The Lost Episode: Looking Back with the Original Reluctant Caregivers
Confessions of a Reluctant Caregiver
In August 2023, Confessions of a Reluctant Caregiver took an exciting leap across the pond — airing on UK Health Radio and sharing caregiver stories with an international audience for the first time.
But there was just one catch…
They had 45 minutes or less to tell their story.
Unlike their five-part U.S. debut series, the sisters — Natalie, JJ, and Emilie — had to condense years of caregiving, laughter, loss, and growth into one whirlwind episode.
So, for National Family Caregivers Month, we’re rewinding to that moment.
To how it all began.
To see just how much caregiving — and caregivers — have evolved in the 26 months since that UK debut.
Join us as the sisters (lovingly) battle for the mic to share it all — from Jason’s cancer diagnosis and Mom’s Parkinson’s journey, to their first lessons in skilled nursing, advocacy, and the messy mix of grief and guilt that shaped who they are today.
All this… in just 45 minutes.
Tune in, laugh, cry, and remember: we may all be reluctant caregivers at first, but together, we find the courage to keep going.
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Competing Priorities: Balancing Family, Career and Caregiving
Confessions of a Reluctant Caregiver
In this episode, Ed DeVaney joins the sisters of "Confessions of a Reluctant Caregiver" to share his deeply personal caregiving experience. Raised in a competitive and close-knit Irish Catholic family in Chicago, Ed describes a childhood filled with familial connections and strong influences from his mother, who not only modeled the values of care and perseverance but also became the central figure in his own journey as a caregiver. When Ed moved to North Carolina for a major career opportunity, it coincided with the onset of his mother's dementia and Alzheimer’s diagnosis—changes that altered the dynamic of his family and thrust him, alongside his two older sisters, into the complexities of caring for an ailing parent.
Ed speaks candidly about the emotional and logistical challenges that came with balancing his professional growth, the demands of an MBA program, and raising his young family while regularly traveling back to Chicago to help care for his mom. He highlights the family tensions, the guilt of missing pivotal moments in his children’s lives, and the difficulties of honoring his mother’s wish never to enter a nursing home—a promise the siblings ultimately struggled with before acknowledging her increasing needs. Looking back, Ed shares honest reflections on vulnerability, the importance of asking for help, and the lessons this experience has taught him as both a leader and a father. Above all, his story underscores the universal challenges faced by caregivers, the enduring bonds of family, and the need for grace—toward others and oneself—throughout the journey.
About Ed:
Ed DeVaney is a Chicago native from a large, close-knit family. Growing up, he was a dedicated athlete, and that competitive spirit continues to drive him today. Ed has been married to his wife, Michelle, for 20 years, and together they have three children: Grace, Chloe, and Ryan. Their family also includes three dogs: Lakota, Lola, and Poncho.
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Dad, Devotion, and Dancing: Finding Joy in the Hardest Goodbye
Confessions of a Reluctant Caregiver
This week’s episode focuses on Christopher “Chris” Schuler—his journey as a son, father, and most notably, a devoted caregiver. Chris, adopted from Colombia and raised in a loving, close-knit family in New York, reflects deeply on identity, belonging, and the power of chosen family. His parents’ move to Rhode Island marked a period of even stronger family bonds, which would later prove invaluable when his father was diagnosed with glioblastoma, an aggressive form of brain cancer. The diagnosis and subsequent caregiving experience were transformative for Chris: he describes the initial shock, the emotional toll of shifting immediately into crisis mode, and the unwavering determination to care for his father, drawing strength from childhood lessons of love, attachment, and resilience.
Throughout his father's illness, Chris balanced being a parent himself, maintaining his job, and providing near-round-the-clock care. He candidly shares the physical and mental challenges of caregiving, including the toll on his own health and the burnout that caregivers often experience. Yet, amidst the difficulty, he found meaning by staying present, bringing humor to dark moments, and cherishing precious time with loved ones. The experience has forever changed Chris—today, he proudly claims his identity as “Dad,” guided by his father’s legacy of love and laughter, and is committed to using his voice to support and advocate for other caregivers navigating similar journeys.
About Chris:
Chris is a staunch brain cancer awareness advocate. He was the primary caregiver to his late Dad, Donald Schuler, who was diagnosed with GBM in July 2021. He works closely with biotech’s and patient advocacy organizations across the globe, amplifying their critical work and building key relationships to further improve outcomes for patients. He spent eighteen years as a successful philanthropic facilitator, having raised millions for a variety of causes. He's currently a Venture Partner with Varia Ventures, working to raise awareness for emerging venture funds dedicated to uncovering and funding innovative discoveries to improve brain health. Chris continues as his Dad's caregiver — caregiver to his life, legacy and memory.
Thank you to sponsor: CareScout
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Not Stuck in the Yuck: Tricia’s Story of Family, Advocacy, and Strength
Confessions of a Reluctant Caregiver
Tricia Fitzgerald brings a deeply personal and candid perspective to the experiences of long-term caregiving within a family affected by chronic illness. Drawing from over two decades of advocacy and professional work supporting children and families, Tricia’s story is rooted in her own journey—beginning with undiagnosed chronic illness symptoms as a child and culminating in the late discovery of Ankylosing Spondylitis and rheumatoid arthritis in adulthood. These diagnoses not only shaped her own life but also set the stage for her caregiving journey when several of her six children began exhibiting similar autoimmune conditions, adding layers of both challenge and resilience to her role as a mother and advocate.
Through her story, Tricia highlights the complexities of navigating the medical system, including the frequent dismissal of symptoms, gender disparities in medical treatment, and the persistent need to advocate fiercely for proper diagnoses and care. She candidly shares the toll caregiving takes on personal well-being, marriage, and professional life, while emphasizing how communication, mutual support, and humor—such as the family’s use of “mashed potatoes” or “mockingbird” as de-escalation cues—have fortified her marriage and family bonds. Tricia also reflects on the importance of self-care, finding joy in small moments, and encouraging her children to develop their own voices as advocates as they transition into adulthood.
Her journey is one of perseverance, love, and a relentless pursuit of both care and authenticity, making her story both inspiring and deeply relatable for caregivers everywhere.
