Advocating for Access: How Policy Shapes the Future of Gene Therapy Artwork

Angelman Syndrome Foundation Podcast

Welcome to the Angelman Syndrome Foundation community! In each episode, Amanda Moore, CEO of Angelman Syndrome Foundation, will discuss Angelman syndrome with experts in their field to provide resources and education to families. From a deep dive into the genetics of Angelman syndrome, to understanding clinical treatments for treating seizures to discussions with IEP specialists and communication specialists, we are here to help as many families as possible on this journey. We are so glad you have joined us and look forward to connecting and supporting this community together.

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Angelman Syndrome Foundation Podcast

Advocating for Access: How Policy Shapes the Future of Gene Therapy

October 30, 2025 • Angelman Syndrome Foundation • Season 4 • Episode 6

0:00 | 24:32

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ASF CEO Amanda Moore talks with former Congressman Erik Paulsen, Chairman of the Institute for Gene Therapies, about how policy and advocacy are shaping the future of gene therapy for rare diseases like Angelman syndrome. They discuss the need for modernized healthcare policies, better access to treatment, and how collaboration across patient groups and policymakers can help make life-changing therapies available to all.

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Learn more about Angelman Syndrome Foundation at Angelman.org.

Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics.