76. Podcasting After Stroke: Sharing Stories and Building Community

In episode 76 of the Survivor Science podcast, I dig into one of the most common questions I hear from stroke survivors: how do you start a podcast or livestream to share your journey? Whether you’re a stroke survivor, a caregiver, or just someone curious about content creation, this episode offers a practical look at what it takes to get started. I share insights from my experience as a podcaster, lessons learned from the Survivor Science Creator Meetups, and tips on how to approach podcasting or livestreaming, especially when you're balancing recovery with creativity.

We talk about everything from choosing a topic to picking the right tools and finding your voice. I reflect on how podcasting has helped me with my own recovery, including improving my speech and sharing my story in a way that connects with others. If you’ve ever thought about creating content, this episode will give you the motivation and practical advice you need to take that first step. Let’s explore what it means to share your story and build community in a way that’s meaningful and sustainable.

Hey there! If you’re a stroke survivor, caregiver, or someone navigating recovery, I want to invite you to check out The Center by Survivor Science. Head over to center.survivorscience.com and join a community that understands what you're going through.

And if you’re not quite ready to join, that’s okay! You can still access free resources at survivorscience.com 

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Transcript

0:06

I'm back to another episode of survivor side soundbites. Today is Monday, January 13th, 2025. And as usual I'm shot out of a cannon on Monday. Excited that the kids are in school, et cetera, to kick off the week. Got a good workout in earlier today. Got a bunch of things done this morning. So I am on fire right now. And I'm excited about our topic today. Going to deviate a little bit far traditional topics on stroke and stroke recovery, because last Thursday. Had a great survivor science creator, meetup, por stroke survivors, members of the stroke community. Really anybody that wanted to come hang out and learn a little bit at El content creation. It was a, a really interesting. Group. It was a fun group. I had an enjoyable time. Hopefully, if you made it, you did too. I know. It's always interesting having some of these meetups because I'm never sure who's going to show up. What's going to happen. What we're going to talk about. I mean, I had a general idea. I had a, certainly a. An agenda. I learned pretty quickly this previous one that I need to be a little bit better of a facilitator. Stay on topic because I think. The first few have gone really well because they were smaller groups. This one was a little bit bigger, a lot of different personalities, a lot of new faces. What did everybody to kind of meet and share, but I should have been a little bit more. I dunno prepared, I guess. Um, and so this episode, I'm going to talk about the topic that has come up the most, the last couple of months. In the creator meetup space for survivor science, and that is talking about. The thing I'm doing today, talking about podcasting. Podcasting and live streaming. They're not exactly the same. Some people call live streaming podcasting. Some people call podcasting, live streaming. Some people do both. Some to pill, do podcasts, audio, and video. Like bill from over in Australia recovery after stroke, he doesn't. Has an excellent podcast that he puts on YouTube. He does it a little bit differently. Funny enough, I talked to him over the weekend. Um, A lot of good things, a lot of things to share today. I think it's just yeah, I'm excited. Um, So.'cause I get this question a lot. It's come up over and over people in the stroke community want to know more about. Podcasting live streaming, all the things, but the problem is it's never as easy as it seems. Again, in the meetup, we had a great conversation. We got a little sidetracked, definitely my fault. Next time. I know. We'll do it a little more formally going forward. But in particular, I did want to talk about podcasting for stroke survivors. I know that's not necessarily what every stroke survivor wants to hear. So this may not be an episode for you if you have no interest, but I still think there are things you can take away from it because. If you're a stroke survivor out there. And I sort of realized this through another exercise I'm doing with Molly from beyond stillness. Listen, not everybody wants to share the journey. Not everybody wants to share the journey the same way that is the beauty of content creation. You might want to do a newsletter because you're more of a writer. You might have a podcast cause you liked talking to other people. You like being an idiot like me and being able to talk solo on camera. It's not something for everybody. But I think we're all different. C I enjoy podcasting because I can take the long form video and make clips. For a short form, things like reels and Instagram and Tik TOK, and really any platform, YouTube shorts. And I can take this video that I will one day, get everything on YouTube for the podcast, including full end episodes and, and the shorter episodes that I do on Mondays and Fridays. And. Speaking