About Tricia:
Tricia Fitzgerald, M.Ed., is a seasoned leader in social and family services with over 20 years of experience in education, advocacy, and program management. As the Program Director for Maryville Crisis Nursery, she oversees critical services for families in crisis. Her expertise is further honed by her role as Adjunct Faculty in the College of Education at DePaul University, where she has trained and supervised aspiring teachers since 2005.
Tricia is also the founder of Gentle Beginning, Inc., through which she provided childbirth education, doula services, and family advocacy for a decade. Her professional passion for supporting families is deeply personal; as a mother of six children, all with chronic health conditions, she brings unparalleled empathy and firsthand knowledge to her work. Tricia is a dedicated advocate, committed to ensuring every child and family has the resources and support they need to thrive.
Thank you to sponsor: CareScout
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Disrupting Care: How Neal Shah Is Revolutionizing Support for Families
Confessions of a Reluctant Caregiver
Neal Shah’s journey, showcases the impact of caregiving on individual lives and the broader healthcare system. Raised in a close-knit immigrant family, Neal's values were shaped early by the examples set by his parents and grandparents. After building an impressive career in finance, a series of personal experiences as a caregiver—first supporting his grandfather through end-of-life care, then facing his wife’s severe illness—transformed his outlook and priorities. He became intimately aware of both the emotional toll and practical challenges caregivers face and the systemic flaws that make caregiving in America so difficult.
These experiences motivated Neal to leave his high-powered finance career to focus on creating social impact. He founded Carry Ya, a not-for-profit project that connects families in need with qualified, motivated student caregivers at affordable rates, disrupting the expensive, often impersonal agency model.
Neal is also the author of the book "Insured to Death," which exposes the failures of the American health insurance system, and he launched Counterforce Health, an AI-powered platform that empowers patients and caregivers to fight insurance denials. Neal’s innovative, empathetic responses to systemic challenges underline his commitment to honoring caregivers as the backbone of the healthcare system and ensuring that their support, as well as that of care recipients, is financially and emotionally sustainable.
About Neal:
America's Chief Elder Officer. CEO of CareYaya Health Technologies and Chairman of Counterforce Health. Working hard to improve healthcare. Author of #1 Bestseller in Health Policy, "Insured to Death: How Health Insurance Screws Over Americans - And How We Take It Back". After a successful career as a $250 million hedge fund manager, deeply personal caregiving experiences inspired a pivot to social entrepreneurship. Now, determined to transform care delivery through technology.
Building a rapidly-growing tech startup to expand access to affordable care. Pioneering cutting-edge AI applications and neurotechology to fundamentally elevate quality of life for those needing care. Motivated by creativity and humanitarian progress.
Leveraging experiences guiding multi-billion dollar investments to make an impact on improving care for our most vulnerable populations. Leading with both heart and analytical rigor.
Building unrivaled technical capabilities and strategic partnerships to establish CareYaya as America's leading launchpad for care innovation. Together, let's build a better future for care!
Thank you to sponsor: CareScout
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
When Life Calls: Zack’s Story of Stepping Up for Family and Changing the Caregiving Conversation
Confessions of a Reluctant Caregiver
Zack Demopoulos’s story begins with his upbringing as the proud son of Greek immigrants, whose journey to the United States instilled in him a deep sense of gratitude, resilience, and responsibility. He shares how his family’s experiences shaped his values and work ethic, from working in his father’s restaurant as a teenager to pursuing higher education and a successful corporate career. Zack’s life took a dramatic turn in 2006 when he was suddenly thrust into the role of caregiver for his father after a major stroke, all while balancing a demanding job and a young family of his own.
Throughout the episode, Zack candidly discusses the emotional, logistical, and financial challenges of caregiving, including the complexities of sibling dynamics and the importance of open communication and planning. He reflects on the mistakes and lessons learned during his father’s illness, such as the need to involve siblings, have difficult end-of-life conversations, and seek out resources—even when they seem limited. Zack’s journey didn’t end with his father; he later became a key support for his mother, applying the hard-earned wisdom from his earlier experiences to ensure her well-being and dignity.
Now, Zack channels his expertise and empathy into advocacy for working caregivers. Drawing on his background in HR, home care, and personal caregiving, he collaborates with his partner Selma to develop resources and support systems for employees balancing work and caregiving responsibilities. Zack’s story is a testament to the resilience of caregivers and the critical need for greater awareness, support, and compassion in both families and workplaces.
About Zack:
Zack Demopoulos along with his partner Selma Archer founded ieadvocates llc, or Invisible Employee Advocates, a consulting firm created to support working caregivers by working with their employers. He has over 36 years of diverse experience working in the corporate and small business environments. His expertise spans across sales management; executive leadership; human resources; diversity, equity, and inclusion; small business; board leadership; and caregiving. Zack along with his wife Phyllis founded and operated a home care agency for 13 years, helping over 500 families care for their family loved ones, and hiring over 700 professional caregivers to provide that care.
Zack is a caregiver advocate as well as a caregiver--long distance for his mother who is in a nursing home in Charlotte NC. He commutes 1-2 x every four months to spend time with her and be her advocate.
Zack with his wife, Phyllis, reside in New Jersey and spend significant time with their family who live nearby and include 2 rescue dogs, three adult children, their spouses, and 3 grandchildren.
Thank you to sponsor: CareScout
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Compassion in Action: Donna’s Path from Caregiver to Changemaker
Confessions of a Reluctant Caregiver
With a lifelong passion for nursing, Donna Steigleder’s journey began in her childhood and evolved into a career in healthcare, where she gained a wealth of experience across various medical settings. Her personal caregiving story started early, as she recognized and advocated for her daughter’s mental health needs at a time when such issues were often dismissed. Despite resistance from family and medical professionals, Donna’s persistence ensured her daughter received the care she needed, ultimately enabling her to thrive as an adult and nurse herself.
Donna’s caregiving responsibilities expanded over the years, encompassing her first husband, who struggled with denial about his MS diagnosis, and later her mother, who battled cancer. Balancing full-time work, Donna managed complex medical care at home, often feeling isolated and emotionally compartmentalized to cope with the relentless demands. Her experience as a director of employee relations gave her unique insight into the challenges working caregivers face, and she advocated for flexibility and support within her organization.
