Comforting Closure - Conversations with a Death Doula

Dementia Caregiving: The Shift from Caregiver to Care Partner

Traci Arieli

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0:00 | 39:47

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In this episode of Comforting Closure – Conversations with a Death Doula, Traci Arieli speaks with Marilyn Raichle, author of Don’t Walk Away, about what it means to care for someone living with dementia in a more human, relational way. Together they discuss how dementia caregiving can shift from managing decline to building partnership, presence, and connection.  

Marilyn never planned to become a caregiver. Raised in a family where Alzheimer’s was considered worse than death, she was taught to walk away emotionally if dementia appeared. But when her mother began living with dementia, Marilyn’s perspective slowly changed. Through unexpected moments of creativity, art, music, and daily connection, she discovered a different way to approach dementia caregiving: as a care partner rather than only a caregiver.  

Key topics discussed include:

 
• The difference between being a caregiver and becoming a care partner 
• How fear and cultural narratives shape dementia caregiving 
• Why connection and personhood remain even as memory changes 
• Practical ways caregivers can reconnect with someone living with dementia 
• The role of creativity, art, and shared activities in maintaining relationship 
• The emotional realities of caregiving, guilt, and family dynamics 
• Major gaps in dementia care systems and support for caregivers 

Whether you are a family caregiver, a professional supporting people with dementia, or simply someone trying to understand how to care for aging loved ones, this episode offers a different way of thinking about dementia care. 

Links/Resources 

 
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