleasant, but the, um,

judy-cage

But

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but my company itself, um, were super supportive. They,

judy-cage

gave me as much time as I as I needed to go through through the therapy and then go through the outpatient therapy. Um, and then they always wanted to listen to my doctor and, you you know, we as we move forward, so. um, my, my stroke doctor said after the outpatient I was permitted to work four hours a week. Um, Um, which I thought that was crazy until I started and understood that, wow, four hours is actually pretty hard. Um, and and then I just built my way back up. Um, I and I was working, um, I was I was working, um. I'm sorry, on, On, um, on long term until like, like, I built it back up until November of that, of, um, five years. And then, um, they kicked me off for where they take me hours and then shortly after that I was actually promoted. So.

bindwaves-host

That's awesome. And were, did you find that you needed any additional like or new accommodations to help you do your job that you didn't need before the stroke?

judy-cage

I I did, um, before the stroke, I would always push I and I think, you know, I mean, I guess that's how, but, um, uh, they allowed me to work, um, you know, you know, kind of closer to, you know, up later. where If I if I was, I started, I would start at like 10 instead set of, you know, 8:30 or or nine. Um, and and then if I. needed, if I If I was failing cognitively, uh, my boss would tell me to He would see see it on my face on video calls, or hear it in my voice, and would he would just say, Judy Uhuh, like, Uhuh, like, shut down. And, um, was was incredibly helpful. I mean, sometimes I would be stubborn and say, boss, boss, I can, I can get through this. It's not a problem. But they, absolutely was great. Supportive feeling to know he was looking up.

bindwaves-host

That's great. That's good. Um, so part of your journey, like did, are you part of any organizations or support groups? I am, i'm, I'm

judy-cage

am a a peer mentor at the hospital. Um, and and also I, I also talk to numerous stroke survivors. I tell everyone to pass them my way so I can. help them out. Um, I am part I'm part of the, uh, stroke support group group at the hospital. Um, and when, when, uh, pre COVID, um, the, hospital also also had a patient advocacy group, and I was a and I was part of that as well.

bindwaves-host

That's great. And I know that through all this, after your stroke, you went out and wrote a book. Called Super Survivor. So how, how did you decide to write a book in the midst of your recovery and trying to go back to work and do all of that? That's pretty amazing. Thank yeah.

judy-cage

Um,

bindwaves-host

well, when I, a few months out of the stroke, I, um,

judy-cage

a.

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Had

judy-cage

Set

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set my mind on a goal and I said, let me run the Broad Street run in Philadelphia.

judy-cage

which is a 10 mile run. I'd

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I had never run long distances before. I, you know, kind of detested it. Even in my track career, I had a career, I had

judy-cage

did short

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short distances.

judy-cage

um, and,

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um,

judy-cage

I had,

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i, so I started a blog to document that journey saying, um, yeah, I look at this, I wasn't rocking a few months ago and now I'm gonna run 10 miles through the city of Philadelphia.

judy-cage

And

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um.

judy-cage

but

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but then that was stopped short. My doctor said, do you think you should ask your doctor

judy-cage

whether

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whether you can run 10 miles? You know? And

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I said,

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I said, oh, doc, do you think you can run 10 miles?

judy-cage

And he

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and he says, um,

judy-cage

says,

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he said,

judy-cage

like I

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like, I could run the 10 miles, but at the training you would, would be bad for blood pressure going up and down. Oh.

judy-cage

Um,

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so I had to switch goals or switch gears. I,

judy-cage

a

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there was a whole number of.

judy-cage

other

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goals like going to, um, get a professional certificate at the Berkeley School of Music.

judy-cage

Um,

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i,

judy-cage

just

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just wanted to kind of

judy-cage

dabble and live

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and live in life.

judy-cage

And,

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and, um,

judy-cage

and once

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once the five year mark, um,

judy-cage

um, I

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I had turned

judy-cage

that

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that blood into,

judy-cage

um,

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because

judy-cage

the

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the five year survival rate forrr stroke.

judy-cage

was in the,

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in the study that, like one of the very few studies you find out there, um, was 26.7%.