Recognizing the lack of accessible resources for caregivers, Donna created the “Healthcare to Home Care” website, a comprehensive hub for practical information and community connections. She also launched the “Compassion Mission” initiative, encouraging churches to support caregivers and those in need within their congregations. Donna’s story is not only one of personal sacrifice and strength but also of transforming her experiences into resources and advocacy to uplift others navigating the caregiving journey.
About Donna:
Donna Steigleder, a native of Henry, Virginia, began her career with a passion for writing and leadership, graduating in the top 1% of her high school class. After earning her nursing diploma, she obtained her Bachelor of Science in Nursing. Her first job as a nurse clinician provided a broad range of experience, leading to her promotion to Director of Human Resources. After a divorce, she became a single mother and took on a second job to support her family. Following her marriage to Lynn Steigleder in 1997, she transitioned to working from home to care for him while continuing her HR duties until her retirement in 2018. Now retired, Donna has combined her personal caregiving experience with her professional healthcare background to create Healthcare to Homecare, a website offering resources for family caregivers. She is also an advocate for churches to provide support to the sick and needy in their communities.
Thank you to sponsor: CareScout
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
The Power of the Pause: Finding Relief in Caregiving with Jenn Fredericks
Confessions of a Reluctant Caregiver
Jenn Fredericks is the featured guest in this episode, sharing her deeply personal journey as both a long-term patient and a dedicated caregiver. Diagnosed with chronic kidney disease as a teenager, Jenn received her first kidney transplant from her father at age 15, and later a second from her husband’s twin brother. Her life took another challenging turn when her adopted daughter was diagnosed with a brain tumor at the age of eight. Jenn describes the overwhelming responsibilities of managing her own health while navigating her daughter’s complex medical needs, all while supporting her family and working through the emotional toll of caregiving.
Throughout the episode, Jenn offers candid insights into the realities of caregiver exhaustion, discussing moments of vulnerability, anxiety, and the struggle to maintain resilience. She emphasizes the importance of taking intentional pauses—physical, mental, emotional, and spiritual—to recharge and remain present for loved ones. Drawing from her experiences, Jenn has developed resources such as a caregiver exhaustion quiz and founded the Carewell Circle, an online community for caregivers seeking support and connection. Her story is a testament to the power of self-awareness, community, and proactive self-care in the face of ongoing caregiving challenges.
About Jenn:
Jenn Fredericks understands the unique challenges of caregiving from a deeply personal perspective. For over 30 years, she has navigated her own health journey with chronic kidney disease, which has included two transplants. For more than a decade, she has also been a caregiver for her daughter through complex health challenges, including a brain tumor, and she now provides long-distance care for her parents.
This extensive experience led Jenn to a powerful realization. While others called her "resilient," she often felt overwhelmed, to the point of being unable to walk through her own front door. Recognizing the gap between her inner feelings and the world's perception, she became a Personal Resilience Practitioner and Prosilience Coach. She discovered that true resilience isn't about being tougher; it begins with learning how to find small moments of presence, even in the middle of chaos.
To share these insights with other caregivers, Jenn founded Carewell Circle, a community for those who understand the complex emotions of loving someone deeply while feeling trapped. She has also created a guide titled "Caregiving Relief You Don't Have to Wait For." Through her work, she teaches others the same powerful techniques that helped her find peace amidst her own challenges.
Quiz: “What’s Draining You Most Right Now?”
subscribepage.io/caregiverquiz
Carewell Circle:
swarm.store/jenn-fredericks-prosilience-coach
Thank you to our sponsor: CareScout
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
The Power of Three and Twelve: Jason’s Caregiving Blueprint
Confessions of a Reluctant Caregiver
Jason Binder, the founder of Aware Coaching, is a dedicated husband and father of five. His caregiving journey began unexpectedly when his wife, Tracy, a lively marathon runner and mother, received a diagnosis of glioblastoma, a terminal brain cancer. This news came just weeks after they had moved into their dream farmhouse. Drawing on his background in pharma and his experience as a change agent, Jason quickly mobilized a support network, leveraging both his professional connections and the strength of his local community to ensure Tracy received the best possible care. His story is one of resilience, as he navigated the emotional and logistical challenges of caregiving while maintaining a sense of hope and purpose for his family.
Throughout our conversation, Jason shares candidly about the toll that long-term caregiving has taken on his mental and physical health, as well as the impact on his children and marriage. He discusses the importance of building a strong support system—what he calls the “three and twelve”—and the need for emotional resilience, especially for men in caregiving roles. Jason’s commitment to advocacy extends beyond his own family; through Aware Coaching, he offers free support and resources to other families affected by brain cancer, aiming to change the narrative around male caregivers and reduce the alarming rate at which female patients are abandoned during serious illness. His story is both inspiring and deeply human, offering valuable insights and hope to anyone facing similar challenges.
About Jason:
Jason Binder is a caregiver, advocate, and founder of Aware Coaching, a free support service for families impacted by brain cancer. His journey began when his wife, Tracy, was diagnosed with glioblastoma in 2022, thrusting him into the uncharted territory of high-stakes caregiving while raising five children. Drawing from his background as a pharmaceutical executive in oncology, Jason blends professional expertise with lived experience to help others navigate the emotional, relational, and practical realities of cancer.
Through Aware Coaching, Jason offers coaching and AI-driven tools like the GBM AI Agent to provide patients and caregivers with real-time answers, hope, and connection. He is also the creator of BrainStorm Health, a substack platform using anonymized caregiver and patient conversations to identify unmet needs and influence care innovation.
Jason’s work is rooted in a belief that no one should face a brain cancer diagnosis alone — and that emotional resilience and relational health are as essential to quality of life as medical treatment. He speaks candidly about the toll caregiving takes, the importance of community, and the need for better integration of patient and caregiver voices in research, clinical trials, and healthcare policy.
Thank you to our sponsor: CareScout
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Boundaries, Faith, and Family: Lessons from Jenifer Massie’s Caregiving Journey
Confessions of a Reluctant Caregiver
From a young age, Jenifer Massie was immersed in a culture of service, beginning with volunteering in her school’s “gramps and grannies” program and extending to caring for her own family members. Her caregiving roles evolved over the years, from supporting her grandmother and great aunt to becoming a “sandwich caregiver” while raising her own children. Jenifer’s approach to caregiving was shaped by her family’s tradition of stepping in where needed, often without formal discussions, and by her deep sense of gratitude and responsibility.
