Batting the Breeze

Symphony of a Mind

Stephen Winduss Episode 26

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"If you've met one person with autism, you've met one person with autism." Today I had the privilege to meet one person with autism. Stuart Carlson is diagnosed with autism spectrum disorder but he is defined by his extraordinary musical ability.  He is a concert violinist and composer. I tried to understand the contradiction between the very earthly challenges that Stuart and his family face every day and the apparent ethereal effortlessness with which he communicates through his violin - I couldn’t.  

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Jack Carlson

There is a famous saying that says,"If you've met one person with autism, you've met one person with autism." It is a massively wide spectrum of behavior and learning capabilities and interests and obsessions and it's fascinating, quite frankly. And it's been wonderful. He has enriched our lives a million fold.

Stuart Carlson

I remember playing a piano right before we moved to our current house... when I was three years old. I remember standing close to the keys of the piano for hours on end, just playing different notes.

Steve

This is Stuart Carlson, and in a minute you'll hear Stuart's father Jack. Stuart was enthralled by the piano at a very young age. As he got a little bit older, his focus in music led him to a different instrument.

Stuart Carlson

I first picked up a violin at the age of 10 and a half, and being fascinated with how the notes were produced and the fact that it could be played bowed and plucked. I decided to pick it up as an instrument.

Steve

Jack, my experiences of listening to 10 year olds playing the violin still haunts me to this day. Did you ever experience that or did Stuart bypass the cat-wailing stage?

Jack Carlson

He rarely played out of tune. And when he hit a wrong note, he would immediately fix it. In fact, he had to figure out how to practice going past a bad note because it would take him forever to learn a song because he would want perfection, right? And make the sound be pretty.

Steve

Although Stuart and his parents didn't know it at the time, this early fascination with the violin would take them on an extraordinary journey; a journey which is still going on today. But to really understand that journey, we need to rewind to the moment when Stuart was born.

Stuart Carlson

I was born in March of 1996 at Mott Children's Hospital... at 26 weeks. In fact, I weighed one pound and 13 ounces.. and I survived emergency surgery... but unfortunately my twin brother Spencer did not.

Jack Carlson

This just is bringing up tough memories. I will tell you that we were incredibly fortunate because we actually had a child go home with us. There were many people who left without their children. They passed.

Stuart Carlson

I remember hearing that I. on a ventilator to help me breathe until I was, I wanna say 45 days old. And I've had... a lot of challenges because of that, and the doctors and nurses there literally saved my life.

Steve

Well, Stuart did make it home eventually, about a hundred days later in fact. Now roll forwards a few years. Around the same time that Stuart was discovering the joys of that piano, age three, he was also diagnosed with autism.

Jack Carlson

The CDC, the Center for Disease Control and Prevention here in the US, defines autism as, or autism spectrum disorder, that is the proper name for it... is a developmental disability caused by differences in the brain. People with ASD often have problems with social communication and interaction and restrictive, restricted or repetitive behaviours or interests. People with ASD may also have different ways of learning, moving or paying attention. That's their definition and it is our experience.

Stuart Carlson

I have had, especially in my youth... intense passions or interests with various things like doors and watches and weather stations... and radio station jingles and other things like that, which sort of progressed throughout my life.

Steve

So Stuart, I used to play the piano, hated practice, and as soon as my Mum's back was turned, I'd sneak off and do something else. Is that what you did?

Stuart Carlson

Definitely not. At first, I wanna say I was practicing for 30 minutes a day and I gradually, over the next four or five years... as my skills developed... so did my... practice time each day.

Steve

So how much do you practice each day now?

Stuart Carlson

I would say that I practice between and four hours each day.

Steve

Wow. Is that fun?

Stuart Carlson

It definitely is, and I really enjoy the opportunity to play different pieces and... exercises to... broaden my horizons, I guess, on my on various pieces and techniques, if that makes sense.

Steve

Stuart is now 27 years old, and despite the significant challenges in his life, or perhaps because of them, he's now an accomplished musician and composer. He plays with the Ann Arbor Symphony Orchestra in Michigan. He plays solo. He plays in other ensembles. He's played in front of the great cellist Yo Yo Ma, gained the interest of my favorite violinist, Itzhak Perlman, performed with his pianist, Rohan DeSilva, and is on a continuously rising trajectory. Oh, and by the way, he also has four degrees.

