What about PS? A Poland Syndrome Podcast
What about PS? Hosted by Giselle Barbosa, PIP-UK Ambassador, Entrepreneur and Athlete. The What about PS? podcast aims to shine a light on Poland Syndrome, a rare disease, and the lived experience of the Poland Syndrome community.
Each episode, Giselle will explore inclusive and varied experiences of people living with Poland Syndrome with a variety of guests, from Paralympian Kim Daybell, Former Cricketer Lewis Hatchett, Australian Gymnast Clay Mason Stephens to medical professionals, bra companies and the most amazing members of our community. With engaging interviews, thought-provoking discussions, and the inclusive experience of the Poland Syndrome Community. The What about PS? podcast promises to be a must-listen for anyone curious about Poland Syndrome. Including the Poland Syndrome community, their friends and families, medical professionals and the rare disease community.
"We're thrilled to be launching this new podcast series and can't wait to share it with our audience," said Sam Fillingham CEO PIP-UK. "With Giselle Barbosa’ss expertise and the insights of our guests, we believe this podcast will become a valuable resource for the Poland Syndrome Community and medical professionals, providing them with the information and inspiration they need to live well with Poland Syndrome and find out more about treatment.
Listeners can tune in to the What about PS? podcast on Apple,Spotify, Amazon, TuneIn + Alexa. For more information and to listen to the latest episodes, visit pip-uk.org.
About PIP-UK. PIP-UK is a registered charity. Our activities include 121 engagements with individuals and families so we work directly with those affected. We also host community events that bring those affected together. We also run advocacy & wellbeing services and clinics with health care professionals to encourage their involvement.
There are no specialist doctors for PS, so for our community this means diagnosis & treatment is difficult. Parents are accused of mistreating a child when shoulders are hypermobile, teenagers go through years of torment, and adults live with debilitating mental health issues due to a lifetime of hiding their bodies. Our work is about supporting this marginalised community and for them to be treated equally against other disabilities, raise awareness and connect the community.
Poland Syndrome is rare limb difference you are born with, the body is affected on one side where muscles, bones or organs are absent or underdeveloped.
For media enquiries, please contact Sam Fillingham, CEO at PIP-UK. Contact on 07708 209874 and sam.pipuk@gmail.com.
What about PS? A Poland Syndrome Podcast
Meet the Bakers | Global Voices: Raising a Confident Athlete (NJ to SA)
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This Poland Syndrome Awareness Day 2026, we are proving that the PS community has no borders. In this landmark episode, our host Giselle (entrepreneur, athlete, PIP-UK Ambassador, and PS advocate calling in from South Africa) connects with the Baker Family in New Jersey, USA.
What follows is a beautiful conversation about the universal experiences of raising a child with Poland Syndrome. From the initial diagnosis in America to the confidence found on the sports field, and the entrepreneurial spirit driving advocacy in Africa, this episode is for every family, everywhere, who has ever felt alone in their journey.
In this global sit-down, we explore:
- The Baker’s Story: How early diagnosis and sports became the foundation for Connor’s incredible confidence in NJ.
- Giselle’s Perspective: Navigating life, sport and business as a woman with PS in South Africa.
- The Global Diagnostic Vacuum: Why families in every corner of the world face the same hurdles, and how we overcome them together.
- Sports as a Universal Language: Why physical activity is the ultimate tool for limb-different resilience.
🌍 ONE WORLD. ONE COMMUNITY. ONE MISSION. 🌍
From where we started in the UK to our host in South Africa and our guests in the USA, PIP-UK is the global clinical and emotional bridge for Poland Syndrome. We provide 1:1 specialist advocacy and peer-led connection sessions to families in every time zone.
We don’t receive international government funding or UK government funding. We rely on YOU.
If PIP-UK has been a community heartbeat for you or your family, please use this Awareness Day to ensure we can stay there for the next family, wherever they are in the world.
👉 DONATE GLOBALLY: http://bit.ly/4df3fyr
👉 THE UK CLINIC FUND: https://bit.ly/4tFTXCv
👉 BE COUNTED: https://bit.ly/4cCpC1t
Your donation has global impact
- £10 / $12: Powers our Monthly Community Zoom Connections, ensuring no one, regardless of their country, has to navigate Poland Syndrome alone.
- £50 / $60: Funds an In-Depth Advocacy Session. This provides one-to-one expert support for families facing critical moments: a new diagnosis, late-stage discovery, or complex surgery decisions.
- £100 / $125: Sponsors a Family at our Specialist Clinic. Your donation supports a family’s journey through the UK’s only multidisciplinary PS clinic.
🌍 Support Our Global Mission PIP-UK is a charity without borders, providing 1:1 advocacy and specialist clinics for the Poland Syndrome community worldwide. Help us keep these lifelines free: Donate Here: https://bit.ly/4df3fyr
📋 Be Counted Join the Global Poland Syndrome Community Register to help us build a future of better care: https://bit.ly/4cCpC1t
✨ Connect & Support If this episode helped you, please Rate & Review the show on Apple Podcasts or Spotify—it helps other families find us!
Find us online: 🌐 Website: https://pip-uk.org/ 📱 Instagram & TikTok: @polandsyndromepipuk 👥 Facebook: pip.uk.org 💼 LinkedIn: PIP-UK
🎙️ Want to share your story? Email us at admin@pip-uk.org