A pivotal chapter in Jenifer’s journey came when her oldest brother was diagnosed with stage four lung cancer, and she became part of his care team. This period was marked by emotional vulnerability, profound family connection, and ultimately, her own diagnosis with colorectal cancer just weeks before her brother’s passing. Experiencing both sides of care—giving and receiving—transformed Jenifer’s perspective, teaching her the importance of self-advocacy, setting boundaries, and embracing vulnerability. Her faith played a central role in her healing and resilience, guiding her through the most challenging moments. Today, Jenifer channels her experiences into her professional work, supporting other caregivers and advocating for resources, self-care, and open family communication. Her story is a reminder of the strength found in community, the necessity of self-care, and the enduring impact of compassion.
About Jenifer:
Jenifer Alty Massie, Regional Director BrightStar Care, is a dedicated advocate for compassionate care and community support. A Lynchburg native, she deeply values the strong sense of connection between caregivers, clients, and staff.
Before dedicating herself to raising three children, Jenifer worked as a counselor for runaway and at-risk youth, providing guidance and support during critical times. Over the years, she has also cared for aging and terminally ill family members, gaining firsthand experience in the importance of quality home care.
In 2021, Jenifer was diagnosed with colorectal cancer, an experience that gave her a profound understanding of the impact exceptional home care can have during times of pain and uncertainty. She believes that the relationships between clients, caregivers, and nurses can provide comfort and stability when it is needed most.
Thank you to our sponsor: CareScout
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Surviving the Grief Buffet: Angela’s Journey Through Caregiving and Loss
Confessions of a Reluctant Caregiver
Over the course of several years, Angela Ibarra faced a series of profound losses, including her husband, her mother, her job, and eventually her father. Her caregiving journey began early, shaped by a childhood spent supporting a sister with muscular dystrophy and later intensified as she became the primary caregiver for her mother, who suffered from Alzheimer’s. Angela candidly shares the emotional toll of watching her mother’s personality change, the exhaustion of managing her care, and the heartbreak of feeling both anger and love during her mother’s decline. She describes the unique pain of grieving someone long before their physical passing and the complicated relief that can accompany the end of a loved one’s suffering.
Angela’s story is also one of adaptation and self-discovery. After losing her husband and mother within weeks of each other, and later her father, Angela was forced to confront not only her grief but also the impact these experiences had on her career and sense of self. She speaks openly about the challenges of returning to work, the lack of understanding from colleagues, and the eventual loss of her job, which became a catalyst for seeking therapy and reevaluating her life’s direction. Through writing, connecting with others, and embracing her vulnerability, Angela has found new purpose in sharing her story and supporting others who are navigating similar journeys. Her reflections underscore the importance of self-compassion, the messiness of caregiving, and the ongoing process of healing after loss.
Thank you to sponsor: CareScout
Angela Ibarra is a former VP of HR who spent over 30 years at HP in a variety of leadership roles. Now, she helps entrepreneurs launch their own staffing agencies. She is still figuring out who she wants to be when she grows up. What she can say is that she is a survivor, a storyteller, and a lifelong work in progress.
She has raised an incredible and very spirited daughter who has taught her the importance of having several bottles of red wine on hand at all times.
She now proudly answers to "Gigi" to a growing crew of grandkids, which is a whole different level of joy.
When she's not coaching future business owners, she's probably writing, cooking, sipping wine, or watching animal videos, which is one of her passions. She is known as the animal whisperer.
Whether through poetry, songwriting, or her in-progress book, she believes in the power of sharing stories—the real ones, with heart, grit, and humor. And yes, she’s got a few to share.
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Did Mom Drop Acid? Navigating Dementia and Family Dynamics
Confessions of a Reluctant Caregiver
Michelle Cain’s journey as a caregiver began when her mother was diagnosed with Lewy Body dementia during the pandemic, a time already fraught with uncertainty and stress. At 47, Michelle found herself in the “sandwich generation,” balancing the needs of her own family—her husband and two sons—with the increasing demands of caring for her mother. The diagnosis came as a shock, and Michelle quickly had to navigate the complexities of her mother’s delusions, the challenges of finding appropriate care, and the emotional toll of watching a parent’s health decline. Despite a complicated relationship with her mother, Michelle became the primary caregiver, a role shaped by both proximity and necessity.
Throughout this experience, Michelle confronted not only the practical aspects of caregiving but also deep-seated emotional issues. Her mother’s illness unearthed decades of unresolved resentment and anger, forcing Michelle to process and ultimately find forgiveness. This journey was made even more challenging by the pressures of the pandemic and personal struggles within her own family, including her son’s eating disorder and her ongoing commitment to sobriety. Michelle’s story is one of resilience and growth—she openly shares how her caregiving role, though difficult, became a catalyst for healing and self-discovery.
Michelle’s insights, captured in her book “Did Mom Drop Acid?”, offer valuable lessons for others in similar situations. She emphasizes the importance of accepting help, maintaining a sense of humor, and recognizing that grief and forgiveness are complex, ongoing processes. Her candid reflections provide hope and guidance for caregivers facing their own challenges, illustrating that even in the midst of chaos, there can be unexpected gifts and opportunities for personal transformation.
Thank you to sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver: https://confessionsofareluctantcaregiver.com/
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
The Power of Family: Navigating ALS Across Generations
Confessions of a Reluctant Caregiver
The story of Mollie and Maureen powerfully illustrates the emotional depth and complexities of family caregiving when ALS profoundly impacts a household. Maureen, a pediatric nurse from Philadelphia, took on the primary caregiving role for her mother after her father's death. This decision was driven by both her medical background and a deep sense of love and responsibility. She skillfully managed the demands of her career, family, and caregiving, coordinating her siblings and extended family to honor her mother's desire to remain at home. The path to an ALS diagnosis was uncertain, involving multiple specialists and a gradual understanding of the disease's progression. Despite her professional experience, Maureen found herself learning extensively about ALS, underscoring how even healthcare professionals face significant learning curves when caring for loved ones.
Maureen's daughter, Mollie, offered a distinct perspective as a support to her mother and as a member of the next generation grappling with the implications of a genetic disease. After her grandmother's diagnosis and passing, Mollie's career shifted toward pharmaceuticals and rare disease case management, fueled by her connection to ALS. She also confronted the difficult decision of genetic testing, discovering she carried a mutation linked to ALS. This knowledge influenced significant life choices, including family planning and open discussions with her now-husband about their future.