judy-cage

So when

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when I,

judy-cage

Um, past

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passed that, mark and I, I had kept,

judy-cage

I had

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I had kept

judy-cage

my

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my stroke and my struggles private for so long.

judy-cage

Um, and I

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and I had done that for the workplace, but also to my neighbors so that I wouldn't get, you know, the pitying looks or know, just, um, kind of all the questions. Um,

judy-cage

the

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all the questions, you know. Sure are fine.

judy-cage

Um, but um, I had

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I just had just kept it quiet and I didn't want anyone to know

judy-cage

professionally. Um,

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and

judy-cage

as

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as I did more and more peer,

judy-cage

um, I

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I felt like the same questions were repeating. Um, and also.

judy-cage

people wanted

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to know that it was possible

judy-cage

that you could go back

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to work, that you could,

judy-cage

you know you know,

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you know, rebuild your life.

judy-cage

Um,

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um, so I wanted to put that out there. I said, I'm,

judy-cage

I don't

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I don't know why I'm hiding. It's not doing anyone any good for me to hide this. So

judy-cage

why

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that's why.

judy-cage

and wrote it.

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Yeah. Which gets us into our next question. Um, how do you challenge ableism and invisible illness stereotypes?

judy-cage

Well, um,

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um, mostly I, I present very normally. Um, I, the, the more people that I meet, they tell me there's no,

judy-cage

a

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no way had a stroke. They don't, they don't either. Don't believe it, not that they would be conscious of it.

judy-cage

Of it.

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Of it. Most of the regular people

judy-cage

Um,

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um, are regular healthy individuals who haven't had a brain injury or, stroke.

judy-cage

Um, they see

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they see me and they treat me like.

judy-cage

am perfectly healthy. And

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and in doing that

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has

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as contrasting

judy-cage

my own awareness

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that this is what

judy-cage

the

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the rest of the world, or sorry, the rest of the healthy world,

judy-cage

sees me as, or this is this is how they naturally move about the world. But

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my understanding

judy-cage

um, all of

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all of this, now I can show.

judy-cage

and

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and announce, um,

judy-cage

know, the

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the viewpoint of a non-healthy person.

judy-cage

excuse

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excuse me. And so then as I can point

judy-cage

out, I can

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I can also advocate for,

judy-cage

people in the

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well, the workplace

judy-cage

could use

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use resting stations or electrolytes or,

judy-cage

Or, you know,

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you know, di different hours if they need it. Um,

judy-cage

and just

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just trying to create as much awareness.

judy-cage

that as possible.

bindwaves-host

That's good. So is there anything specific that you found that you can do or do to empower others with chronic or cognitive challenges?

judy-cage

Oh gosh.

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Gosh, I have learned so much about hu

judy-cage

Because I

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as I was so stubborn with,

judy-cage

with just

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just overdoing it and then crashing.

judy-cage

and

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um, and then finding what my brain, uh,

judy-cage

needed for like to

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like to keep going.

judy-cage

Um,

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um, so if I got tired, of course the cognition disappeared,

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my

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my

judy-cage

would

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would slow down.

judy-cage

Um, and

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and so I've learned, um, I've passed on to other peers, um, that, you know,

judy-cage

kind of

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kind of filter things out just by shutting off all stimulus.

judy-cage

Like

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like if we, if I was on a Zoom call,

judy-cage

um, I

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I would, you know, put on closed captioning.

judy-cage

But

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but if, if there were a bunch of words on the screen, I would also just turn off the camera

judy-cage

and put

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and put my head down and listen to what was

judy-cage

going

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going on

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that

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so that I could actually absorb some of it.

judy-cage

Um, and

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and so,

judy-cage

when

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when people don't realize that when you're at a restaurant.

judy-cage

you know,

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know, you can't

judy-cage

any of

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any of it. That noises are bouncing off the walls, um,

judy-cage

uh, that,

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that,

judy-cage

I,

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know, say,

judy-cage

Okay. But

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but

judy-cage

possible put in an

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put in an ear plug know,

judy-cage

know, uh, or

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uh, or put in both.

judy-cage

Um, it

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it is possible to help kind of lessen that cognitive load.

judy-cage

then,

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um, also the fact that,

judy-cage

um,

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um, your.

