Empowered by Hope
You want the best possible quality of life for your child regardless of diagnosis or prognosis. Raising a child with medical complexities is often lonely, scary and overwhelming. Join two parents of amazing children with rare medical complexities, Emily K. Whiting and Ashlyn Thompson, to get help and grow with them into empowered advocates for our kids. Here you’ll find a community of support, encouragement, education and resources, equipping you to navigate your child’s medical complexities with hope. To get more personal support, connect with us directly at www.ParentEmpowermentNetwork.org.
Empowered by Hope
Advocating for your child: Emily's breakthrough
Send us a text, we want to hear from you!
After five years of struggling with chronic and acute pain with her daughter, Emily shares her breakthrough moment that happened this week, finally discovering the answers their family has sought for addressing Charlotte's pain. Through trial and error, and many frustrations and setbacks, Emily is learning first-hand what it means to be your child's advocate, and is sharing her insights. Tune in to this episode to celebrate the victories of advocacy and gain tools to navigate the world of pediatric medical complexities.
In this episode you'll learn more of the backstory of Charlotte's medical challenges, Emily's challenges and heartaches as she tries to care for her daughter while often feeling helpless to alleviate her daughters' pain, and the amazing progress that's been made toward healing in the last few months. As you listen, you will:
- Learn what questions to ask to find the right specialist, sub-specialist, clinic or team who can best help your child.
- Gain the confidence to keep seeking answers, keep questioning, keep pushing until your child gets the care they need.
- Learn how humility and confidence together play a key role in your approach as an advocate.
- See how our innate desire to seek the approval and validation of medical professionals can also be limiting, and learn how we can reorient our need for validation in a constructive manner.
We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.
To get more personal support, connect with us directly at:
https://parentempowermentnetwork.org
Facebook: Parent Empowerment Network
Instagram: ParentEmpowermentNetwork
Join the Parent Empowerment Network Community of Hope
Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon
