The Neurological Disorder Podcast
The Neurological Disorder Podcast is a podcast created by Mridula Bharathi, a young changemaker and advocate for neurological disorders. In this podcast, she interviews people who are affected by neurological diseases, and they share their incredible stories as a fighter of the disorder. She also talk with doctors and surgeons who are experts on these disorders, researchers who are working to find cures for them, and more! Through this podcast, she hopes to spread awareness for these neurological conditions so more people can stay informed, look out for early signs of these sometimes debilitating conditions, and be involved in creating a change, through legislative advocacy and community awareness, to improve care for everyone impacted by neurological diseases.
The Neurological Disorder Podcast
9.Here's a Warrior: Neurological Perspective to Ehlers-Danlos Syndrome ft. Carter Hemion
This week's episode is with Carter Hemion, a public speaker, legislative advocate, and fighter of EDS. Carter shares his long journey with EDS and all the painful experiences and uncertainties he endured before and after diagnosis. We also explore the range of symptoms accompanying EDS, specifically focusing on the neurological symptoms that Carter experiences. Carter is also a dedicated legislative advocate and frequently meets with government officials to raise support and awareness for EDS--we discuss how he recently got May to be EDS and HSD awareness month in Washington state! He is currently advocating for the HELP Copays Act, and we talk about why it is necessary for this bill to be passed.
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Follow me on Instagram- @neurologicaldisorderpodcast
Email me at- neurologicaldisorderpodcast@gmail.com
Links Carter mentioned:
- https://clinicaltrials.gov/
- https://www.ehlers-danlos.com/
- https://rarediseases.org/
- https://www.edsers.com/