The MyAlzheimers Story Project
"The MyAlzheimers Story Project: Conversations from The Road", is a short collection of stories we collected during a road trip in June of 2019. We partnered with the Penn Memory Center, were sponsored by AARP, and we drove across the United states, visiting seven American cities, from Los Angeles to Philadelphia. The goal of the project is to equip scientists with the important stories they need, to create better care and work toward a cure. In each episode of our podcast, you will meet patients, families, advocates, clinicians and scientists - all sharing personal stories about their experiences with Alzheimer's and Dementia. This journey began with our own experience with Alzheimer's, which we share in the feature documentary, "Carpe Kilimanjaro: An Alzheimer's Story"; now available on Amazon Video. About 50 million people worldwide have some form of dementia and Alzheimer’s is the most common form of this brain disease. It doesn’t matter how old you are or where you live - you play a role in this story. This is OUR Alzheimer’s.
The MyAlzheimers Story Project
#1 How Your Story Helps Solve The Problem of Alzheimer’s
•
Zach
•
Season 1
•
Episode 1
Dr. Jason Karlawish is Co-Director of the Penn Memory Center and author of "The Problem of Alzheimer's". We sat down with Jason during our stop in Philadelphia, Pennsylvania to find out why our collective stories play such an integral role in scientists' understanding of Alzheimer's.
Check out the links below to learn more about the topics discussed in this episode:
National Institute of Aging: Clinical Trials
Alzheimer’s Association: Trial Match
National Library of Medicine: Clinical Trials
Cure Alzheimer’s Fund: Women and Alzheimer’s
You can find out more about the MyAlzRoadtrip by visiting our Facebook page and learn more about our story, by watching the feature length documentary: "Carpe Kilimanjaro" on Amazon Video.