Unpacking the Gift of Life

Let’s Walk Together: Our Journeys with Rare Kidney Disease

Season 2 Episode 1

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0:00 | 37:41

Living with rare disease is a journey of challenges and triumphs. Valen and IgA nephropathy (IgAN) patient advocate Malkia White share their personal stories, exploring what makes the rare disease experience unique and the strength that comes from shared experiences. Tune in to hear about the power of connection in the rare disease community.

About Your Host
Valen Keefer – Patient Advocacy Leader, Health Educator, & Strategic Consultant, www.valenkeefer.com

Additional Resources
#ThatGirlNeedsAKidney, https://facebook.com/thatgirlneedsakidney
#ThatGirlNeedsAKidney, https://instagram.com/ThatGirlNeedsAKidneyResources
IgA Nephropathy Foundation, https://igan.org/
National Organization for Rare Disorders, https://rarediseases.org/
Mental Health America, https://mhanational.org/
Learn More about Living Donation – National Kidney Donation Organization, https://www.nkdo.org/