All Things Amyloid
Hi everyone! My name is Mackenzie and I was diagnosed with AL amyloidosis at age 23. We don’t know the cause of this disease, but we do know that it can lead to serious and potentially life-threatening issues. This disease has changed me and my life in so many ways, and as a result, I founded Mackenzie’s Mission to join the fight against this disease.
Part of our effort is to raise awareness which, we believe, will accelerate diagnosis, enable earlier treatment, and improve patient lives. We do this in several ways, including our “All Things Amyloid” podcast. In our episodes, we will speak with patients and caregivers about their journey on a wide array of topics. We will also hear from amyloidosis experts about the medical side of this disease.
There is more hope for patients than ever before, and raising awareness around the globe is critical to improving patient lives. If you want to learn more about the work we’re doing at Mackenzie’s Mission, please visit mm713.org. Thanks for listening!
All Things Amyloid
Physical Therapists - Be On The Lookout!
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It’s key for front-line healthcare providers to know about amyloidosis and the most common symptoms. They can play a valuable role in early suspicion, leading to early diagnosis, and life-changing benefits for patients. Today our guest is Dr. Jenelle Murphy, who has a Doctorate Degree in Physical Therapy, who is here to talk about how physical therapists can help identify signs and symptoms of amyloidosis. Early diagnosis in this rare disease is very important, especially since there are FDA-approved treatments that can help prevent amyloid build up throughout the body. If physical therapists are more aware of these signs and symptoms, they can refer the patient out to the appropriate physician to get a full workup and possibly save a life! For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 (for patients).