judy-cage

uh, you know,

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you know, you not only have physical energy that you spend

judy-cage

mental

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energy, emotional,

judy-cage

Um,

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um, and taking into consideration everything that,

judy-cage

um, have

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you have to process within the day and if you have events later in the week and

judy-cage

of

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kind of balance out your load,

judy-cage

Um, and knowing that

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that and sharing that, just, you know, from my mistakes or from my lessons, I,

judy-cage

able to share that with other survivors.

bindwaves-host

that's really good. I'm gonna take a quick little break and just remind our listeners. To go ahead and click that like button, click that follow button, click that share button, just click all the buttons that have thumbs up and we'll go from there. But I was gonna say, I mean, I think that is so true, and I love that you recognize that in yourself and that you're sharing that with others. 'cause I know once I finally got back to being normal and thought everything was good, we started the podcast, I wanna say 10 to 12 years after my stroke. And. The first day we did the podcast 'cause just the way that things worked and it was a free thing. Someone was doing everything for us. In the beginning. We did like five podcasts in that first day, back to back to back to back. I mean, I was a corporate trainer, so I was used to talking all day. I don't mean I don't, I'm used to talking all day regardless. I'm happy to do that. But at the end of that day, I went home and took the longest nap before bed 'cause I was so mentally drained and. Everything about me. I, my body hurt, my brain hurt. I just, I was like, I, that was so much to do, and it's one of those things that I guess people take for granted in a normal day. That there's, there's, you know, they're fine. But we have found that in the clubhouse that we tell new survivors, if you can't make it the full whole day, the, in the beginning, not a big deal. You're here to work and do as much as you can do, and if after five hours you go, no, I need to, or three hours I need to go home. Or we do have a room that has, we have a quiet room that has recliners. If you need to go take a 15 minute break, no questions asked, go ahead. So it's, that's one of those, yeah, that I think a lot of people don't realize. Again, it's that you look fine. Why are you tired? Mm-hmm. Mm-hmm. Mm-hmm.

judy-cage

Or,

bindwaves-host

Yeah. Um, I used to have, oh, I'm so sorry. I used to have, um, um,

judy-cage

a

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a lot of TIAs, uh,

judy-cage

the

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from the age of four,

judy-cage

um,

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um, because I have Moyamoya

judy-cage

syndrome,

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syndrome,

judy-cage

Um,

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and, uh,

judy-cage

I, you know,

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you know, in the office, um, you know, once I was in my early twenties and on, um, prior to my surgeries and prior to the stroke, um,

judy-cage

you know, I

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I would have a TIA. And I would have to leave work.

judy-cage

and I

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I said I had a really bad headache, and

judy-cage

my coworkers would look

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would look at me and say,

judy-cage

have

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I have never gone home 'cause I've had a headache. I'm like, oh, you've never had one of these. Right.

judy-cage

Um, and so,

bindwaves-host

and so, yeah, absolutely. Mm-hmm. So what is a TIA again, just to elaborate.

judy-cage

is ischemic attack. It's

bindwaves-host

attack, stroke.

judy-cage

stroke.

bindwaves-host

Mm-hmm. Yeah. Yeah. So, wow. Especially invisible injury. I look invisible. A lot of people are like, you don't look like you have brain injury. I'm like, well, I do. And then sometimes my day too, I go home and I'm tired, like I will skip dinner and everything. I'll be like straight to bed. Then I'll wake up, I'm like, oh, it's the next day. Let me recharge my battery. Right. Yeah. Well, um, I know you said that you. Had a track career and you attempted or thought about, I know, I'm, I'm, I know, I know. But so what do you do for fun outside of work? Do you still like to run or jog or, I mean, what do you do to relax after a long day?

judy-cage

Oh, I do

bindwaves-host

I do not

judy-cage

Um, do

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do anything faster than walking

judy-cage

I have to.

