My Voice, My Way
Welcome to “My Voice, My Way” – the podcast that gives a voice to those living with voice disorders.
I’m your host, Margaret Stoddart. I live with a complex voice condition – a combination of Muscle Tension Dysphonia and Spasmodic Dysphonia – and I’m also proud to serve as an Area Contact Leader for Dysphonia International, supporting others across the UK who are living with these often misunderstood conditions.
I created this podcast to raise awareness and start honest conversations about what it really means to live with a voice disorder.
Each episode, I speak with people who understand voice disorders from the inside – fellow sufferers, voice users, and expert clinicians, including ENT specialists, speech and language therapists, and clinical psychologists. Together, we explore the challenges, the treatments, the emotional impact – and the resilience it takes to reclaim our voices.
Whether you’re living with a voice disorder yourself, supporting someone who is, or working in voice care – you’re in the right place. This is a space for shared stories, practical insights, and above all – connection.
This is My Voice, My Way. Let’s get started.
Contact email: mstoddart7@outlook.com
My Voice, My Way
My Voice, My Way with Jono Organ
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Today’s guest is Jon Organ, known to most people as Jono. A husband of 37 years, father of four and grandfather of eleven, Jono’s life changed dramatically in 2022 when, after months of worsening symptoms and repeated investigations, he was finally diagnosed with Stage 4 laryngeal and thyroid cancer.
Following a 12-hour operation to remove his larynx, thyroid and lymph nodes, along with chemotherapy and radiotherapy, Jono faced the challenge of learning to breathe, swallow and speak again. Despite not speaking for a year after surgery, he has rebuilt his voice and now uses it to support others.
Jono founded the “Life After Lary” support group, which helps more than 2,000 patients worldwide, and is an ambassador for several cancer charities. He is also heavily involved in patient and public involvement work, helping to shape cancer research, treatment and healthcare services across the UK.
Today, Jono describes his voice as a beacon of hope, and he joins us to share his remarkable journey of resilience, advocacy and finding purpose after cancer.
www.lifeafterlary.co.uk