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On Tech Ethics with CITI Program
Discusses a broad range of technology ethics topics. Hosted by Daniel Smith, Associate Director of Content and Education at CITI Program. New episodes every month. Learn more at about.citiprogram.org.
On Tech Ethics with CITI Program
Governance of Genetic Information - On Tech Ethics
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CITI Program
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Season 1
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Episode 25
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Discusses ethical issues and governance considerations associated with the collection, analysis, and sharing of genetic material and information.
Our guest today is Shelly Simana, an assistant professor at Boston College Law School. Before joining BC, she was a fellow at Stanford Law School’s Center for Law and the Biosciences and a doctoral candidate at Harvard Law School. Her scholarship lies at the intersection of law and bioethics.
Additional resources:
- Shelly Simana: https://www.bc.edu/bc-web/schools/law/academics-faculty/faculty-directory/shelly-simana.html
- National Human Genome Research Institute: https://www.genome.gov/
- Technology, Ethics, and Regulations: https://about.citiprogram.org/course/technology-ethics-and-regulations/
- Bioethics: https://about.citiprogram.org/course/bioethics/
Shelly's Background
Defining Genetic Material and Information
Uses of Genetic Material by Entities
Key Ethical Issues in Genetic Material Collection
Inadequacies of Current Laws
Proposed Solutions for Legal Framework
Importance of Comprehension Over Consent
Prohibiting Surreptitious Collection
Privacy Protections for Genetic Information
Benefit Sharing for Genetic Material Use
Research Articles and Scholars
Educational Resources on Genetic Research
Final Thoughts on Collaboration
Adapting Legal Frameworks
Fostering Public Trust
Conclusion and Further Learning