Stuart Carlson

in a few months I will be going over to... England, to the London area, to be with my UK teacher, Rodney Friend and his wife Cynthia and I'm definitely looking forward to it. He was once the concert master for the New York Philharmonic... in addition to the London Philharmonic and London Symphony Orchestra. He's had an amazing solo career over the decades, and I'm absolutely honored and privileged to be able to be working with him.

Steve

Of course, all this practice is with one aim to perform. And Stuart's desire to perform started at a very early age.

Jack Carlson

He was four and every child got four minutes right up on stage. Well, his four minutes were done and he screamed like a banshee when we pulled him off the stage. I am not kidding, it was hilarious. The gentleman who was running the impromptu concert was kind enough to let him play Twinkle Twinkle one more time and then pulled him off again and he was still not happy. So he's always loved to perform. That's for sure.

Steve

So Stuart, tell me what it's like playing with a full symphony orchestra.

Stuart Carlson

I've never had more excitement rush through me in my life than when I played the last movement of Tchaikovsky's Symphony No. 4... with the Ann Arbor Symphony. And I remember trying to keep my energy under control at that point. And... at the same time though, with control letting it out simultaneously, which was a little bit of a challenge for me at the time.

Steve

That sounds absolutely amazing. Now, tell me about perfect pitch.

Stuart Carlson

Perfect pitch is the ability to decipher a note without any reference whatsoever. And... that's what I have. In fact, depending on the register, I can likely tell you the frequency within a couple of hertz, which I've heard it said that no one is able to do that before.

Steve

And how does that help you as a musician? What advantage is it giving you?

Stuart Carlson

It definitely helps me play in tune and... It also helps me navigate a piece harmonically and also... memorize melodies... more quickly.

Steve

I had to put Stuart's perfect pitch to the test. It sounded almost impossible. So we started with a wine glass.

Stuart Carlson

That is E flat-5 with an overtone of G-6.

Steve

Let's call that beginner's luck. Here's another one. What about with the frequencies as well? This time, Here we go.

Stuart Carlson

That is G-5 and B flat-6. The frequencies of those are 795 hertz and 1900 hertz.

Steve

It's almost instant. That's crazy. I'm not gonna argue by the way.

Jack Carlson

I have learned never to argue with him on this subject.

Steve

Okay. I need to up the ante. Okay? Ready for this?

Stuart Carlson

Okay. D-5, C sharp-5 and C-5. And the frequencies are 587, 555 and 525 hertz.

Steve

That is extraordinary. Let's make life a little bit more difficult. Are you ready for this one?

Stuart Carlson

Ready? That goes up, it's a sweep up from 80 hertz to 175 hertz, which would be E flat-2 up to F-3.

Steve

Brilliant. Okay, last one.

Jack Carlson

Steve the cow thing was outstanding.

Steve

You wait for this one. Stuart, you said to me earlier that you could tell me what key my toilet flushes in. You ready?

Stuart Carlson

I'm ready. That is E flat-4 with an overtone of A-5, and the frequencies are 320 hertz and 890 hertz.

Jack Carlson

Oh my Lord.

Steve

That was a lot of fun and absolutely extraordinary. Now, as I mentioned earlier, as well as playing, Stuart is a composer.

Stuart Carlson

I have been composing for 15 years now. I started on my 12th birthday.

Jack Carlson

And Stuart, what inspired you to write your first playable piece? Do you remember? When... your grandpa passed away.

Stuart Carlson

remember that. That was... the last movement of the first piece I ever composed, which was more playable, and that was inspired by blues and early rock as I remember... That was what my grandpa loved to hear. It was just after he passed.

Jack Carlson

They played it at the service. Everybody started bawling. It was really incredible.

Stuart Carlson

I like to think of music as my first language. When I was younger, talking I guess in a... way seemed to be a little bit harder than... speaking music, if that makes sense.

