E32:When Doctors Navigate the System-A Physician’s Journey with Her Child’s Disability-Dr Umara Raza

In this conversation, Dr. Umara Raza shares with Host Dr Saba Fatima, her profound journey as a mother of a child with special needs while navigating her career as a physician. She discusses the emotional challenges of parenting, the impact of the healthcare system on families, and the importance of empathy in medical practice. Dr. Raza emphasizes the need for community support, the significance of communication in partnerships, and the journey of acceptance and advocacy for special needs children. Her insights provide valuable lessons for both parents and healthcare professionals.

Dr Umara Raza is a Cardiologist at the Baylor College of Medicine, Houston and is a special needs advocate. Her daughter was born deaf and was diagnosed with #Waardenburgsyndrome while she was in Cardiology Fellowship.

takeaways

Dr. Umara Raza shares her journey as a mother and physician.
Navigating a child's diagnosis can be overwhelming for parents.
The dual role of being a physician and a parent brings unique challenges.
Grief is a natural part of accepting a child's special needs.
The healthcare system can be a barrier for families seeking support.
Empathy in medical practice is crucial for patient care.
Misinformation about special needs can lead to stigma and blame.
Finding a supportive community is essential for special needs families.
Communication between partners is vital in managing stress and responsibilities.
Balancing career and family is a personal journey that varies for each parent.

keywords
#parenting , #specialneeds , #healthcare , #empathy,  #advocacy , medical challenges, community support, #physician  experience, grief, acceptance #waardenburgsyndrome #trending #deafcommunity 

00:00
Introduction to the Journey of a Physician-Parent
02:45
Navigating the Diagnosis of Complex Needs
08:30
The Emotional Landscape of Parenting a Child with Special Needs
11:20
Transitioning from Grief to Advocacy
16:42
The Reality of the Healthcare System from a Patient's Perspective
20:17
The Impact of Personal Experience on Medical Practice
27:00
Finding Perspective in Grief
29:24
Transforming Medical Practice Through Personal Experience
30:35
The Importance of Empathy in Healthcare
31:52
Navigating Misinformation in Autism Awareness
33:35
Social Isolation and Inclusion Challenges
36:08
Building a Supportive Community
39:54
Advice for Parents and Physicians
40:53
Balancing Career and Family Responsibilities
48:43
Systemic Changes Needed in Healthcare for Special Needs
50:03
Celebrating Pro

The views and opinions expressed in this episode are those of the guest and do not necessarily reflect the official policy or position of the 'Muted in Medicine' podcast or its host. The information shared is intended for educational and informational purposes only and should not be taken as professional advice.

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