Their narrative highlights the importance of workplace flexibility for caregivers, the value of transparent family communication, and the necessity of support systems, both within and outside the family. Through their involvement, they are contributing to a more informed and compassionate approach to ALS and caregiving, offering hope and guidance to others navigating similar journeys.
Thank you to sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver: https://confessionsofareluctantcaregiver.com/
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Confessions of a Young Widow: Rising Above Grief
Confessions of a Reluctant Caregiver
Shannon Traphagen became a caregiver at 43 when her husband Mike was diagnosed with incurable brain cancer. Their 14-month battle was fraught with heartbreak, including losing an adoption opportunity just before his diagnosis. Despite the challenges, Shannon showed remarkable strength, focusing on Mike's care while managing her own health and emotions.
Her experience highlights the emotional challenges of caregiving for young couples facing medical crises. Shannon and Mike's relationship stayed strong through his illness, with Shannon noting their silent communication in his final hours. After Mike's death, she turned her grief into purpose by creating the "Game On Glio" podcast to support others and focusing on her healing through counseling, self-care, and openness to love again.
Today, Shannon honors Mike's memory while building a new life. She’s writing a book about their journey to share hope and resilience. Her goals are to find love, stay healthy, and create a lively, connected home. Her story shows how caregivers can survive loss and stay hopeful.
Thank you to sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver: https://confessionsofareluctantcaregiver.com/
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
Shannon Traphagen became a caregiver at 43 when her husband, Mike, was diagnosed with incurable brain cancer. Their 14-month journey was filled with challenges, including the heartbreak of losing an adoption opportunity shortly before his diagnosis. Despite this, Shannon focused on Mike's care and maintained her own well-being.
After Mike's passing, Shannon channeled her grief into purpose by creating the "Game On Glio" podcast, which supports brain cancer patients and their families while spreading awareness. The podcast, which ranks in the top 10% globally and won a 2023 Ignite Award, shares stories of resilience and hope.
Shannon is also the founder of Traphagen’s Trail Ride 4 Brain Cancer, raising over $75,000 for clinical trials. As an accomplished writer and motivational speaker, she continues to honor Mike’s memory while writing a book about their journey and focusing on her healing, health, and
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Not What We Signed Up For: Embracing an Unexpected Path
Confessions of a Reluctant Caregiver
When Rachel Shapiro’s daughter suffered a severe stroke just before her second birthday, Rachel and her husband were told their child might not survive. Despite the devastating prognosis, they refused to give up, navigating a complex medical journey that transformed their family's life. Their daughter now lives with significant medical needs, requiring a tracheostomy and ventilator support, which initially seemed overwhelming to Rachel.
What makes Rachel's story remarkable is her determination to maintain a full, vibrant life despite the intense caregiving responsibilities. Working full-time in marketing while managing her daughter's complex medical care, she and her husband have intentionally preserved their family's sense of normalcy. They continue to be active in their community, host events, and ensure their other children feel supported and engaged. Rachel's approach is characterized by a deep faith and a belief that their current circumstances serve a greater purpose.
Her perspective on caregiving is both practical and inspirational. Rachel approaches challenges with low expectations and a remarkable ability to adapt, viewing unexpected changes as opportunities rather than obstacles. She emphasizes the importance of open communication with her spouse, maintaining their relationship through shared goals, and making time for self-care, such as occasional shopping trips or simply enjoying a quiet meal. Her story illustrates that while caregiving can be incredibly demanding, it doesn't have to consume or define one's entire existence.
Thank you to our sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver: https://www.confessionsofareluctantcaregiver.com/
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
🔔 Don’t forget to like, subscribe, and share for more real stories from the frontlines of caregiving.
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Surviving, Thriving, and Loving Again
Confessions of a Reluctant Caregiver
Stacy Ryan’s powerful story is a testament to love, resilience, and the human capacity to heal after profound loss. Her journey began with her own cancer diagnosis at 45, which she survived, followed by her husband John’s battle with cancer that ultimately claimed his life in December 2020. Throughout their cancer journey, they demonstrated an extraordinary partnership, supporting each other with deep love and commitment, facing each challenge together with grace and vulnerability.
After losing John, Stacy chose to honor his wishes by living her life to the fullest. She channeled her grief into creative pursuits, writing a three-book series about her experiences and launching a podcast focused on her journey through widowhood. Her commitment to healing and personal growth led her to unexpected places, including finding love again with another widower named John, with whom she is now building a new life. In a beautiful tribute to her resilience, she is also preparing to open a yoga and wellness studio in the fall, continuing to pursue her passions and create meaning from her experiences.
What makes Stacy’s story particularly inspiring is her approach to grief and the healing process. She refused to be defined by her loss, instead choosing to embrace joy, laughter, and new opportunities. Her message is clear: there is no single path through grief, and it’s possible to honor past love while creating space for new love and experiences. Her journey demonstrates that life can be “brutally beautiful”—filled with profound pain, yet also incredible hope and renewal.
About Stacy:
Stacy Ryan embodies resilience, completing an Ironman at 36, surviving cancer at 45, and navigating widowhood at 52. These experiences fuel her work as a self-published author and podcaster, where she shares her journey of life, love, and loss, aiming to help others on similar paths. Her diverse career, from corporate HR to fitness director, laid the foundation for her current endeavors. Her podcast, "My Whole New Life," launched in 2023, followed by her "Whole New Life" three-book series in 2024. Stacy finds joy in motivating others to pursue what resonates with them, whether it's achieving a fitness goal or writing a book, reflecting her belief that anything is possible. Outside of work, she enjoys cycling, yoga, and time with friends and family, creating lasting memories.
Thank you to our sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver: https://www.confessionsofareluctantcaregiver.com/
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Love Creatively: A Caregiver's Colorful Journey
Confessions of a Reluctant Caregiver
This week, Ari Medrano delivers a powerful testament to the depth and complexity of caregiving. As a Mexican immigrant who came to the United States at age one, Ari's approach to caregiving is deeply rooted in her family's values of service, love, and compassion. Throughout the episode, she shares multiple experiences of caregiving, including caring for her cousin with bone cancer, a homeless woman named Teresa, her brother who was a victim of a violent crime, and her mother during critical health challenges.
