Life With a Difference
A space to celebrate and empower individuals with visible differences.
Through my work as a patient advocate I've had the privilege of meeting so many incredible people with stories that I believe we could all benefit from hearing.
This podcast aims to share those stories, experiences, and journeys of those living with unique appearances. Through candid conversations and inspiring interviews, we aim to challenge stereotypes, foster understanding, increase empathy and kindness and build a community where everyone feels seen and heard.
Join us as we explore topics ranging from self-acceptance and advocacy to the everyday triumphs and challenges faced by our guests. Whether you have a visible difference or simply want to learn more, you’re invited to be part of our conversation and discover the beauty in diversity.
Subscribe now to help create a kinder and more inclusive world.
Life With a Difference
Life with Neurofibromatosis: Oliver Bromley
In this conversation, Oliver shares his journey living with Neurofibromatosis Type 1, detailing his experiences with surgeries, mental health, and the importance of acceptance. He recounts a distressing incident at a restaurant that led to widespread media attention, emphasizing the need for kindness and understanding towards those with visible differences. Oliver discusses the challenges of navigating the healthcare system, the significance of having a strong support network, and the role of advocacy in raising awareness. He concludes with a powerful message about the importance of being kind and the impact it can have on individuals facing unseen battles.
Episode links:
https://news.sky.com/video/facial-difference-man-turned-away-from-a-restaurant-due-to-his-facial-difference-speaks-to-sky-news-13226824
https://www.changingfaces.org.uk
Chapters:
00:00 Introduction and Technical Difficulties
02:57 Personal Experiences with Neurofibromatosis
05:54 Surgical Journey and Management of Symptoms
08:48 Mental Health and Acceptance
11:56 The Restaurant Incident and Public Response
17:40 Choosing Reconciliation Over Revenge
22:30 Microaggressions and Employment Challenges
25:28 The Importance of Support Networks
27:53 Mental Health and Visible Differences
29:24 Navigating Healthcare Challenges
32:43 Rules of Engagement in Conversations
36:17 Advocacy and Media Experience
43:01 Practical Advice for NF1 Sufferers
44:55 A Message of Kindness
Social media:
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TikTok https://www.tiktok.com/@lifewithadifference
Linkedin https://www.linkedin.com/in/andrew-collinson/
Blog:
https://www.lifewithadifference.info/
Please get in touch if I can help in any way