22. Zoe Chung: Raising a Baby with CMS While Facing Breast Cancer

In this episode, I’m joined by Zoe Chung, a mum to her daughter Sophia, who was diagnosed with Congenital Myasthenic Syndrome (CMS) after a complex start to life.

Zoe shares her experience navigating the NICU, receiving a rare diagnosis, and adjusting to life with a medically complex child. While still in hospital with Sophia, Zoe was also diagnosed with breast cancer, beginning treatment while continuing to care for her daughter.

This is a conversation about facing the unexpected on multiple fronts, the reality of medical motherhood, and what it looks like to keep moving forward through it all.

As always, this episode is a reminder that even in the hardest seasons, you’re not alone.

Show Links:

Very Special Kids - Providing holistic palliative care for children and young people across Victoria.

Medical Mums Australia (of kids with complex medical needs): https://www.facebook.com/share/g/18WsAxGBhu/

Zoes Instagram account 

https://www.instagram.com/zoefromtiktok?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==

Thank you for being here,

Lisa xx