Her caregiving journey is marked by a remarkable ability to love creatively and find joy even in the most challenging circumstances. Ari's approach goes beyond traditional caregiving, incorporating humor, sensory experiences (such as using specific scents to uplift spirits), and an unwavering commitment to supporting not only the patient but also the healthcare workers around them. Her personal experiences, including her health challenges like heart disease and a brain tumor, have shaped her perspective, allowing her to approach caregiving with empathy, resilience, and a profound understanding of both giving and receiving care.
What stands out most about Ari is her philosophy of "givers gain" and her conviction that we can experience both pain and joy simultaneously. Her stories illustrate how caregiving is not just a duty, but a calling that requires creativity, emotional intelligence, and a deep capacity for love. Whether it was bringing Santa Claus to her mother's hospital room, providing comfort to a homeless woman, or supporting her brother through his challenging health journey, Ari embodies the true spirit of compassionate caregiving.
About Ari:
Ari Medrano is a Mexican immigrant who arrived in the USA as a one-year-old, the middle child in a family of five. Her parents have been married for 58 years. Ari's caregiving journey deepened when she moved from Texas to California to care for her mother and youngest brother, who both became ill simultaneously. She provided home hospice care for her brother in his final weeks, following his brutal injuries from a bank robbery. Concurrently, she cared for her mother in the hospital for six months; her mother is now at home, receiving care from all siblings.
As a mother of two sons, Ari also acknowledges their caregiving role during her own extensive health battles, which included multiple tumors, heart disease, a brain tumor, and numerous surgeries. She refers to herself as an "Olympian patient" and serves as a go-to health advocate for her family, friends, and community. She is notably a "1% Medical Miracle" who regained full mobility after being paralyzed by a craniotomy for a brain tumor extraction. Ari's legacy is defined by her philosophy: "Love God, Love People...creatively."
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
The Sandwich Generation Survival Guide
Confessions of a Reluctant Caregiver
Julia Mayer, a clinical psychologist, shares her extensive caregiving journey spanning nine years, which involved caring for her father after her mother's unexpected passing and then supporting her husband Barry's mother, Jean, and stepfather, Steve. After her mother died during a heart surgery recovery, Julia and her siblings stepped in to care for their father, with her older brother taking the primary caregiver role while Julia provided weekend relief. Her father passed away about 15 months after her mother, and shortly after, they became involved in caring for Barry's parents, who were experiencing financial difficulties.
Julia and Barry relocated Jean and Steve from Florida to an apartment near them, managing their care through the use of aides, a notebook system, and personal visits. Despite Jean's combative nature and strained relationship with Barry, Julia approached caregiving with compassion, patience, and a sense of humor. Her professional background as a psychologist helped her maintain emotional distance and communicate effectively, often serving as a mediator between Jean and Barry. She focused on preserving her family relationships through open communication and involving her children in the caregiving process.
Throughout their caregiving experience, Julia and Barry collaborated closely, supporting each other emotionally and eventually turning their experiences into professional resources. They are set to publish "The Caregiver's Answer Book" with AARP in July 2025, providing comprehensive guidance for caregivers in various situations. Julia's approach to caregiving emphasizes three key principles: not taking the care recipient's suffering personally, maintaining empathy and compassion, and seeking support for oneself during the challenging caregiving journey.
Social Media
Facebook: @Julia Mayer
X: @JuliaLMayer23
Instagram: Julmayer23
LinkedIn: @Julie Mayer
Website: www.loveandmeaning.com
About Julia:
Julia L. Mayer, Psy.D is a clinical psychologist in private practice in Media, PA. She received her bachelor’s degree from the University of Pennsylvania and her doctorate in clinical psychology from Widener University. Prior to becoming a psychologist, she wrote plays and interned as an assistant to the director for a theater company in New York. She has published professionally in the APA journal, Families, Systems & Health. She also co-authored various articles with her husband, Barry J. Jacobs, Psy.D., for WebMD and HealthCentral. She has been doing individual and marital therapy for 31 years, specializing in working with women who have histories of sexual trauma, eating disorders and troubled marriages. She has increasingly focused her work on supporting caregivers. Since 2018, she has been doing a weekly podcast about psychology and social justice, called Shrinks on Third. For nine years, she was a caregiver for her father with vascular dementia and
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Forever Caregiver: The Lucas Project & Life Beyond Loss
Confessions of a Reluctant Caregiver
"I became a forever parent caregiver." - Jesse Ronne
What happens when caregiving, loss, and love collide? Jess Ronnie, writer, speaker, podcaster, and founder of The Lucas Project, brings her powerful story to the mic, offering a moving look into parenting a child with special needs, enduring grief, and building a future rooted in compassion and advocacy.
Jess opens up about the emotional and physical toll of raising her son Lucas, who has profound special needs, while managing life as a "forever caregiver" and navigating the heartbreak of losing her husband, Jason. She shares the raw realities of caregiving, the denial that can come with special needs diagnoses, and the heavy yet hopeful journey toward acceptance, remarriage, and healing.
This episode is a powerful reminder that caregivers are not alone. Jess discusses:
- Surviving as a parent in crisis mode
- Rebuilding identity after caregiving takes over
- Balancing love and loss in blended families
- The critical importance of support systems and community
- How her nonprofit, The Lucas Project, is creating change for caregivers across the country
About Jesse:
Jess Ronne is an author, speaker, podcast host at Coffee with Caregivers, associate producer of the Unseen Documentary, and caregiver advocate. She is founder and executive director of The Lucas Project, a non-profit dedicated to providing recognition, resources and respite support for special needs families. She and her husband Ryan live in Michigan with their 8 children, including their son Lucas who has profound disabilities. Her story of beauty from ashes has been shared on The Today Show, Daily Mail and Huffington Post and is detailed in her memoir Sunlight Burning at Midnight. To follow the ongoing saga she can be found at www.jessplusthemess.com or purchase her latest books Blended with Grit & Grace, Lovin’ with Grit & Grace, and Caregiving with Grit & Grace.