of which I did not release an episode on Friday because I was wiped out from phone calls all day on Thursday on zoom. It was a long. Eight. Plus our day of zoom calls. And then Friday, I had a couple of things to do, and I was kind of, frankly, still recovering. Wrapping my head around things. What I wanted to talk about because there was a lot that came out of the creator meetup. And it was really good, but yeah, I just needed some time to collect myself and I had a bunch more calls on Friday and Saturday. I had called yesterday. I don't think I had a call. It might be the first time I haven't had a call on zoom. For many weeks at least one. So yeah, yesterday was a nice little break, which is probably why I'm shot out of a cannon on Monday here. But I want to go into some of the main things, because again, I do. Want to help stroke survivors. I want to help people getting started. I I'm going to share just some simple, basic things today on the episode. For thinking about getting started when it comes to podcasting live streaming doesn't really matter. It kind of all goes together, whether it's content creation. And you'd like take talk or Instagram. Short form. You should always have some ideas behind what you're doing. I think. You know, everybody's different in the early days. You might just want to share things for fun. Don't have an agenda. Just do things that you think are helpful that you think are fun that you want to share. Because the reality is content creation is, is really changed over the last three, four or five years. It is. It is difficult. I think every content creator who has done it for more. Then a couple of months, we'll say eventually you get burnt out. You need to think about a lot of things. But on the other hand, you don't have to do it all day. One. So I think the first and foremost, having fun in whatever you do, um, especially as a showcase of our. Is important, right? You. You've survived a significant life event. That not everybody survives. So number one is having fun. For me, I started sharing my journey a couple years into my stroke recovery. Year one, I was not ready to share. I didn't want to share. I was embarrassed. I was, I was a lot of things I was trying to figure out my life. I was trying to put the pieces back together. I was trying to manage a family. It's overwhelming in year one and two. So anybody out there starting to think about creating content and sharing the journey. I think everybody's different, but word of caution, you may not want to share in the early days, which is why you may not see a lot of. Stroke survivors or, or ABM survivor, or really, you know, it's all kind of to get any brain injury survivor. It's interesting to me. Some people are married, so they may have a spouse who helps them share the journey. A valid option if it works for you. Great. Um, I could tell you that was not the case for me. I didn't want to share. I just wanted to be alone. I wanted to figure things out. I was very different. And then. When I started becoming aware that maybe I could help, I wanted to, but then there were some physical limitations still. So it's, it's been a journey. It hasn't been since day one. I didn't even take pictures or record things from day one. So again, everybody's different. But. Going back to the main theme here and talking about podcasting and live streaming. I think there are few things to consider before you even get started with. Sharing much of anything. Of significance. Um, And again, this is going to be different for every survivor. And I'm trying to give this. Advice. I mean, really anybody can take away from this, but I think survivors in particular, everything we do is a little bit different now. I know because. When I've worked with different coaches, when I've gone through different trainings, I've asked. Sometimes I've asked if the individual, depending on the training has worked with stroke survivors. I know when I've done like technical training, I've asked things like, Hey, is there a lot of handwriting involved? I have to be typing every 10 seconds. Like I do things a little differently now. So it's, it's, it's, it's a lot. And I think. If I can distill this down to the easiest things to think about. When you think about wanting to start a podcast or a live stream. And again, these are two. Very similar, but very different things at the same time. So. Number one is choosing a topic. And this came up during our call the other day. Okay. You think you want to start a live stream or a podcast? Great. I encourage that. Couple of things to think about early on. What kind of show do you want to do? Do you want to do by yourself? Do you want to do it with a cohost? Do you want to have guests? Do you want to do it with a cohost and have guests? I think about all the, your favorite podcasts. Think about. Kylie Kelsey. She does a solo show with a producer. That's one way. The Kelsey brothers, they are two NFL players. They do, you know, obviously Jason's more in Philadelphia. Travis is obviously playing most of the year in Kansas city, so they do a remote podcast. Just the two of them with some producers behind the scenes. I think that's great. I think if you're able to have a producer, that's amazing. However, the vast majority of people who are starting out. Don't have a built-in