All Things Amyloid
Hi everyone! My name is Mackenzie and I was diagnosed with AL amyloidosis at age 23. We don’t know the cause of this disease, but we do know that it can lead to serious and potentially life-threatening issues. This disease has changed me and my life in so many ways, and as a result, I founded Mackenzie’s Mission to join the fight against this disease.
Part of our effort is to raise awareness which, we believe, will accelerate diagnosis, enable earlier treatment, and improve patient lives. We do this in several ways, including our “All Things Amyloid” podcast. In our episodes, we will speak with patients and caregivers about their journey on a wide array of topics. We will also hear from amyloidosis experts about the medical side of this disease.
There is more hope for patients than ever before, and raising awareness around the globe is critical to improving patient lives. If you want to learn more about the work we’re doing at Mackenzie’s Mission, please visit mm713.org. Thanks for listening!
All Things Amyloid
Nurses are Valued Members of Our Care Team
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Nurses. Not enough can be said about their role in our care team and what they bring to the table. They truly are vital members of our care team. In today’s episode we’ll be talking with Jill Fleck, an amyloid clinic RN care coordinator at Mayo Clinic in Arizona. In our discussion, we’ll chat about nurses and why it’s important for patients to get to know them. For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 (for patients).
