Reflections on 2025, Hopes for 2026 | The Community Speaks

What was one key learning around patient engagement that you're taking away from 2025? 

What gave you hope in patient engagement and advocacy this year? 

What’s one thing you’d love to see in patient engagement next year?

These are the questions that we asked not one... not two... but FIVE amazing guests for this special year-end episode of Not Just Patients.

Listen to our incredible guests Michelle Warner, Connie Montgomery, Dr Ratna Devi, Richelle Flanagan, and Keith Berelowitz, as they share their key highlights from 2025 and hopes for 2026.

Wishing all our listeners a happy holidays and happy new year!

Any speaker, topic, or event requests for 2026? Please feel free to reach out :)

Speaker bios:

• Michelle Warner (01:06) is Co-Founder of The Patient Project, aiming to bring science and patients together as equal partners, sharing ambitious patient-focused goals
• Connie Montgomery (06:14) is a living experience expert (LEE) diagnosed with Factor Seven Deficiency and Pemphigus Vulgaris, serving as a global patient advocate with several national and international entities
• Dr Ratna Devi (09:59) is the CEO and Co-Founder of DakshamA Health & Education, leads Indian Alliance of Patient Groups (IAPG), and is a Board Member for International Alliance of Patient Organisations (IAPO), Health India Alliance (HIA), and Asia Pacific Alliance for Rare Disease Organisations (APARDO)
• Richelle Flanagan (14:29) is a registered dietitian living with young-onset Parkinson’s, who has co-founded digital health solutions including My Moves Matter and the Women’s Parkinson’s Project
• Keith Berelowitz (18:13) is the Founder and CEO of pRxEngage, a platform designed to engage, educate, and empower people to take part in clinical research with confidence

Have feedback or suggestions for us? We'd love to hear from you!
Website: notjustpatients.com
LinkedIn: Not Just Patients
Email: info@notjustpatients.com

Chapters

• 0:00 Introduction
• 1:06 Michelle Warner - The power of patients connecting with each other
• 6:14 Connie Montgomery - Embedding lived experience partnership
• 9:59 Dr. Ratna Devi - Patients helping to define the problem and co-create solutions
• 14:29 Richelle Flanagan - Driving change over time through patient advocacy
• 18:13 Keith Berelowitz - Co-design, co-ownership, and shared responsibility
• 23:28 Reflections with Caitlin and Clarinda