audience the way they do from another career. They P you're probably going to have to figure out things. You know, a way to do things on your own. So you're going to have to be the producer. The host. The production assistant. You have to figure out what you're going to do. Each show. Are you going to have regular recurring segments, et cetera. So again, it comes to kind of a topic. Number one. And listen, if you're a stroke survivor, you don't have to start talking about stroke. That's just happens to be the direction I kind of turned in. And to be honest, I love podcasting. I could do. I had a podcast previous to this one called. Blah, blah, blah, idiot, where I just talked about random things. Don't recommend that that's not a great niche because when you're getting started in podcasting or live streaming, Again, you're not going to have a huge audience. So you got to be specific and. Start somewhere and start targeted. Because you want to begin to learn your audience. And I think. In the early days, it has to be. Easy. Simple. And fun. Because if you're not having fun, you're never going to make it past the elusive 14 episode. Mark. That's the average number of podcasts. I don't know if it's quite the same for live streaming. But the average number of shows before people give up is around 14. And I actually think it might be less. So you've got to figure out something you want to talk about. Regularly. Because consistency is key. I have tried. Hard to be consistent over the years, I've struggled at times. I'm getting better at hopping back on the horse. If I miss one. I might have been a little ambitious recently in going to. Episodes on Monday, Friday, and a full length episode with a guest on Wednesday. It may not be long-term sustainable, but I'm okay. Now doing this for more than five years, probably even longer than five years. If I'm being honest, I was trained in this in the two thousands before podcasting really became big. And then I just kind of didn't do it for a long time. Because I was raising a family, buying a house. Building a different career. And. You know, it just didn't have the time or desire. And then I kinda got into it after my stroke. And it was helpful because it helped me speak better. It helped me work on my speech. It was fun. It was a way to share my story with my friends, with my family members, without having to talk to each and every person individually. But again, It was fun, but it faded. And then when I started survivor science or previously the level of survivor, I become more serious about doing this regularly. Still working on parts, right. Still working on getting things onto YouTube because I know that will help the show grow. I've gotten way off track here. So let me shut the hell up. Let's go back to the beginning. You need to figure out your topic. What is the thing that you want to talk about on a regular cadence? Do you want to do it monthly? Okay. I do a monthly. What can you do weekly? Do you have the stamina to do it weekly? Can you do it twice? Every two weeks can or you can, you only do a month? Either way, you got to kind of figure out. The topic. The cadence and then start developing some ideas around your show. I went into it a little bit. Are you going to have different segments? Are you going to have guests on regularly having guests on isn't as easy as it would appear. Finding guests when you're new convincing people to come on is, is a challenge. Again, you would think it would be easy. It's not, I would, I would say. A word of caution on the word of wisdom is, is whatever you think is easy is going to be twice as hard as you think it is at a bare minimum. Okay. So again, it think about your topic. Think about your audience. Who are you talking to? Who building this for? What are you going to do a little bit differently than other people? Um, and you don't have to be different because I think as, as a stroke survivor, I want to hear more stories. And I want to hear it from other Shokes survivors. And I know bill interviews, a lot of people I'm starting to interview more people. I know a lot of people out there in the community have interviewed quite a few people. Each each, each show is going to be different. You're not going to be for everybody. You're going to be your own voice. And that will take time to develop, um, So, again, starting with a topic, deciding if you want to do a live stream versus a podcast. Or do you want to do a live stream and turn that into a podcast? Or do you want to do. You know, you, do you want to record an episode and put it up on YouTube? Do you want to do live streams and just kind of live, stream it into YouTube? That's an option there. There's a lot to think about. And there's different platforms to utilize for different things. I. I'll go over a lot of them. I mean, there. There's a lot of platforms and it depends on what you want to do. Do you want to be able to upload the audio? To a Spotify, apple podcasts, wherever, whatever your favorite podcast platform is. And record video, you might consider something like restream or you might consider something like Riverside. Or you might eat mix. Consider something like stream yard all are a little bit different and it takes a little bit of playing around with them. Again, this is not. Oh, super technical, but it's also not super easy. So you really have to make some of these decisions earlier. Now you can always change. Um, Try a livestream. If it feels like too much for you and you'd rather record and be able to edit the video and then go back and upload it to YouTube. Edit the audio and go back and upload it to your favorite podcasts. Platform. All these are options, but they're all things to consider. You know, once you kind of get those basics around a show idea. How you want to format a, how to, you're going to structure it. Are you going to be a host by yourself? Are you going to be a host with a friend or are you going to be a host with many friends? Are you going to interview individuals? Figuring that out is probably number one. Then you're going to want to figure out the name of your show. And the type of show you're going to do. So that there's kind of the pre-show stuff. And then you go into. Okay, well, I've got an idea for a show. I know I want to do a podcast. So I'm going to be recording audio. I'm going to say, let's say you're going to use Riverside, which you can also. Record and livestream Riverside. And again, restream I have extreme yard office. Well, there's always new things coming up. Bitter research, ask around, see what other people are using. You can use zoom. I mean, I don't recommend zoom, but build a zoom. It's great. It works. Um, You know, it. There's kind of an MVP for getting started and there's really digging into the weeds. I recommend starting with the. MBP start with podcasts or live stream. Audio video. Pick a platform that does both. Then you can kind of go onto the next thing after you have, obviously the show idea. That particular tool you're going to start with. And then. You kind of got to just start because you're not going to know if you enjoy it until you start. You're not gonna know if it's worth your time effort, et cetera. You're not even know if you're going to like it. I will say a couple of words of note. I think when it comes, you want to have. Pretty good audio. Pretty good video. I don't think it has to be like 4k or eight K, but you want to have decent resolution. So most laptops and computers have pretty good built in webcams. I think most. Or HD now. At a minimum. As far as audio goes there it's spans a very wide range. I have a pretty nice microphone, but it's certainly not the best, but it is the shore SMB seven. Pretty high quality industry standard. It's probably what you see on a lot of podcasts. Um, but I have a lot of equipment. I've tried a lot of different things. Really you want more than just your laptop or computer as far as audio. And again, microphones start anywhere from built into your computer. Again, don't recommend that. I would say at least. Start with like, Probably somewhere in the range of a hundred, to $200 for microphone. And I'm only saying this, you can definitely get a cheaper microphone, but. Number one, if you get a good microphone. And you work from home or you're on the computer a lot or you're on phone calls on the computer zoom calls. Having a good microphone in 2025 is, is really. It's not necessary, but even if you don't continue on with a podcast, have a good microphone. Isn't a bad thing. Um, So that that's a personal decision, but I do think people are willing to forgive. Not great video. I don't know that people are as willing to forgive. Bed sounding. Audio. No bad sending audio. Yes and no. But you really don't want to be talking in T like I, this computer in front of me is iMac. It has break great sound, but it does not have a great microphone. It has good enough microphone if I'm on a zoom call and I'm just chatting amongst friends, that's fine. I don't recommend it for. Recording a podcast or a live stream. Again, you can do it. It's just to each their own, but I think it's worth investing in at least on microfoam. And again, that is a. I can do an hour long show just on microphones, but I think there, there are, there are a number of good quality again, by sure by road. Both are top-notch brands and both offer. Pretty simple mix that you can plug in via USB directly into your computer. I think you've probably seen me with some of them. Um, again, road and sure. They're going to be in the 150 to $250 range, but they are a good quality USB microphones. And then from there. You can go way down the rabbit hole and buy a bunch of things that you don't need. Um, like me. Don't recommend that when you're getting started, if you, if you make it to episode 25 or 50, more than 50, and you're continuing on, then you may want to start to upgrade. But I think in the early days, Just having something better than your basic computer built in microphone is going to go a very long way. And can be utilized. Even just for phone calls on your, on your, or on your zooms. Um, And the type of microphone really depends. So I'm not going to get into the weeds here, but do your own research. If you have a question, I'll happily answer it. Um, Again, I just don't want to go way into the weeds on microphones. Cause I could do six hours on that. Um, You know, find a good space. That is not super echo-y. You know, this office space that I'm in is pretty good, but it could be better. I have a lot of padding on the wall. I have a lot of things to make it ideal, but it is still not my dream