When Rachel Shapiro’s daughter suffered a severe stroke just before her second birthday, Rachel and her husband were told their child might not survive. Despite the devastating prognosis, they refused to give up, navigating a complex medical journey that transformed their family's life. Their daughter now lives with significant medical needs, requiring a tracheostomy and ventilator support, which initially seemed overwhelming to Rachel.
What makes Rachel's story remarkable is her determination to maintain a full, vibrant life despite the intense caregiving responsibilities. Working full-time in marketing while managing her daughter's complex medical care, she and her husband have intentionally preserved their family's sense of normalcy. They continue to be active in their community, host events, and ensure their other children feel supported and engaged. Rachel's approach is characterized by a deep faith and a belief that their current circumstances serve a greater purpose.
Her perspective on caregiving is both practical and inspirational. Rachel approaches challenges with low expectations and a remarkable ability to adapt, viewing unexpected changes as opportunities rather than obstacles. She emphasizes the importance of open communication with her spouse, maintaining their relationship through shared goals, and making time for self-care, such as occasional shopping trips or simply enjoying a quiet meal. Her story illustrates that while caregiving can be incredibly demanding, it doesn't have to consume or define one's entire existence.
Thank you to our sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver: https://www.confessionsofareluctantcaregiver.com/
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
🔔 Don’t forget to like, subscribe, and share for more real stories from the frontlines of caregiving.
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Stacy Ryan’s powerful story is a testament to love, resilience, and the human capacity to heal after profound loss. Her journey began with her own cancer diagnosis at 45, which she survived, followed by her husband John’s battle with cancer that ultimately claimed his life in December 2020. Throughout their cancer journey, they demonstrated an extraordinary partnership, supporting each other with deep love and commitment, facing each challenge together with grace and vulnerability.
After losing John, Stacy chose to honor his wishes by living her life to the fullest. She channeled her grief into creative pursuits, writing a three-book series about her experiences and launching a podcast focused on her journey through widowhood. Her commitment to healing and personal growth led her to unexpected places, including finding love again with another widower named John, with whom she is now building a new life. In a beautiful tribute to her resilience, she is also preparing to open a yoga and wellness studio in the fall, continuing to pursue her passions and create meaning from her experiences.
What makes Stacy’s story particularly inspiring is her approach to grief and the healing process. She refused to be defined by her loss, instead choosing to embrace joy, laughter, and new opportunities. Her message is clear: there is no single path through grief, and it’s possible to honor past love while creating space for new love and experiences. Her journey demonstrates that life can be “brutally beautiful”—filled with profound pain, yet also incredible hope and renewal.
About Stacy:
Stacy Ryan embodies resilience, completing an Ironman at 36, surviving cancer at 45, and navigating widowhood at 52. These experiences fuel her work as a self-published author and podcaster, where she shares her journey of life, love, and loss, aiming to help others on similar paths. Her diverse career, from corporate HR to fitness director, laid the foundation for her current endeavors. Her podcast, "My Whole New Life," launched in 2023, followed by her "Whole New Life" three-book series in 2024. Stacy finds joy in motivating others to pursue what resonates with them, whether it's achieving a fitness goal or writing a book, reflecting her belief that anything is possible. Outside of work, she enjoys cycling, yoga, and time with friends and family, creating lasting memories.
Thank you to our sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver: https://www.confessionsofareluctantcaregiver.com/
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
This week, Ari Medrano delivers a powerful testament to the depth and complexity of caregiving. As a Mexican immigrant who came to the United States at age one, Ari's approach to caregiving is deeply rooted in her family's values of service, love, and compassion. Throughout the episode, she shares multiple experiences of caregiving, including caring for her cousin with bone cancer, a homeless woman named Teresa, her brother who was a victim of a violent crime, and her mother during critical health challenges.
Her caregiving journey is marked by a remarkable ability to love creatively and find joy even in the most challenging circumstances. Ari's approach goes beyond traditional caregiving, incorporating humor, sensory experiences (such as using specific scents to uplift spirits), and an unwavering commitment to supporting not only the patient but also the healthcare workers around them. Her personal experiences, including her health challenges like heart disease and a brain tumor, have shaped her perspective, allowing her to approach caregiving with empathy, resilience, and a profound understanding of both giving and receiving care.
What stands out most about Ari is her philosophy of "givers gain" and her conviction that we can experience both pain and joy simultaneously. Her stories illustrate how caregiving is not just a duty, but a calling that requires creativity, emotional intelligence, and a deep capacity for love. Whether it was bringing Santa Claus to her mother's hospital room, providing comfort to a homeless woman, or supporting her brother through his challenging health journey, Ari embodies the true spirit of compassionate caregiving.
About Ari:
Ari Medrano is a Mexican immigrant who arrived in the USA as a one-year-old, the middle child in a family of five. Her parents have been married for 58 years. Ari's caregiving journey deepened when she moved from Texas to California to care for her mother and youngest brother, who both became ill simultaneously. She provided home hospice care for her brother in his final weeks, following his brutal injuries from a bank robbery. Concurrently, she cared for her mother in the hospital for six months; her mother is now at home, receiving care from all siblings.
