The Disability Diaries With Steven Vine
I am a disabled man and will be talking to both abled and disabled individuals about their challenges and how they overcome them. Also talking to other people in the disabled community (caregivers, healthcare professionals, advocates).
If you have any concerns, comments, or questions, you are welcome to contact Steven at sgv44isback@gmail.com and on Facebook https://www.facebook.com/profile.php?id=61565452984831&mibextid=LQQJ4d. Steven would love to hear from anyone who would like to tell their story.
The Disability Diaries With Steven Vine
Thomas Exler: 'It's not what happens to you, it's what you do about it'
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Steve talks with Thomas Exler from Pittsburg, Pennsylvania, who was born with a very rare congenital birth defect known as bladder exstrophy. As Tom describes it, his bladder was like a balloon on the outside of his body. He had to have this removed at the age of 4. His mother created the first ostomy group in the world for caregivers of children with this condition. Bladder exstrophy brought Tom numerous challenges, including multiple surgeries and long hospital stays as a child. Yet, it also offered him countless blessings—chief among them, the opportunity to become a lifelong advocate for others living with similar conditions. In 2010, Tom established Courage to Shine™, a patient-centered initiative that honors individuals born with genitourinary birth defects who have grown to become outstanding role models. The project also serves as a platform for motivational presentations and global outreach.
Bladder Exstrophy, Resilience, and Global Advocacy: The Journey of Thomas Exler – Courage to Shine™