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Unless I do mm-hmm. Fair.

judy-cage

sometimes I, I

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i, I run after the dog

judy-cage

a, you know, from a scooter, um, uh,

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uh, I.

judy-cage

you know, I'll

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i'll listen to music. Um,

judy-cage

I will,

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i'll,

judy-cage

um,

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um, you know, sometimes if I have

judy-cage

energy, I will

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i'll binge watch some Netflix.

judy-cage

Um, but I'll,

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i'll, I'll

judy-cage

the

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snuggle with the dog,

judy-cage

Usually,

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but yeah, that,

judy-cage

favorite

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be good. A good thing to do. Yeah. I would say I'm a firm believer in there's no need to run unless someone's chasing you.

judy-cage

Yeah.

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I mean, I'll leave it at that, but yeah, even when I was healthy, I was not a runner.

judy-cage

When I'm

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when I'm late to an appointment

judy-cage

my

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day to my chiropractor, he's a couple blocks away. Mm-hmm.

judy-cage

try to, you

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to, you know, pick up my feet and go,

judy-cage

I've

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but I've found that I can run run the, when

judy-cage

something

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it's something that I really am excited about,

judy-cage

if it's

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but if it's something that's

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of, you know,

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you know, boring or monotonous or, you know,

judy-cage

um,

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um, I can't just mechanically pick out my feet, the.

judy-cage

to.

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Yeah, I, I can't, I still have to wear an a AFO on the left leg, so my knee, my leg never came back. So I, I don't walk normal, so running is just not an option. Mm-hmm. But I can kinda walk a little fast, but it doesn't help that I have little legs too, you know, all four foot 11 of me never could walk very fast, so. Hmm. So what's one piece of advice you would like to leave with our listeners?

judy-cage

one, um, big piece.

bindwaves-host

and, um, I think you

judy-cage

talked

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talked about it, um, on your pod,

judy-cage

um,

bindwaves-host

um, or

judy-cage

Is that all stroke survivors? You know, You know, I mean, generally they're told that you have you have six months after, after the stroke,

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stroke, um, that you can.

judy-cage

you know,

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know, recovered, or that you have the most neuroplasticity,

judy-cage

after 6 months. Um,

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um, that may be the case, although,

judy-cage

that

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um, that doesn't mean that healing or recovery stops.

judy-cage

Um, I, Things

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things have come back

judy-cage

years

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after,

judy-cage

my stroke. Um,

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um, as long as you,

judy-cage

um, you know, you,

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you know, you

judy-cage

of

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kind of improve that by continuing work on things or, you know,

judy-cage

know, um, if you

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if you brush your teeth, stay with your non-dominant hand,

judy-cage

maybe,

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be, you know, rewire your brain,

judy-cage

um,

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um, to have more connection. And,

judy-cage

I

bindwaves-host

um, I just wanna let people know that they shouldn't get discouraged if they only think that they got the six months to

judy-cage

get

bindwaves-host

get things done.

judy-cage

That, that there

bindwaves-host

That there is a lot longer. Yeah, I totally agree. Yes. And we do say that a lot. Brain injury is lifelong recovery. And we have, we're fortunate enough to have our life to continue to work on recovery. And I agree. I see 16 years later I can still see progress being made. Maybe, you know, not like leaps and bounds progress, but progress. So, um, is there anything that you feel like we should have asked you that we haven't covered yet that you would like to add in?

judy-cage

Not that I can think of really.

bindwaves-host

Okay. Um, well then I'm gonna say thank you, Judy. Thanks so much for sharing your experience and words of wisdom and keep helping other survivors out there.

judy-cage

Absolutely. I

bindwaves-host

I love doing it. Thank

judy-cage

so much.

bindwaves-host

so much. Thank you so much. You're welcome. And thanks to all our listeners for listening. And remember, you can find our new episodes on all your favorite platforms. Until next time. Until next time.

Bernard

We hope you've enjoyed listening to BIND Waves and continue to support Brain Injury Network in our nonprofit mission, we support brain injury survivors as they reconnect into life, the community, and the workplace. And we couldn't do that without great listeners like you. We appreciate each and every one of you. Please remember to click the like button, the share button, and the subscribe button on YouTube. And follow us on Instagram at bindwaves and Brain Injury Network on Facebook. You can email us at bindwaves@thebind.org or go to our website bondwaves.org or call us at (972) 769-2463. Please continue watching. Until next time.