As a mother of two sons, Ari also acknowledges their caregiving role during her own extensive health battles, which included multiple tumors, heart disease, a brain tumor, and numerous surgeries. She refers to herself as an "Olympian patient" and serves as a go-to health advocate for her family, friends, and community. She is notably a "1% Medical Miracle" who regained full mobility after being paralyzed by a craniotomy for a brain tumor extraction. Ari's legacy is defined by her philosophy: "Love God, Love People...creatively."
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Julia Mayer, a clinical psychologist, shares her extensive caregiving journey spanning nine years, which involved caring for her father after her mother's unexpected passing and then supporting her husband Barry's mother, Jean, and stepfather, Steve. After her mother died during a heart surgery recovery, Julia and her siblings stepped in to care for their father, with her older brother taking the primary caregiver role while Julia provided weekend relief. Her father passed away about 15 months after her mother, and shortly after, they became involved in caring for Barry's parents, who were experiencing financial difficulties.
Julia and Barry relocated Jean and Steve from Florida to an apartment near them, managing their care through the use of aides, a notebook system, and personal visits. Despite Jean's combative nature and strained relationship with Barry, Julia approached caregiving with compassion, patience, and a sense of humor. Her professional background as a psychologist helped her maintain emotional distance and communicate effectively, often serving as a mediator between Jean and Barry. She focused on preserving her family relationships through open communication and involving her children in the caregiving process.
Throughout their caregiving experience, Julia and Barry collaborated closely, supporting each other emotionally and eventually turning their experiences into professional resources. They are set to publish "The Caregiver's Answer Book" with AARP in July 2025, providing comprehensive guidance for caregivers in various situations. Julia's approach to caregiving emphasizes three key principles: not taking the care recipient's suffering personally, maintaining empathy and compassion, and seeking support for oneself during the challenging caregiving journey.
Social Media
Facebook: @Julia Mayer
X: @JuliaLMayer23
Instagram: Julmayer23
LinkedIn: @Julie Mayer
Website: www.loveandmeaning.com
About Julia:
Julia L. Mayer, Psy.D is a clinical psychologist in private practice in Media, PA. She received her bachelor’s degree from the University of Pennsylvania and her doctorate in clinical psychology from Widener University. Prior to becoming a psychologist, she wrote plays and interned as an assistant to the director for a theater company in New York. She has published professionally in the APA journal, Families, Systems & Health. She also co-authored various articles with her husband, Barry J. Jacobs, Psy.D., for WebMD and HealthCentral. She has been doing individual and marital therapy for 31 years, specializing in working with women who have histories of sexual trauma, eating disorders and troubled marriages. She has increasingly focused her work on supporting caregivers. Since 2018, she has been doing a weekly podcast about psychology and social justice, called Shrinks on Third. For nine years, she was a caregiver for her father with vascular dementia and
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"I became a forever parent caregiver." - Jesse Ronne
What happens when caregiving, loss, and love collide? Jess Ronnie, writer, speaker, podcaster, and founder of The Lucas Project, brings her powerful story to the mic, offering a moving look into parenting a child with special needs, enduring grief, and building a future rooted in compassion and advocacy.
Jess opens up about the emotional and physical toll of raising her son Lucas, who has profound special needs, while managing life as a "forever caregiver" and navigating the heartbreak of losing her husband, Jason. She shares the raw realities of caregiving, the denial that can come with special needs diagnoses, and the heavy yet hopeful journey toward acceptance, remarriage, and healing.
This episode is a powerful reminder that caregivers are not alone. Jess discusses:
About Jesse:
Jess Ronne is an author, speaker, podcast host at Coffee with Caregivers, associate producer of the Unseen Documentary, and caregiver advocate. She is founder and executive director of The Lucas Project, a non-profit dedicated to providing recognition, resources and respite support for special needs families. She and her husband Ryan live in Michigan with their 8 children, including their son Lucas who has profound disabilities. Her story of beauty from ashes has been shared on The Today Show, Daily Mail and Huffington Post and is detailed in her memoir Sunlight Burning at Midnight. To follow the ongoing saga she can be found at www.jessplusthemess.com or purchase her latest books Blended with Grit & Grace, Lovin’ with Grit & Grace, and Caregiving with Grit & Grace.
Social Media
Facebook: www.facebook.com/jessronneofficial
Website: www.caregiverdoc.com
Website: www.thelucasproject.org
Website: www.jessronne.com
Thank you to sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"I felt this sense of odd FOMO." - Taylor Fix
Meet Taylor Fix, a remarkable caregiver whose journey began in childhood. Growing up in a close-knit family, caregiving was second nature. But it wasn’t until she became a farmhand and full-time caregiver for Bill, an elderly man she bonded deeply with, that Taylor truly stepped into her calling.
💬 Join us as Taylor opens up about:
About Taylor:
Taylor lives on a small Virginia farmstead with her partner, dog, and a lively mix of animals—some for food, all for love. A self-proclaimed “Jane of all trades,” she holds a degree in Animal and Poultry Science from Virginia Tech, with minors in Political Science and AgBusiness, plus a stack of certificates “as long as a CVS receipt.” With a lifelong passion for agriculture, Taylor has worked across farming, advocacy, and mental health support—drawing on her deep connection with animals to help others. She serves on multiple boards dedicated to mental health and community service, living out her calling one story (and adventure) at a time.
This episode is a must-listen for anyone navigating the world of family caregiving, supporting aging loved ones, or looking for honest conversations about the reluctance, resilience, and reality behind caregiving.
Social Media:
Instagram: Instagram: RockBottomAcres/ruminations_rba
VPAS Website: vpas.info
Thank you to our sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
🔔 Don’t forget to like, subscribe, and share for more real stories from the frontlines of caregiving.
#CaregiverSupport #FamilyCaregiving #MentalHealth #ReluctantCaregiver #CaregiverJourney #Podcast #AgingParents #EmotionalHealth #SelfCareForCareg
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"You don't know what you don't know." - Dave Krikac
What happens when love meets lifelong responsibility? The realities of caregiving for individuals with special needs, the triumphs, the trials, and the transformative love it takes to show up every day can be daunting.. Meet Dave Krikac, a devoted father raising his daughter with autism, as he shares the raw and inspiring story of his caregiving journey.
🎙️ Alongside our hosts, Dave explores critical topics that every caregiver should know:
👤 About Dave Krikac:
Dave Krikac is a seasoned business leader, advocate, and father with over 35 years of experience in IT, sales, and marketing. As Vice President at Health Connect America, and co-founder of The G.E.A.R. Foundation and Our Thrift Store, he’s dedicated his career to creating meaningful job opportunities for adults with special needs. From church planting to nonprofit leadership, Dave’s mission is clear: championing independence, inclusion, and dignity through employment.
Website:
Click to learn more to sponsor: CareScout
👨👩👧 This conversation offers practical insights, emotional validation, and forward-thinking solutions to help you support the special needs community with empathy and strength.
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
✨ Don’t forget to like, comment, and subscribe for more real-talk episodes on caregiving, advocacy, and innovation in the special needs space.
#CaregivingJourney #SpecialNeedsParenting #AutismAwareness #SpecialNeedsTrust #DisabilityAdvocacy #CommunitySupport #AIForGood #CaregiverLife #StellaAI #FutureOfCaregiving
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"I am sunny with a chance of tornadoes." - Yvette LeFlore
🎧 Intuitive energy healer Yvette LaFleur opens up about her deeply personal caregiving journey through love, loss, and healing. As the caregiver for her late husband Walter, who bravely battled stage four lung cancer, Yvette shares profound lessons on self-care, anticipatory grief, surrendering control, and honoring the wishes of a loved one.
Natalie and JJ explore with Yvette:
About Yvette:
Yvette LeFlore is an Intuitive Energy Healer and Reiki Master Teacher. Before opening her energy healing business, Yvette led a team for a popular direct sales company; she was also a teacher in prisons and drug rehabilitation centers. Over a decade ago, she found the benefit of energy healing for herself and others. When she was dating, she intended that the man she next met would be open to energy and healing work. Enter Walter. The man who not only understood and worked with energy but also supported her in building her business and leaving her 29-year career with the direct sales company. As you will hear, Walter now joins her from the spirit world in her energy healing sessions.
Social Media:
Facebook: https://www.facebook.com/healingwithyvette
LinkedIn: https://www.linkedin.com/in/yvette-leflore-9683336/
Instagram: https://www.instagram.com/healingwithyvette
Website: www.healingwithyvette.com
Are you a caregiver, or grieving a loss, or seeking emotional and spiritual insight? This heartfelt conversation offers comfort, wisdom, and connection.
THANK YOU to SPONSOR: CareScout
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
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Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
“Caregiving never ends. No, it never stops.” - Natalie and JJ
Caregiving is a journey—full of love, lessons, and let’s be honest, a few laughs along the way. In this candid conversation, we dive into the realities of caregiving: navigating skilled nursing facilities, managing emotional and financial stress, and finding strength in community. We’re also sharing what’s in store for 2025 and beyond. Too good to miss!
💡 This episode is a reminder that you’re not alone—and that support, humor, and honest conversations make all the difference.
🔑 Key Takeaways:
THANK YOU to Sponsor: CareScout
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
#Caregiving #CaregiverSupport #AgingParents #SkilledNursing #ElderCare #FamilyCaregivers #HealthcareAdvocacy #SelfCare #QualifiedIncomeTrust #HumorHeals
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
“I was in therapy, that was a lifeline.” - Allyson Schrier
This is a powerful one! Natalie and JJ sit down with Allyson Schrier as she opens up about her deeply personal and emotional journey caring for her husband, who was diagnosed with Frontotemporal Dementia (FTD).
Allison candidly shares the early signs of FTD, the heartbreaking misdiagnosis, and the uphill battle of navigating a complex healthcare system. From the shifting family dynamics to the emotional weight of caregiving, this conversation pulls back the curtain on what it really means to care for a loved one with dementia.
🌼 Key Takeaways:
About Allyson:
Allyson Schrier, co-founder and President of ZinniaTV was a caregiver for her husband with dementia, who turned that experience into a career focused on helping both people with dementia and those who care for them. Allyson became a dementia educator teaching both family and professional caregivers about best practices around supporting people with dementia. Following that, Allyson helped launch, then managed an education program at the University of Washington to equip primary and allied healthcare providers to better diagnose and support patients living with dementia. Allyson was honored to be a recipient of a 2020 Maude’s Awards for Innovation in Alzheimer’s Care, and was named Visionary Caregiver of 2020 by caregiving.com. She sits on the Health and Medical subcommittee of the Washington State Dementia Action Collaborative, facilitates support groups for spouses of people with dementia, and lectures on topics about dementia caregiving.
Social Media:
Instagram: Al.lyson80
Instagram: zinnia_tv
LinkedIn: https://www.linkedin.com/in/avschrier/
Website: www.zinniatv.com
Allison’s story offers both inspiration and practical wisdom for professionals, family members and friends alike
THANK YOU to SPONSOR: CareScout
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
“Never say never in your journey.” - Eleni Paris
Natalie and JJ sit down with Eleni Paris, a licensed therapist and devoted mom, as she shares her deeply personal journey raising her daughter Sophia, who has cognitive and speech impairments.
Eleni opens up about navigating cultural expectations, emotional burnout, and the realities of parenting a child with developmental delays—all while juggling her professional identity. From the search for a diagnosis to managing anxiety in public spaces, she speaks candidly about grief, joy, faith, and the power of vulnerability.
If you're a caregiver, a parent of a child with special needs, or simply looking for real talk about love, resilience, and finding purpose through challenges—this one’s for you.
🧠 Topics Covered:
Eleni Paris is a licensed marriage and family therapist, proud Greek-American, and devoted mother of two daughters—one of whom is cognitively disabled and speech impaired. Born and raised in Northern Virginia, Eleni holds both undergraduate and graduate degrees from Virginia Tech. She grew up surrounded by a vibrant “Big Fat Greek” family culture while also enjoying the rhythms of a classic American upbringing—a blend she considers a true blessing.
With over 27 years of marriage and a lifetime of caregiving experience, Eleni brings deep empathy and lived wisdom to her therapy practice. Her personal journey, particularly in raising a daughter with complex and undiagnosed needs, has shaped her approach to supporting families, couples, and fellow caregivers. Today, Eleni runs a thriving online practice, where she combines clinical expertise with heartfelt understanding to help others navigate life’s most personal challenges.
Social Media:
LinkedIn: linkedin.com/in/eleniparislmftllc
Website: www.eleniparislmft.com
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THANK YOU to SPONSOR: CareScout
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"He chose to keep living." - Amy Shaw
When life takes an unexpected turn, how do you find the strength to carry on? JJ and Nat sit down with Amy Shaw to share her deeply moving story raising a large family, including children with special needs, and navigating the heartbreaking journey of her husband Brian’s terminal illness.
From the first signs of illness to the devastating diagnosis of brain cancer, Amy opens up about the raw emotions, challenges, and unwavering love that defined their final moments together. She reveals the lessons learned through caregiving, the impact on family life, and the importance of legacy, hope, and resilience.
🔹 Highlights from our Confession:
💡 The first signs of illness & the shocking brain cancer diagnosis
❤️ Navigating the emotional highs and lows of caregiving
👨👩👧👦 The impact of caregiving on family dynamics & relationships
📖 Why Amy decided to share her story in a book
🌿 The importance of faith, resilience & cherishing every moment
About Amy Shaw:
Amy Shaw didn’t expect to become an end of life concierge. But after years of living abroad, having 10 children (4 biological and 6 adopted), Amy and her husband got the news. He had a terminal illness. Rather than bemoan a diagnosis, Amy and Brian chose to celebrate his life. This is what inspired her Walk the Red program which equips the diagnosed and their caregivers with a powerful protocol to help them end well. Amy says, “we’re all on the red carpet. We all get to decide how we live and how we die.” In addition to being a John Maxwell certified speaker, Amy is a modern impressionist artist who often combines her artistic abilities with her keynotes and workshops.
Social Media:
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THANK YOU to SPONSOR: CareScout
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"You have to be ready to roll with it." - Alfredo Botello
Stepping into the role of caregiver isn’t always a choice, it’s a journey filled with love, loss, and unexpected lessons. J.J. and Natalie welcome novelist and screenwriter, Alfredo Botello to open up about caring for his mother after his stepfather’s passing and navigating the challenges of Alzheimer’s and assisted living.
🔹 Key Takeaways:
✅ The emotional toll of caregiving & shifting family dynamics
✅ Misconceptions about caregiving & lessons learned along the way
✅ The power of empathy, connection & vulnerability
✅ Why self-care isn’t selfish—it’s necessary
✅ Finding joy in shared moments, even in difficult times
Alfredo Botello is a novelist and screenwriter who has worked on projects ranging from the indie Sundance Global Short La Revolucion De Iguodala to the studio tent pole Fast and Furious 9. His debut novel, 180 Days, has garnered multiple literary awards. His second novel, Spin Cycle: Notes From A Reluctant Caregiver, was published by Koehler Books on 1.14.25. He is a Fulbright Fellow in architecture and a Nicholl Fellow in screenwriting. In addition to screenplays and the novels, he contributed a chapter to the Amazon bestseller Wellness Through Words, and has written for The San Francisco Examiner Magazine, Metropolis, Diablo, Surface, The Utne Reader, Style, The East Bay Express, and The Monthly. Botello co-owns a cocktail bar in downtown Oakland, Little Bird Bar, and at home dotes on his two Corgis, George and Dotty.
Social Media:
Website: alfredobotello.com
IG: https://www.instagram.com/alfredo_botello_author/
FB: https://www.facebook.com/profile.php?id=61551868357118
LinkedIn: https://www.linkedin.com/in/alfredo-botello-aa16aaa0/
X: https://x.com/alfredobotello
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THANK YOU to SPONSOR: CareScout
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
💡 Whether you’re a caregiver or know someone who is, this honest conversation offers insights, support & encouragement for the journey.
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Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"I wanted to make the most of it." - Dona Kim Murphey
Caregiving is never just about one person, it’s about family, culture, and community. Natalie and J.J. sit down with Dr. Dona Kim Murphey, neurologist and caregiver, to explore the deeply personal and often unspoken challenges of caregiving.
From cultural expectations to the emotional and relational toll caregiving takes, this conversation dives into what it truly means to care for a loved one—especially from a distance. Dr. Murphey shares her journey shaped by her family’s experiences with illness, offering practical strategies for caregivers, the power of micro moments of self-care, and the evolving role of technology in making caregiving more manageable.
🔹 Key Takeaways:
✅ The impact of cultural expectations on caregiving roles
✅ How technology is changing the way we care for loved ones
✅ The emotional toll of caregiving & ways to protect your well-being
✅ Micro moments of self-care that make a big difference
✅ Why community support is essential for every caregiver
Social Media:
LinkedIn: https://www.linkedin.com/company/prognosus/
TikTok: https://www.tiktok.com/@prognosus
Facebook: Facebook.com/prognosus
Instagram: Instagram.com/weareprognosus
Website: PrognosUs.com
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
💡 Whether you're a caregiver or supporting one, this conversation is for you.
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💬 Join the Conversation – Share your thoughts in the comments.
#Caregiving #CaregiverSupport #FamilyCaregiving #Neurology #ElderCare #CulturalExpectations #SelfCare
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"I suffered from caregiver fatigue." - Maureen Elias
Maureen shares her journey from a structured military career to the unpredictable world of caregiving. As a mother of children on the autism spectrum, she opens up about the challenges and triumphs of parenting, the impact of military life on family dynamics, and the importance of advocacy and community support. Through personal stories of resilience, she highlights the need for understanding, resources, and the power of acceptance in the face of adversity.
Maureen Elias, a former U.S. Army counterintelligence agent, transitioned from military service to a life dedicated to advocacy and caregiving. After a medical separation in 2006, she spent 11 years as a stay-at-home mom while her husband, a 21-year Army veteran, served overseas.
Raising three children on the autism spectrum, Maureen pursued a master’s in mental health counseling, leading to roles in top veteran service organizations, the House Committee on Veterans Affairs, and the Department of Veterans Affairs. She also teaches storytelling to veterans and has recently embraced off-roading as a newfound passion.
Social Media
Linkedin www.linkedin.com/in/maureenelias
Twitter: @maureenelias2
Instagram: @maureenelias2
Highlights:
🔹 Parenting & Autism – Insights into raising children on the autism spectrum and the triumphs along the way.
🔹 Military Life & Family Dynamics – How structured service life shaped her approach to caregiving.
🔹 Challenges & Resilience – Overcoming obstacles with strength, understanding, and support.
🔹 The Power of Community – Why caregivers need advocacy, resources, and a strong support system.
🔹 Acceptance & Education – How awareness and compassion transform lives.
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
💡 Don’t miss this inspiring conversation on caregiving, resilience, and making a difference!
This heartfelt conversation is a must-watch for caregivers, military families, and anyone passionate about autism awareness.
#AutismAwareness #Caregiving #MilitaryFamilies #Parenting #Advocacy
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"Life is really short and it changes." - Kyle Daquanna
JJ and Natalie sit down with Kyle Daquanna, a male caregiver, as he shares his powerful journey of balancing work, family, and caregiving responsibilities after his father’s stroke. Kyle opens up about the emotional and logistical challenges of caregiving, the impact of family dynamics, and the difficult medical decisions caregivers face. The discussion highlights the importance of advocacy in navigating insurance systems, preparing for future caregiving needs, and finding community support. Whether you're a caregiver or supporting a loved one, this episode offers valuable insights into resilience, personal growth, and the complexities of the caregiving experience.
Kyle is a 3rd generation Floridian who lives in Sarasota Florida. He's a passionate single father of 2 boys, Adam and Kai who are 9 and 7 and he's an active Dad! Kyle coaches football, baseball and loves to take the boys camping, fishing and anything else outside! Kyle is a family man and was the 1st in his family to ever go to college. He works at Empathy where he serves as the Director of Employer Solutions. Kyle is active in his church and serves with the kids and "Next generation" - something he's very passionate about.
🔥 In This Powerful Episode, You’ll Discover:
✅ A Male Caregiver’s Perspective – Kyle shares his unique experiences stepping into the caregiver role.
✅ Emotional & Logistical Challenges – The reality of balancing work, family, and caregiving.
✅ Advocating for Loved Ones – Tips on navigating medical decisions and insurance roadblocks.
✅ Lessons in Resilience – How caregiving fosters personal growth and strengthens family bonds.
✅ Building a Support Network – Why community and preparation are crucial for caregivers.
Social Media:
Website: hicleo.com
Linked In: https://www.linkedin.com/in/kyle-daquanna/
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
💡 Why Watch? If you’re navigating caregiving or supporting a loved one, this episode offers real-life insights, hard-earned wisdom, and practical strategies to help you on your journey.
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"I forgot how to care for myself." - Tara Ross
In this powerful episode of Confessions of a Reluctant Caregiver, hosts Natalie and JJ welcome guest, Tara Ross to dive deep into the raw realities of caregiving—especially within military families. Tara opens up about her journey from falling in love with John, a dedicated Navy submariner, to facing the life-altering challenges of his traumatic brain injury.
This emotional conversation unpacks the hidden struggles of caregivers, from burnout and emotional exhaustion to the fight for proper health advocacy. Tara shares how relocating to Ohio, navigating caregiving through COVID-19, and coping with personal loss shaped her resilience. She also reveals hard-earned lessons on self-care, setting boundaries, and maintaining personal identity while supporting a loved one.
💡 In this episode, you’ll discover:
✅ The emotional toll of caregiving and how to avoid burnout 🧠💔
✅ The importance of health advocacy and speaking up for your loved one 🏥📢
✅ How COVID-19 reshaped caregiving responsibilities 🌍⚖️
✅ Strategies for balancing self-care while supporting others 💆♀️✨
✅ Why setting boundaries is essential for long-term resilience 🚧🛡️
✅ The power of a strong support system and community 🤝❤️
Learn more about Tara Ross:
Born and raised in the San Francisco Bay Area, Tara Ross split time between Marin County and the Haight-Ashbury district following their parents’ divorce. Growing up in a creative household, they were drawn to the arts, ultimately choosing graphic design as a career path.
In 2006, while attending community college, Tara met John. After a year of dating, he made the life-changing decision to join the Navy, enlisting in the Submarine Service—a choice that initially seemed to offer a sense of security from the dangers of military life. With a grandfather and uncle who had served, Tara was no stranger to the physical and emotional toll the military could take on both service members and their families.
The couple married in 2008, embarking on a journey that took them from Groton, Connecticut, to San Diego, California, where they built their life together amid the challenges and sacrifices of military service.
Social Media:
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"He needed us more than we needed him." - Nick Gaylord
This is a powerful one! Hosts Natalie and JJ sit down with Nick Gaylord to explore the raw realities of caregiving, grief, and complex family dynamics. Nick opens up about the emotional toll of caring for his father, the struggles of managing a difficult relationship, and the conflicting emotions of loss, relief, and anger after his passing.
This heartfelt conversation sheds light on:
✅ The challenges of caregiving for a parent with whom you have a complicated past
✅ Processing grief, denial, and emotional burnout
✅ The importance of seeking support and sharing your story
✅ How forgiveness can lead to healing and personal growth
If you're navigating the ups and downs of caregiving, loss, or strained family relationships, this episode offers honest insights and real-life experiences that can help you feel seen and supported.
Learn more about Nick Gaylord:
Nick has always been driven to help others. With a talent for numbers, he built a 28-year career in pharmaceutical Quality Assurance, ensuring life-changing medicines reach those in need. Yet, he longed for a deeper connection.
In January 2024, Nick launched Our Dead Dads, a podcast that creates a safe space for grief, laughter, and open conversations about losing a parent. Inspired by his own complex relationship with his late father, he hopes to normalize discussions around grief, trauma, and healing—helping others feel seen, heard, and less alone.
Social Media:
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
🔔 Subscribe for more candid conversations on caregiving, resilience, and healing!
👍 Like, comment, and share your thoughts below—we’d love to hear your story.
#Caregiving #GriefSupport #FamilyDynamics #MentalHealth #Forgiveness #Healing #
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"I was feeling angry, I was feeling resentful." - Kate Washington
JJ and Natalie sit down with author Kate Washington to uncover the emotional, financial, and mental health challenges of caregiving. Kate shares her personal journey of caring for both her mother and husband, revealing the unseen struggles caregivers face, from healthcare system hurdles to burnout and grief. Kate and the sisters, JJ and Natalie reflect on their own caregiving experiences, highlighting family dynamics, systemic issues, and the path toward healing.
🔹 The emotional toll of caregiving
🔹 Navigating healthcare challenges
🔹 The reality of caregiver burnout
🔹 Finding joy amidst the struggle
About Kate Washington:
Kate Washington is the author of Already Toast: Caregiving and Burnout In America (Beacon Press, 2021) and a frequent speaker on the systemic challenges facing family caregivers. Her writing has appeared in The New York Times, TIME, Eater, Catapult, and many other publications. She holds a Ph.D. in Victorian literature from Stanford University and lives in Sacramento with her two daughters, one very friendly dog, and one very unfriendly cat.
Social Media
Website: www.kawashington.com
Twitter: @washingtonkate
Instagram: @washingtonkate
Facebook: facebook.com/katewashington
LinkedIn: linkedin.com/in/katewashington/
Books/E-Book/Resource: https://www.penguinrandomhouse.com/books/659447/already-toast-by-kate-washington/
https://www.amazon.com/gp/product/0807055522
Media coverage of Already Toast: https://www.beacon.org/Already-Toast-P1645.aspx
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
📢 Don’t forget to like, comment, and subscribe for more real caregiver stories!
