My Spoonie Sisters
Welcome to My Spoonie Sisters! If you're wondering what a "Spoonie" is, it’s a term lovingly embraced by those living with chronic illnesses, based on the Spoon Theory. It’s all about managing our limited energy (or “spoons”) while navigating life’s challenges.
Each week, join us to hear from your "Spoonie Sisters" host, co-hosts, and our inspiring special guests as we share real-life stories, tips, and encouragement. Whether you're here to learn, connect, or feel less alone, you’ll find a supportive space filled with understanding, laughter, and strength. Let’s journey through chronic illness together!
Tune in and join the sisterhood!
All guests featured or mentioned in this podcast will be listed for your convenience. Don't forget to rate and subscribe to My Spoonie Sisters and follow @MySpoonieSisters on Instagram for updates on new episodes and more. If you have a story to share or want to be featured on My Spoonie Sisters, please email MySpoonieSisters@gmail.com. We eagerly look forward to speaking and hearing from all our Spoonies!
Disclaimer: While we are not doctors or healthcare Practitioners, we want to assure you that this podcast is a credible source of information. It's based on our guests' personal experiences and the strategies we've found effective for ourselves. However, everyone's body is unique, and what works for one person may not work for another. If you have any health-related questions, it's always best to consult your Primary Doctor or Rheumatologist.
Remember, our goal at My Spoonie Sisters is to connect people and provide them with the support and tools they need to live better lives.
My Spoonie Sisters
Living Lupus Together with Rekha
Listen to this episode as I sit down to chat with Rekha about her journey with Lupus.
Lupus is a disease that occurs when your body's immune system attacks your own tissues and organs (autoimmune disease). Inflammation caused by Lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart, and lungs.
Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of Lupus — a facial rash resembling a butterfly's wings unfolding across both cheeks — occurs in many but not all cases of Lupus.
Some people are born with a tendency toward developing Lupus, which may be triggered by infections, certain drugs, or even sunlight. While there's no cure for Lupus, treatments can help control symptoms.
Rekha Sreedhara is a chronic illness warrior and advocate. She was diagnosed with systemic lupus erythematosus in 2001. Since then, she has been diagnosed with cutaneous lupus erythematosus and lupus nephritis as well as two rare diseases, pulmonary arterial hypertension, and thrombotic thrombocytopenic purpura.
Rekha works as a public health consultant specializing in substance use disorders. She resides in Massachusetts with her husband and three cats. In her spare time, Rekha loves to binge-watch shows; if you need a recommendation, she's your girl. She also enjoys traveling and has visited more than ten countries. Thriving one day at a time since 2001
Sharing experiences, strategies, hope, and laughter
Lupus | PAH | TTP
IG:https://www.instagram.com/livinglupustogether/
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