THANKS for doing that
A podcast CELEBRATING people and ideas that make this world a better place by exploring the things we do, the reasons we do them, and why IT MATTERS.
THANKS for doing that
SPECIAL RELEASE: Chrissy Green on Finding Hope for FRRS1L
Check out the blog post for this episode here! Follow along @thanks.for.doing.that.podcast!
In this special release, Heather talks with Chrissy Green about the reality for kids living with FRRS1L . Chrissy dives into the biology and science in the episode; but, basically the FRRS1L disorder causes disruption to messages in the brain and affects life holistically for these children and their families.
Finding Hope for FRRS1L is a parent initiated non profit that is seeking to foster community, create awareness, and find a cure. They have had ground breaking results in trial studies and are moving forward to get the treatment to the children.
Finding Hope for FRRS1L website
Follow along on instagram @hope4frrs1l and @everlyshope
Catch more of the story @thanks.for.doing.that.podcast!