A Patient’s Fight for Truly Personalized Care w/ Christine Von Raesfeld Artwork

The Promise of Personalized Medicine

There is no personalized medicine without a diagnostic test to help in the process. The Promise of Personalized Medicine is a podcast that explores the process of creating more personalized medicine and the Medical Directors who ensure that the right care is being delivered to us all. Season 1 will focus on understanding best practices by using the Blueprint of Success format as a template for labs to use when trying to get their novel diagnostic test approved by health plans. This is The Promise of Personalized Medicine.

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The Promise of Personalized Medicine

A Patient’s Fight for Truly Personalized Care w/ Christine Von Raesfeld

April 08, 2026 • Perry Dimas • Season 4 • Episode 5

0:00 | 33:16

What does personalized medicine really mean—and why does it still feel so out of reach for patients?

In this episode, Perry is joined by patient advocate and lived experience expert Christine Von Raesfeld for a powerful conversation that brings the patient voice to the forefront of personalized medicine. Drawing from over 50 years of navigating complex health conditions, Christine challenges the industry’s assumptions and shares what personalized care actually looks like from the inside—fragmented, evolving, and full of unanswered questions.

In this episode, you’ll hear about:

How personalized and precision medicine are often misunderstood—and why clearer definitions matter
Why the current healthcare system still feels disconnected and siloed for patients
The importance of patients becoming active participants in their own care
How pharmacogenomics and multi-omic data can help (but aren’t widely accessible)
The limitations of a reactive, symptom-based healthcare model
Why data access and ownership remain major barriers to progress
The tension between privacy and progress in advancing research
How current clinical trial designs often exclude the patients who need them most
The need for more holistic, longitudinal, and real-world data in research
How Christine is contributing her own data to research and helping pioneer a patient-led model of care
The role of education, storytelling, and younger generations in shaping the future of healthcare

The conversation closes with a hopeful look at what’s ahead—where greater collaboration, better data sharing, and a reimagined relationship between patients and providers could finally make personalized medicine a reality.

To learn more about Christine's work, visit her Linkedin!

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