The Neurological Disorder Podcast
The Neurological Disorder Podcast is a podcast created by Mridula Bharathi, a young changemaker and advocate for neurological disorders. In this podcast, she interviews people who are affected by neurological diseases, and they share their incredible stories as a fighter of the disorder. She also talk with doctors and surgeons who are experts on these disorders, researchers who are working to find cures for them, and more! Through this podcast, she hopes to spread awareness for these neurological conditions so more people can stay informed, look out for early signs of these sometimes debilitating conditions, and be involved in creating a change, through legislative advocacy and community awareness, to improve care for everyone impacted by neurological diseases.
The Neurological Disorder Podcast
18. Here's an Ally: Foundation to Fight H-ABC ft. Michele Levoir Sloan
This week's episode is with Michele Levoir Sloan, co-founder of the Foundation To Fight H-ABC. Michele and her husband started the foundation in 2015 after their daughter was diagnosed with H-ABC. Since then, they have supported families affected by this condition worldwide, collaborated with numerous nonprofits, and worked alongside biotechnology companies to support research for a cure.
In this episode, Michele and I discuss her inspiration for creating the Foundation to Fight H-ABC, its mission, and its initiatives/fundraisers. We then dive into current research focused on finding a cure for H-ABC and the ASO treatment in clinical trials. We later focus on the necessity of raising awareness for rare conditions, especially H-ABC, as there are only about 200 diagnosed cases, making this condition mainly unknown to the public. She then shares her goals for the future and an inspiring message to families affected by H-ABC.
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Email me at- neurologicaldisorderpodcast@gmail.com
Helpful Resources:
- https://www.h-abc.org/