#CaregiverSupport #ConfessionsOfAReluctantCaregiver #KateWashington #MentalHealth #CaregiverBurnout #FamilyCaregiving
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"Look for the glimmers in caregiving." - Mark Wilson
Hosts JJ and Natalie sit down with Mark Wilson, a former corporate executive who left his successful career to become a full-time caregiver after his mother’s Alzheimer’s diagnosis.
🔹 Mark’s Caregiving Journey – The emotional transition from executive to caregiver
🔹 Building a Support System – How to create a strong caregiving team
🔹 Lessons in Love & Connection – The power of family support and resilience
🔹 Solo Caregiver Advice – Practical strategies for those navigating caregiving alone
Mark shares his personal experiences, from the challenges of balancing career and caregiving to the joys found in daily interactions. After his mother's passing, he became a passionate advocate for Alzheimer’s awareness and patient rights, offering hope and guidance for caregivers.
About Mark Wilson:
Mark spent more than 20 years in corporate roles leading training, recognition and rewards programs, leadership and executive development with companies like PepsiCo, Taco Bell and yum brand.
After his mom, Lena, was diagnosed with Alzheimer’s he left his career to take care of her time at home.
When his mom received the diagnosis, they were told she had roughly five more years. That was an aha moment where he decided he going to do everything to prove them wrong - she was meant to live a lot longer!
Love, learning, leadership, and getting results is makes “secret sauce” and he’s sharing the recipe today!
Connect with Mark::
LinkedIn: www.linkedin.com/in/mark-wilson-
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
🎧 Subscribe for more real-life caregiver stories and expert advice!
👍 Like, comment, and share to support caregivers everywhere!
#Alzheimers #Caregiving #DementiaAwareness #CaregiverSupport #ConfessionsOfAReluctantCaregiver
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"Dementia gave us that gift of closeness." - Katrina Prescott
In this compelling episode of The Confessions of a Reluctant Caregiver podcast, hosts JJ and Natalie dive into the world of caregiving with special guest Katrina Prescott, a media producer turned caregiving advocate. 🌟
Katrina opens up about her unexpected journey into caregiving, starting at a young age, and shares invaluable lessons on overcoming the emotional, mental, and systemic challenges caregivers face. From navigating the healthcare maze to advocating for better resources, Katrina's story is both eye-opening and empowering.
Katrina also sheds light on her personal experiences caregiving for individuals with dementia. She discusses the emotional toll, finding moments of joy, and how therapeutic fibbing can help reduce anxiety for both caregivers and those they love. It’s these insights that reveal the importance of shifting societal perceptions of dementia and creating supportive communities for caregivers.
🎙️ Key Topics in This Episode:
About Katrina:
Katrina Prescott loves a challenge. With a career as a media producer in New York and Vancouver, she found herself stepping into a new role: full-time caregiver. That life-changing shift made her see firsthand how little support is available for caregivers.
Caring for her mother through young onset dementia took Katrina in a new direction—caregiving advocacy and education. Now, as a Caregiver Coach, she draws from her experience, offering judgment-free guidance for others navigating this often isolating, stressful, and unexpectedly meaningful journey.
By sharing her story openly, she hopes to spare others from the challenges she faced, aiming to reduce suffering and unnecessary work for caregivers. Her style is clear, real, and relatable, offering insights that are both effective and manageable.
With her background in producing, Katrina co-created the web series Therapeutic Fibbing, which combines real-life caregiving scenarios with learning and a touch of lightness to connect with caregivers of those living with dementia. The series has resonated with over a million viewers, offering relatable insights. Her latest project, Things Not To Say To A Caregiver, uses humor to highlight the real-life challenges caregivers face, showing these situations in a way that feels both authentic and reflective of their experiences.
In 2023, Katrina was recognized with the Caregiver Advocacy Award from the Canadian Centre for Caregiving Excellence.
She’s passionate about dri
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"It's OK not to know everything." - Tracee Loran
In this heartfelt episode of Confessions of a Reluctant Caregiver, hosts JJ, Natalie, and Tracee Loran dive into the unexpected twists and turns of caregiving. Tracy shares her deeply personal story of stepping into the caregiver role for her grandmother after a serious fall, shedding light on:
💡 Family dynamics & cultural expectations
💡 Balancing independence & caregiving responsibilities
💡 The emotional toll & career impact of caregiving
💡 Tips for self-care and preserving creativity as a caregiver
From navigating complex regulations to honoring her grandmother's rich history, Tracee opens up about the challenges, lessons, and growth that come with caregiving. She emphasizes the power of storytelling, the importance of self-care, and finding joy amidst the responsibilities.
Whether you're a caregiver, family member, or simply curious about the realities of caregiving, this episode offers valuable insights and inspiration.
About Tracee Loran:
Tracee Loran is a versatile actress, writer, producer, and content creator based in New York City.Her career took an unexpected turn when, during her first acting role, she was invited to join the writers room, which opened doors to numerous writing and production projects.
Tracee has appeared in national TV commercials for renowned brands such as HBO, FedEx, AT&T, Arby’s, and Sony. For the past six years, she has balanced her time between New York City and Mississippi, where she lovingly cared for her 97-year-old grandmother.