Steve

Now, Stuart. I first heard you by listening to a piece of work called Portrait of a Landscape. Tell me about that.

Stuart Carlson

...That project was commissioned by KTWU, which is a PBS station in Topeka, Kansas... in May of 2021. And... the general manager of the station asked me if I could...compose some pieces for a four-part television series called Portrait of a Landscape, and the first episode premiered in Kansas on November 30th. That's called Prairie Winter and hopefully the series will go national in early 2024.

Steve

The musical pieces on Portrait of a Landscape are either compositions or arrangements by Stuart with, of course, the lead violin played by him as well. All the music you can hear accompanying us today is from Portrait of a Landscape, which you can also listen to on YouTube, Spotify, Apple Music, and so on. Of course, Stuart's extraordinary ability and success don't mean that the challenges of autism have been left behind.

Jack Carlson

He's working with a therapist at the moment. She's a communications specialist and he's working on things that you and I take for granted. So things like everyday living. You know,"How do I have small talk at a party?""How do I do an interview like this?" I mean, he has to work really hard at communicating with others.

Stuart Carlson

I think, to go off of what my dad said about small talk at parties, that is incredibly challenging for me to... answer questions like that on the spot, compared to other people.

Jack Carlson

He and his brother get along amazingly, and his younger brother has really embraced Stuart, and we've all worked hard to meet Stuart in the middle, as I know Stewart has worked really hard to meet us where we are. So, it's like two cultures sharing information and getting to know each other. It has been amazing.

Steve

And what about plans for the future, Stuart?

Stuart Carlson

My ultimate career goal is to arrange and compose music for television and... commercials and film and video games... and also to perform with live ensembles... such as the Ann Arbor Symphony Orchestra. And... I'm hoping to be able to... get my music in front of as many... professionals and... listeners as I can.

Steve

And what would you say to anyone growing up specifically with autism at the moment, who's finding life quite challenging?

Stuart Carlson

I would give people with autism advice to never give up and to pursue your dreams... and as best you can not let others who don't know your challenges weigh you down and think of your autism as a gift to others.

Steve

Beautifully put. Beautifully put.

Stuart Carlson

Thank you.

Jack Carlson

And Steve, if I could add, Stuart has been an amazing gift for us and sometimes the gifts that you get have a little extra wrapping that you need to get through to get to the gift, that's our situation here. It is hard. It is a lifetime struggle, but with that struggle comes great reward. At least in our situation. There's always somebody who has it worse than you do. But I know for a fact that everyone wants to be heard, they want to be understood and they want to be loved.

Steve

So, Stuart has aspirations to be a violinist and composer on a world stage. He wants to be an inspiration for autistic people everywhere. As far as I can see at the moment, he's succeeding on all counts. As for understanding the contradiction between the very earthly challenges that Stuart and his family face every day and the apparent ethereal effortlessness with which he communicates through his violin, I can't. I'll just leave that to Stuart.

Stuart Carlson

I would typically try to be as relaxed as I can, and on occasion I would... think about the piece in my head. I played with an orchestra a few years back and I remember watching a movie with that piece as the soundtrack, and right before I played and I heard the orchestra start out the piece, I had scenes from that movie in my head. I try to... think about certain advice that Rodney Friend actually taught me about turning nervousness into positive energy to be able to perform well. I always tend to let breathing guide me through phrasing in my violin playing. And simultaneously I'm trying to take deep calming breaths to... sort of focus myself on the aspect of performing. I guess I don't wanna have too much rushing energy through me, if that makes sense. I am thinking about trying to make the most beautiful music come out of my instrument I can.

Jack Carlson

He's not playing a violin. He is singing through that violin. Stuart, can I ask you a question? This is the question that I'm interested in. You go away, your face looks like you are somewhere else. Can you describe what's going through your head? Like, do you hear anything? Where are you?

Stuart Carlson

While I can sometimes see what's around me, most of the time I'm thinking about all the great... melodies and harmonies that are surrounding my playing.

Jack Carlson

So literally it's Stuart's heart or his voice that's coming through the violin.

Stuart Carlson

I'm always really happy to be a part of making great music.