What about PS? A Poland Syndrome Podcast
What about PS? Hosted by Giselle Barbosa, PIP-UK Ambassador, Entrepreneur and Athlete. The What about PS? podcast aims to shine a light on Poland Syndrome, a rare disease, and the lived experience of the Poland Syndrome community.
Each episode, Giselle will explore inclusive and varied experiences of people living with Poland Syndrome with a variety of guests, from Paralympian Kim Daybell, Former Cricketer Lewis Hatchett, Australian Gymnast Clay Mason Stephens to medical professionals, bra companies and the most amazing members of our community. With engaging interviews, thought-provoking discussions, and the inclusive experience of the Poland Syndrome Community. The What about PS? podcast promises to be a must-listen for anyone curious about Poland Syndrome. Including the Poland Syndrome community, their friends and families, medical professionals and the rare disease community.
"We're thrilled to be launching this new podcast series and can't wait to share it with our audience," said Sam Fillingham CEO PIP-UK. "With Giselle Barbosa’ss expertise and the insights of our guests, we believe this podcast will become a valuable resource for the Poland Syndrome Community and medical professionals, providing them with the information and inspiration they need to live well with Poland Syndrome and find out more about treatment.
Listeners can tune in to the What about PS? podcast on Apple,Spotify, Amazon, TuneIn + Alexa. For more information and to listen to the latest episodes, visit pip-uk.org.
About PIP-UK. PIP-UK is a registered charity. Our activities include 121 engagements with individuals and families so we work directly with those affected. We also host community events that bring those affected together. We also run advocacy & wellbeing services and clinics with health care professionals to encourage their involvement.
There are no specialist doctors for PS, so for our community this means diagnosis & treatment is difficult. Parents are accused of mistreating a child when shoulders are hypermobile, teenagers go through years of torment, and adults live with debilitating mental health issues due to a lifetime of hiding their bodies. Our work is about supporting this marginalised community and for them to be treated equally against other disabilities, raise awareness and connect the community.
Poland Syndrome is rare limb difference you are born with, the body is affected on one side where muscles, bones or organs are absent or underdeveloped.
For media enquiries, please contact Sam Fillingham, CEO at PIP-UK. Contact on 07708 209874 and sam.pipuk@gmail.com.
What about PS? A Poland Syndrome Podcast
S2E2 From Unaware to Unifying: Paul's Journey with Poland Syndrome Parenthood and PS Fest
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In this episode, we delve into Paul Preston's extraordinary journey, from a world of unfamiliarity to becoming a driving force in the Poland Syndrome community. Pauls world was forever changed when his son was born with Poland Syndrome. Join us as we explore his path of discovery, advocacy, and unity, ignited by the arrival of his son William in 2022.
**Episode Highlights:**
1. **A Father's Awakening:**
- Witness Paul's awakening to Poland Syndrome when his son enters the world, propelling him into a realm of newfound understanding and purpose.
2. **Guided by Support:**
- Discover how Paul and his wife Rachel found solace and guidance through PIP-UK, a beacon of support for families navigating the complexities of Poland Syndrome.
3. **Embracing the Community:**
- Follow Paul and Rachel's journey of embracing the Poland Syndrome community, transforming adversity into a mission of equality, togetherness, and acceptance.
4. **Advocacy in Action:**
- Explore Paul's tireless efforts in raising awareness, breaking stigmas, and fostering inclusivity within the Poland Syndrome community and beyond.
5. **Uniting Hearts and Minds:**
- Witness the power of unity as Paul and Rachel's advocacy work brings the Poland Syndrome community together, creating a tapestry of support and solidarity.
6. **PS Fest: Join Us!**
- Paul shares exciting details about PS Fest, happening on April 27-28th in Birmingham. From a fashion show to axe throwing, bouncy castles, talent shows, and evening entertainment featuring DJs and comedians, there's something for everyone.
- On the second day Dive into the festivities with morning activities at an urban farm and a family cinema showing, uniting families and individuals in celebration and camaraderie.
Sign up to attend here.
Paul's journey is a testament to the transformative power of love, community, and unwavering dedication. His story serves as a beacon of hope and inspiration, inviting all to join in the celebration of unity at PS Fest.
Thank you for joining us on What about PS? [Podcast Name]. If Paul's journey resonated with you, be sure to subscribe and share this episode. We invite you to join us at PS Fest on April 27-28th in Birmingham, where we'll celebrate diversity, resilience, and the spirit of togetherness. Stay tuned for more empowering stories and opportunities to make a difference.
🌍 Support Our Global Mission PIP-UK is a charity without borders, providing 1:1 advocacy and specialist clinics for the Poland Syndrome community worldwide. Help us keep these lifelines free: Donate Here: https://bit.ly/4df3fyr
📋 Be Counted Join the Global Poland Syndrome Community Register to help us build a future of better care: https://bit.ly/4cCpC1t
✨ Connect & Support If this episode helped you, please Rate & Review the show on Apple Podcasts or Spotify—it helps other families find us!
Find us online: 🌐 Website: https://pip-uk.org/ 📱 Instagram & TikTok: @polandsyndromepipuk 👥 Facebook: pip.uk.org 💼 LinkedIn: PIP-UK
🎙️ Want to share your story? Email us at admin@pip-uk.org