She is the creator of Black History Baddies, a celebrated video series with over 1.5 million views across social media.
Tracee was inspired to create the series during her time in Mississippi after reading about Claudette Colvin, an unsung civil rights pioneer. The series spotlights the achievements of Black women trailblazers who deserve greater recognition. Tracee passionately amplifies these stories to empower and inspire.
In this one-woman show, Tracee takes on multiple roles: she writes, acts, directs, edits, researches, and handles cinematography and costume design—all on her own.
You can connect with Tracee on YouTube, TikTok, X, and Instagram under the handle Tracee
Loran or visit her website at www.traceeloran.com.
Social Media
Website: https://traceeloran.com/
Twitter: https://twitter.com/traceeloran
Instagram: https://www.instagram.com/traceeloran/
Facebook: https://www.facebook.com/traceeloran
LinkedIn: https://www.linkedin.com/in/tracee-loran-2712896/
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"I finally found my purpose." - Adrienne Marioles
🎙️ Confessions of a Reluctant Caregiver brings you another raw and relatable episode as hosts Natalie and JJ sit down with Adrienne Marioles, a millennial caregiver with a story that’s equal parts inspiring and real. Adrienne opens up about her leap from the hustle and bustle of New York City to the emotional rollercoaster of caring for her mom, who’s battling Parkinson’s disease.
Expect heartfelt confessions, a few laughs, and some seriously honest moments as Adrienne talks about the isolation, anxiety, and unexpected joys that come with caregiving. She gets real about how therapy and finding a supportive community helped her navigate the ups and downs of this journey.
Adrienne also shares her own experience of caregiving for her mom, touching on the emotional toll, anticipatory grief, and those tough decisions that no one prepares you for. Through it all, she shows how she turned her struggles into a mission to uplift and empower others in the caregiving world.
It’s a conversation full of warmth, wisdom, and a reminder that caregivers are never truly alone.
Adrienne Glusman Marioles is the host of the Young Life Interrupted Podcast, the premier show dedicated to young caregivers. As a professional speaker and advocate for Millennial caregiving, Adrienne shares her personal journey as an only-child caregiver for her mother, Hetty, who lived with Multiple System Atrophy (MSA) before passing away in 2020.
Adrienne’s story has been highlighted in the Wall Street Journal's article "The Call to Care for Aging Parents Comes Sooner Now," and featured on podcasts like Next Question with Katie Couric. Her experiences have also been covered in Health magazine, the Toronto Sun, Vox.com, and more.
Connect with Adrienne on Instagram and Facebook @younglifeinterrupted to follow her journey and find support as a young caregiver.
Social Media:
Instagram: https://www.instagram.com/younglifeinterruptedpodcast/
Facebook: https://www.facebook.com/younglifeinterrupted
Linked In: https://www.linkedin.com/in/adrienneglusman/
Podcast URL:
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"Let's not sugarcoat it; it's hard." - Dr. Jacob Kendall
In this episode of Confessions of a Reluctant Caregiver, JJ and Natalie chat with Dr. Jacob Kendall, who opens up about his life-changing experience as a caregiver after his father’s health crisis. It’s a conversation filled with heartfelt stories, relatable struggles, and powerful insights into the rollercoaster of caregiving.
Jacob shares what it’s really like to juggle the emotional and practical challenges of stepping into a caregiving role, all while trying to keep up with life’s other demands. Natalie, JJ and Jacob dive into the importance of family dynamics, planning ahead, and how multi-generational living might just be the future of caregiving.
This episode feels like a conversation with old friends as they tackle the messy, rewarding, and sometimes frustrating realities of caregiving. It’s packed with tips, hard-earned lessons, and a reminder that you’re not alone on this journey.
Social Media:
Website: https://jacobevanskendall.com
Linked In: https://www.linkedin.com/in/jacobevanskendall/
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
"You can bring back the color and the light." - Kelci Jager
Kelci Jagger shares her powerful and emotional story of overcoming tragic loss and grief through the support of her community and finding power in living in the light. Her incredible journey chronicles a series of tragic events including a dangerous accident with her two sons and her husband’s heart-breaking leukemia diagnosis. Losing a loved one can be one of the most painful experiences we go through in life, and it's often hard to imagine how we can move forward without them.
If you're struggling with grief or loss, Kelci’s story is an inspiration in perseverance and love.
*******
About Kelci Jager:
Kelci Jager is a Certified Life Coach, Grief Coach, Registered Nurse, and Author of the book “A Million Miracles and the One That Never Came” and found herself navigating the challenging terrain of grief when she lost her 40-year-old husband to leukemia. Left to pick up the pieces of her shattered life as a solo parent to their four sons, Kelci faced the fear of her children losing her too. However, her determination to RISE and thrive became her driving force. With a blend of professional expertise and a deeply personal journey as a widow and solo parent, Kelci possesses a strong foundation and a unique perspective. She is passionately committed to providing support and guiding others on their grief journey.
Links:
Website: RISEwithgrief.com
Social Media:
Facebook: www.facebook.com/kelci.calljager
Instagram: www.instagram.com/kelci.jager/
LinkedIn: www.linkedin.com/in/kelci-jager-6a3788a0/
Buy The Book “Million Miracles That Never Came”
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC