All Things Amyloid
Hi everyone! My name is Mackenzie and I was diagnosed with AL amyloidosis at age 23. We don’t know the cause of this disease, but we do know that it can lead to serious and potentially life-threatening issues. This disease has changed me and my life in so many ways, and as a result, I founded Mackenzie’s Mission to join the fight against this disease.
Part of our effort is to raise awareness which, we believe, will accelerate diagnosis, enable earlier treatment, and improve patient lives. We do this in several ways, including our “All Things Amyloid” podcast. In our episodes, we will speak with patients and caregivers about their journey on a wide array of topics. We will also hear from amyloidosis experts about the medical side of this disease.
There is more hope for patients than ever before, and raising awareness around the globe is critical to improving patient lives. If you want to learn more about the work we’re doing at Mackenzie’s Mission, please visit mm713.org. Thanks for listening!
All Things Amyloid
Amyloidosis Destroyed My Heart; Organ Transplantation Gave Me Life
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Amyloidosis is a ruthless disease, attacking organs, leading them towards failure when left untreated. Fortunately there are treatments that can help slow disease progression, with more hope on the way in clinical trials. But what about the diseased organ, infiltrated with those rigid amyloid fibrils? Until there is a solution to address breaking down these fibrils, organ transplantation can be a leading choice for patients to consider. In this episode we’ll talk with Rayna, an AL survivor, who successfully underwent a heart transplant. But it wasn’t an easy path to get there. For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 (for patients).