Social Media
Facebook: www.facebook.com/jessronneofficial
Website: www.caregiverdoc.com
Website: www.thelucasproject.org
Website: www.jessronne.com
Thank you to sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
“And Other Duties Assigned”: When caregiving is unexpectedly added to your Job Description
Confessions of a Reluctant Caregiver
"I felt this sense of odd FOMO." - Taylor Fix
Meet Taylor Fix, a remarkable caregiver whose journey began in childhood. Growing up in a close-knit family, caregiving was second nature. But it wasn’t until she became a farmhand and full-time caregiver for Bill, an elderly man she bonded deeply with, that Taylor truly stepped into her calling.
💬 Join us as Taylor opens up about:
- Becoming a youth caregiver and how it shaped her identity
- The emotional and mental toll of caregiving
- Navigating family dynamics and communication challenges
- The importance of self-care and support systems
- Why many caregivers struggle to identify with the label "caregiver"
About Taylor:
Taylor lives on a small Virginia farmstead with her partner, dog, and a lively mix of animals—some for food, all for love. A self-proclaimed “Jane of all trades,” she holds a degree in Animal and Poultry Science from Virginia Tech, with minors in Political Science and AgBusiness, plus a stack of certificates “as long as a CVS receipt.” With a lifelong passion for agriculture, Taylor has worked across farming, advocacy, and mental health support—drawing on her deep connection with animals to help others. She serves on multiple boards dedicated to mental health and community service, living out her calling one story (and adventure) at a time.
This episode is a must-listen for anyone navigating the world of family caregiving, supporting aging loved ones, or looking for honest conversations about the reluctance, resilience, and reality behind caregiving.
Social Media:
Instagram: Instagram: RockBottomAcres/ruminations_rba
VPAS Website: vpas.info
Thank you to our sponsor: CareScout
Learn more about Confessions of a Reluctant Caregiver
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
🔔 Don’t forget to like, subscribe, and share for more real stories from the frontlines of caregiving.
#CaregiverSupport #FamilyCaregiving #MentalHealth #ReluctantCaregiver #CaregiverJourney #Podcast #AgingParents #EmotionalHealth #SelfCareForCareg
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Inside the World of Special Needs Caregiving: One Father's Powerful Journey
Confessions of a Reluctant Caregiver
"You don't know what you don't know." - Dave Krikac
What happens when love meets lifelong responsibility? The realities of caregiving for individuals with special needs, the triumphs, the trials, and the transformative love it takes to show up every day can be daunting.. Meet Dave Krikac, a devoted father raising his daughter with autism, as he shares the raw and inspiring story of his caregiving journey.
🎙️ Alongside our hosts, Dave explores critical topics that every caregiver should know:
- Building a strong support system and community
- Advocating in special needs education
- Managing evolving family dynamics
- Planning for the future with special needs trusts
- Navigating the complex transition to adulthood
- Leveraging technology and AI, including Stella—an innovative concierge tool for families
👤 About Dave Krikac:
Dave Krikac is a seasoned business leader, advocate, and father with over 35 years of experience in IT, sales, and marketing. As Vice President at Health Connect America, and co-founder of The G.E.A.R. Foundation and Our Thrift Store, he’s dedicated his career to creating meaningful job opportunities for adults with special needs. From church planting to nonprofit leadership, Dave’s mission is clear: championing independence, inclusion, and dignity through employment.
Website:
Click to learn more to sponsor: CareScout
👨👩👧 This conversation offers practical insights, emotional validation, and forward-thinking solutions to help you support the special needs community with empathy and strength.
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
✨ Don’t forget to like, comment, and subscribe for more real-talk episodes on caregiving, advocacy, and innovation in the special needs space.
#CaregivingJourney #SpecialNeedsParenting #AutismAwareness #SpecialNeedsTrust #DisabilityAdvocacy #CommunitySupport #AIForGood #CaregiverLife #StellaAI #FutureOfCaregiving
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Surrendering Control: The Hardest Part of Saying Goodbye
Confessions of a Reluctant Caregiver
"I am sunny with a chance of tornadoes." - Yvette LeFlore
🎧 Intuitive energy healer Yvette LaFleur opens up about her deeply personal caregiving journey through love, loss, and healing. As the caregiver for her late husband Walter, who bravely battled stage four lung cancer, Yvette shares profound lessons on self-care, anticipatory grief, surrendering control, and honoring the wishes of a loved one.
Natalie and JJ explore with Yvette:
- 💔 The emotional toll of caregiving for someone with a terminal illness
- 🧘♀️ The importance of maintaining identity and practicing self-care
- 🙏 Letting go of control and accepting help from others
- 😢 Navigating grief, loss, and life after caregiving
- ❤️🔥 Finding humor, strength, and spiritual growth through adversity
About Yvette:
Yvette LeFlore is an Intuitive Energy Healer and Reiki Master Teacher. Before opening her energy healing business, Yvette led a team for a popular direct sales company; she was also a teacher in prisons and drug rehabilitation centers. Over a decade ago, she found the benefit of energy healing for herself and others. When she was dating, she intended that the man she next met would be open to energy and healing work. Enter Walter. The man who not only understood and worked with energy but also supported her in building her business and leaving her 29-year career with the direct sales company. As you will hear, Walter now joins her from the spirit world in her energy healing sessions.
Social Media:
Facebook: https://www.facebook.com/healingwithyvette
LinkedIn: https://www.linkedin.com/in/yvette-leflore-9683336/
Instagram: https://www.instagram.com/healingwithyvette
Website: www.healingwithyvette.com
Are you a caregiver, or grieving a loss, or seeking emotional and spiritual insight? This heartfelt conversation offers comfort, wisdom, and connection.
THANK YOU to SPONSOR: CareScout
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
👉 Like, comment, and subscribe for more real stories from the front li
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
You Can’t Make This Up! Sister Updates
Confessions of a Reluctant Caregiver
“Caregiving never ends. No, it never stops.” - Natalie and JJ
Caregiving is a journey—full of love, lessons, and let’s be honest, a few laughs along the way. In this candid conversation, we dive into the realities of caregiving: navigating skilled nursing facilities, managing emotional and financial stress, and finding strength in community. We’re also sharing what’s in store for 2025 and beyond. Too good to miss!
💡 This episode is a reminder that you’re not alone—and that support, humor, and honest conversations make all the difference.
🔑 Key Takeaways:
- Caregiving is tough—but also deeply rewarding.
- Teamwork and community support are everything.
- Humor helps lighten the load.
- Advocacy matters—so do financial tools like qualified income trusts.
