What about PS? A Poland Syndrome Podcast
What about PS? Hosted by Giselle Barbosa, PIP-UK Ambassador, Entrepreneur and Athlete. The What about PS? podcast aims to shine a light on Poland Syndrome, a rare disease, and the lived experience of the Poland Syndrome community.
Each episode, Giselle will explore inclusive and varied experiences of people living with Poland Syndrome with a variety of guests, from Paralympian Kim Daybell, Former Cricketer Lewis Hatchett, Australian Gymnast Clay Mason Stephens to medical professionals, bra companies and the most amazing members of our community. With engaging interviews, thought-provoking discussions, and the inclusive experience of the Poland Syndrome Community. The What about PS? podcast promises to be a must-listen for anyone curious about Poland Syndrome. Including the Poland Syndrome community, their friends and families, medical professionals and the rare disease community.
"We're thrilled to be launching this new podcast series and can't wait to share it with our audience," said Sam Fillingham CEO PIP-UK. "With Giselle Barbosa’ss expertise and the insights of our guests, we believe this podcast will become a valuable resource for the Poland Syndrome Community and medical professionals, providing them with the information and inspiration they need to live well with Poland Syndrome and find out more about treatment.
Listeners can tune in to the What about PS? podcast on Apple,Spotify, Amazon, TuneIn + Alexa. For more information and to listen to the latest episodes, visit pip-uk.org.
About PIP-UK. PIP-UK is a registered charity. Our activities include 121 engagements with individuals and families so we work directly with those affected. We also host community events that bring those affected together. We also run advocacy & wellbeing services and clinics with health care professionals to encourage their involvement.
There are no specialist doctors for PS, so for our community this means diagnosis & treatment is difficult. Parents are accused of mistreating a child when shoulders are hypermobile, teenagers go through years of torment, and adults live with debilitating mental health issues due to a lifetime of hiding their bodies. Our work is about supporting this marginalised community and for them to be treated equally against other disabilities, raise awareness and connect the community.
Poland Syndrome is rare limb difference you are born with, the body is affected on one side where muscles, bones or organs are absent or underdeveloped.
For media enquiries, please contact Sam Fillingham, CEO at PIP-UK. Contact on 07708 209874 and sam.pipuk@gmail.com.
What about PS? A Poland Syndrome Podcast
Ep 4 Meet Brian Ferguson
Welcome to What about PS? A Poland Syndrome Podcast, the show where we share inclusive and varied experiences of people living with Poland Syndrome.
I'm your host, Giselle Barbosa, and today we're diving into getting to know Brian Ferguson and his journey with Poland Syndrome, music and life. Whether you're a longtime listener or a newbie, we're so glad you're here.
On today's episode, we're joined by our volunteer Brian Ferguson. , who talks his earliest memories of surgery in childhood, learning to play the guitar and the joy of discovering ways to use both hands at the same time. Together, we'll explore how autonomy is important to Brian, about disability, making adaptation's and self-acceptance. And as always, we'll wrap up with some of our personal experiences.
Brian is 40 and a life long New Yorker from long Island. He's been eager to share his knowledge and experience living with rare disabilities, including Poland's Syndrome. Despite his limb differences, he learned to play guitar in part to play Christmas carols for the elderly in nursing homes for an annual event. Brian is a supporter of limb difference representation in media and had himself drawn into a Darkhorse comic book to help with that goal. You may contact him at brianspoon83 on Instagram, where he plans to post clips of the exercises he is able to do with his limb difference.
Please follow the pod and rate the show and leave us a review, we would love to hear from you.
You can find out more about PIP-UK and Poland Syndrome on our website:
https://pip-uk.org/
Follow us on social media:
https://www.instagram.com/polandsyndromepipuk/
https://www.facebook.com/pip.uk.org
https://www.linkedin.com/company/pip-uk/
https://twitter.com/Polandsyndromep
https://www.youtube.com/user/pipthecharity
https://www.tiktok.com/@polandsyndromepipuk
If you would like to appear on the podcast or share ideas for future topics, please get in touch pip.charity@gmail.com