scenario. But it's pretty good. Um, And again, that's. That make the most of what you can, don't go overboard when you're starting. Okay. So we've gone over show idea, show, topic, show, structure, and then, you know, kind of the platform you're going to go on, whether it's podcasting or live streaming again, there's a lot of options. Any questions? Reach out. Let me know. Happy to answer any time. I'm sure others are as well find people that you see doing it and send them an email. Most people will. Happily answer. Assuming that they get your email. As far as show formats, you know, I kinda, I have bullet points. I take notes, I have things. I have a whole system for things, but sometimes I just wing it. Like today I. I'm reading off a very loose script. I'm kind of all over the place. And that's part of my brand. That's part of my show. I'm I like thinking on my feet, it makes me feel. I don't know. I just like to wing it, but I know everybody, doesn't some people like a very detailed script. And again, this is going to be dependent on your topic on your niche, but I'm really just trying to have a conversation with. Other stroke survivors, other creators that are out there trying to learn things. Again, This is more of an overview show. So I didn't want to be super detailed, um, versus like a workshop or a seminar I might do. Much more detailed things and break down sort of the different tiers of microphones and setting up the recording space. And really take it to a level that. You don't need to get started because again, Best piece of rebellious. Think about the show topic. Think about some structure things, maybe buy a microphone. Test the tool by a tool. Try it out because if you don't love it, you don't want to be thousand dollars in the hole. Um, a thousand dollars could be spent on many other good things like food or gym membership or a lot of things. So. That's kind of. One take, I'm sure many people on Facebook again. Um, a lot of people on LinkedIn, YouTube. Live streaming is kind of a. It's a bit more interactive. Um, I highly recommend if you do a live stream, you're starting out. You're not going to have a lot of people show up unless you promote it. You're not going to have a lot of people for anything, show up if you don't promote it. So get comfortable knowing that you're going to have to promote your show. Whether it's a podcast or a live stream, you're going to have to be annoying about it. Um, because if you're not advocating for yourself, I mean, yeah. If you have a great show from day one, Again, highly unlikely for the majority of us, but you know, some people already have a built-in audience. So to be fair, you could. It's, it's not as easy as it looks, and if you want to make money on it, it takes even more work. It takes time to get into a rhythm, learn your cadence, learn your viewers. What they like, what they don't like, what they want to hear, what the don't want to hear. Um, You know, and take that all with a grain of salt, because again, number one rule in podcasting or live shaming is if you're not having fun, It's unlikely. The audience is having fun. Was he speeds just mean people aren't going to watch or listen. So. Again, take that for what it's worth be okay with doing it for free for a long time. Again, this could change things. Go wildly different for you, but you have like, Listen, Joe Rogan always says it. And I agree with him just because I like doing this. I'll do this for fun for free forever. Probably. I'm not going to promote everybody and their things for free forever, but I will certainly. Do this podcast for as long as I can, you know, and that's kind of why I got into, into survivor science and created a brand around. Being a strokes forever because obviously like many strokes are, I want to help other people. I have a good. I just love doing this. And again, I do it for free. So from my perspective, I want to help people. As much as I can. I can't give everything in life away for free, but like, I enjoy doing the podcast and I enjoy talking to people. I honestly, I get bummed when I miss one. I had a little bit of a Rocky start to this year. I think I've missed two Fridays. Um, But I feel like I'm on a good track to get back in, in the right space here. And. You know, I've already got something recorded for Wednesday. I spoke with that guest last week. So that it'll be a full episode this Wednesday. I'm sure I'll be back on Friday. My schedule's getting a little bit weird, so, so things are a little bit tougher, but I almost think that it will help sometimes when you're busier. You ended up getting things in a, into a better structure. Um, So that's good. And again, You know, like I said, I would do this for free forever because I enjoy podcasting. Enjoy talking to the audience. I know. I'm not for everybody, but I know I can help stroke survivors because I, I am also a stroke survivor who has Ms. Who's figured out a thinker too. Um, Certainly not everything. And. Including podcasts. You know, people always ask me like, yes, I did go to school. After graduating Miami back in 2005, I went to a school that I think is no longer around or has re-emerged as a. Differently than it was before, but it was called Connecticut school of broadcasting. It was kind of a vocational trade school for getting into radio and