- Self-care isn’t optional.
- Your story matters—let’s share it.
THANK YOU to Sponsor: CareScout
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**
#Caregiving #CaregiverSupport #AgingParents #SkilledNursing #ElderCare #FamilyCaregivers #HealthcareAdvocacy #SelfCare #QualifiedIncomeTrust #HumorHeals
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Caring Through Chaos: A Journey with Frontotemporal Dementia
Confessions of a Reluctant Caregiver
“I was in therapy, that was a lifeline.” - Allyson Schrier
This is a powerful one! Natalie and JJ sit down with Allyson Schrier as she opens up about her deeply personal and emotional journey caring for her husband, who was diagnosed with Frontotemporal Dementia (FTD).
Allison candidly shares the early signs of FTD, the heartbreaking misdiagnosis, and the uphill battle of navigating a complex healthcare system. From the shifting family dynamics to the emotional weight of caregiving, this conversation pulls back the curtain on what it really means to care for a loved one with dementia.
🌼 Key Takeaways:
- Recognizing early behavioral changes in FTD
- Coping with misdiagnosis and delayed answers
- The emotional toll and resilience required of caregivers
- The importance of self-care and community support
- How Zinnia TV is transforming dementia care through thoughtful, therapeutic content
About Allyson:
Allyson Schrier, co-founder and President of ZinniaTV was a caregiver for her husband with dementia, who turned that experience into a career focused on helping both people with dementia and those who care for them. Allyson became a dementia educator teaching both family and professional caregivers about best practices around supporting people with dementia. Following that, Allyson helped launch, then managed an education program at the University of Washington to equip primary and allied healthcare providers to better diagnose and support patients living with dementia. Allyson was honored to be a recipient of a 2020 Maude’s Awards for Innovation in Alzheimer’s Care, and was named Visionary Caregiver of 2020 by caregiving.com. She sits on the Health and Medical subcommittee of the Washington State Dementia Action Collaborative, facilitates support groups for spouses of people with dementia, and lectures on topics about dementia caregiving.
Social Media:
Instagram: Al.lyson80
Instagram: zinnia_tv
LinkedIn: https://www.linkedin.com/in/avschrier/
Website: www.zinniatv.com
Allison’s story offers both inspiration and practical wisdom for professionals, family members and friends alike
THANK YOU to SPONSOR: CareScout
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
Faith, Culture & Raising a Child with Special Needs
Confessions of a Reluctant Caregiver
“Never say never in your journey.” - Eleni Paris
Natalie and JJ sit down with Eleni Paris, a licensed therapist and devoted mom, as she shares her deeply personal journey raising her daughter Sophia, who has cognitive and speech impairments.
Eleni opens up about navigating cultural expectations, emotional burnout, and the realities of parenting a child with developmental delays—all while juggling her professional identity. From the search for a diagnosis to managing anxiety in public spaces, she speaks candidly about grief, joy, faith, and the power of vulnerability.
If you're a caregiver, a parent of a child with special needs, or simply looking for real talk about love, resilience, and finding purpose through challenges—this one’s for you.
🧠 Topics Covered:
- The emotional highs and lows of caregiving
- Cultural impacts on care in the Greek-American community
- Why self-care isn’t selfish—it’s survival
- Faith, family, and building a support system
- Coping with the evolving needs of a child with disabilities
Eleni Paris is a licensed marriage and family therapist, proud Greek-American, and devoted mother of two daughters—one of whom is cognitively disabled and speech impaired. Born and raised in Northern Virginia, Eleni holds both undergraduate and graduate degrees from Virginia Tech. She grew up surrounded by a vibrant “Big Fat Greek” family culture while also enjoying the rhythms of a classic American upbringing—a blend she considers a true blessing.
With over 27 years of marriage and a lifetime of caregiving experience, Eleni brings deep empathy and lived wisdom to her therapy practice. Her personal journey, particularly in raising a daughter with complex and undiagnosed needs, has shaped her approach to supporting families, couples, and fellow caregivers. Today, Eleni runs a thriving online practice, where she combines clinical expertise with heartfelt understanding to help others navigate life’s most personal challenges.
Social Media:
LinkedIn: linkedin.com/in/eleniparislmftllc
Website: www.eleniparislmft.com
***********
THANK YOU to SPONSOR: CareScout
** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
The Lost Episode: Looking Back with the Original Reluctant Caregivers
51:30
Competing Priorities: Balancing Family, Career and Caregiving
52:02
Dad, Devotion, and Dancing: Finding Joy in the Hardest Goodbye
1:01:59
Not Stuck in the Yuck: Tricia’s Story of Family, Advocacy, and Strength
57:25
Disrupting Care: How Neal Shah Is Revolutionizing Support for Families
1:08:45
When Life Calls: Zack’s Story of Stepping Up for Family and Changing the Caregiving Conversation
1:03:44
Compassion in Action: Donna’s Path from Caregiver to Changemaker
1:00:12
The Power of the Pause: Finding Relief in Caregiving with Jenn Fredericks
56:17
The Power of Three and Twelve: Jason’s Caregiving Blueprint
58:55
Boundaries, Faith, and Family: Lessons from Jenifer Massie’s Caregiving Journey
1:00:44
Surviving the Grief Buffet: Angela’s Journey Through Caregiving and Loss
1:06:24
Did Mom Drop Acid? Navigating Dementia and Family Dynamics
57:47
The Power of Family: Navigating ALS Across Generations
57:13
Confessions of a Young Widow: Rising Above Grief
57:49
Not What We Signed Up For: Embracing an Unexpected Path
1:01:22
Surviving, Thriving, and Loving Again
1:00:01
Love Creatively: A Caregiver's Colorful Journey
59:00
The Sandwich Generation Survival Guide
56:08
Forever Caregiver: The Lucas Project & Life Beyond Loss
52:26
“And Other Duties Assigned”: When caregiving is unexpectedly added to your Job Description
1:02:34
Inside the World of Special Needs Caregiving: One Father's Powerful Journey
53:58
Surrendering Control: The Hardest Part of Saying Goodbye
54:13
You Can’t Make This Up! Sister Updates
52:50
Caring Through Chaos: A Journey with Frontotemporal Dementia
1:00:03
Faith, Culture & Raising a Child with Special Needs
55:48