Back in 2013, Dr. Scott Ernst and Dr. Femida Gwadry-Sridhar both recognized some problems with the way people were conducting research for melanoma. Collaboration was lacking and crucial patient data was being siloed and not shared amongst the research community, which prevents the full potential of this data from being realized.
The two teamed up to create the Global Melanoma Research Network (GMRN). The first collaborative research network for melanoma and worked alongside different cancer centers across Canada begin collecting, centralizing and standardizing their melanoma patient's data. Today, the registry has grown to be one of the largest melanoma patient registries in the world with over 5,000 patients. Dr. Ernst continues to publish findings from the registry and care for Canadians living with melanoma. While Dr. Gwadry-Sridhar created Pulse Infoframe which specializes in building registries and natural history studies similar to GMRN.
Join Dr. Scott Ernst, Dr. Femida Gwadry-Sridhar and Joshua as they break down why and how they went about creating GMRN, the difference it has made for melanoma research and the patient community, as well as where they hope to take this registry in the future.