broadcasting. And this is the late two thousands. I think it was 2008. When I went and it was very traditional, it was before podcasting. It was kind of the early days of social media with Facebook was public. MySpace was still around. But social media was in its very early days and radio and traditional TB was very much at the forefront versus now where that is almost not the case. I mean, podcasting obviously has become, come to the forefront and. Traditional news media has kind of slowed down and taken a different path. So. Even now in 2025, no better time to start a livestream or, or a podcast if I'm being honest. Um, but again, it's not going to be an overnight success for anybody generally. Again, that is open to interpretation. There is. But the point is. Again, you want to be able to be doing this consistently and having fun doing it because if you're not having fun, you're going to burn out. You're going to get tired. Just. You're going to give up and, and it happens. You know, give it a try. See if it's for you. Maybe it's not for you right now. Maybe it will come back to it. Um, So, again, let's, let's kind of review because we're getting close to 30 minutes here in this episode, but again, I would start with the very basics, figuring out your show type. Again, Are you going to do it yourself? Are you going to have a cohost? Do you want to have a partner or are you going to be remote? Are you being in the same space? What's it going to look like, how are you going to format it? And these are just basic level things. You can add complication to it over time, but getting started. Structure format. Anticipated. Level of consistency, you know, if you're not sure. Try every other week to start. If that's too much go to every month. Again, having fun and being able to consistently show up and do it. Finding guests is not so easy in the beginning. So if you're going to have guests, you're going to want to figure out the topic and the niche, whether it's stroke or some, your take on stroke. Finding interviews is, is not. As easy as you would think. It's. It is, and it isn't, and it'll come in waves. There'll be one week or 10 people reach out. And then all of a sudden, nobody will reach out for a long time and you'll have to reach out. So giving it all with that. Is it going to be interactive? Are you just going to kind of record the conversation is a casual. All things to think about. Think about learning some of the basics. Like people always ask me how I learned. Obviously I have that background. But then I learned, I learned through trial and error. I knew I needed a better microphone. I learned, I Googled the hell out of, you know, cause it had been 10 years since I had been in a radio studio. I got up to speed. You know, I figured out what I needed at a bare minimum. What I wanted to do getting started. I tested a bunch of platforms. I tried live streaming. I tried. Different versions of things for recording audio. You know, for a while for, for, for even the beginning of this show, I wound up just recording directly into garage band. Cause I didn't think I wanted to do video. Then I moved to Riverside and I play around with a lot of things. I'm not saying you have to do what I do. That's just how it worked out for me. I can get the microphone, figuring out your recording space. So the audio sounds generally pretty good. I mean, there's a lot of things you can do once you record and you're having fun. You know, the only other thing I'll say is that there are a lot of great tools out there. For editing audio and a lot of good tools out there these days for cleaning up the audio. So that's actually not as big as a concern. But you want to be able to find those tools so that. You still want to have high quality audio going in, but if you have a little bit of echo and a little bit, a little bit of background noise, There were tools that are pretty good at. Limiting most of that. These days, so that's not as big of a concern. And again, there are lots of tools out there. Feel free to DM mere or asked what's out there. I highly recommend something like descript. Obviously, if you're a part of the Adobe. Sweet. There's a lot of good tools in there as well. Um, So, yeah, those are my thoughts on getting started with live sharing our podcasting. I'm sure there are millions of questions. I'm sure I could do 10 hours on many other things, but again, if you have any questions, Comments concerns need tips or suggestions. You can always hit me up through, through the podcast. Or you can just email me directly. We'll at server science.com. Happy to answer any questions anytime for anybody. And again, I'm thinking about doing a workshop here at the end of the month on some of the finer details of kind of some of the things I talked about today. More details coming up later on the week on that. So yeah, I, that that's podcasting, I guess one-on-one getting started things to think about that plot really should give you plenty of, to think about until Friday. I'll be back on Friday. We'll recap. If people have questions that come up before, then I'll go ask them on Friday's episode. And then Wednesday I'll be dropping an episode with a guest from last week. Really enjoyed that conversation. I think you're going to like it a lot and yeah. Okay. I will leave it there.